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The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. To this end, the NDSS National Policy Center strives to protect the rights and remove the barriers of all individuals with Down syndrome. The policy center:

  • Works with Congress and federal agencies to develop and improve laws, regulations and other policies
  • Trains and educates parents, self-advocates and others to advocate on the local, state and national levels
  • Organizes and participates in coalitions of national disability organizations
  • Leads national and statewide Governmental Affairs Committees
The legislative and policy priorities of the NDSS National Policy Center span the life experience of individuals with Down syndrome from birth through adulthood and range in issue from healthcare to asset development. These priorities have been shaped by self-advocates, families, affiliate leaders and others under the direction of the NDSS Board of Directors and the National Governmental Affairs Committee (NGAC), and are as follows:
  • Raise expectations and improve outcomes for people with Down syndrome in the prenatal period through age five
  • Provide a first-class education for children with Down syndrome
  • Create an economic future for adults with Down syndrome
  • Develop treatments and therapies to improve the quality of life of people with Down syndrome

NDSS National Policy Center 2010 Update

In honor of World Down Syndrome Day, NDSS provided an update on the progress of the NDSS National Policy Center. Click here to read the document.