Join the National Down Syndrome Society for the Buddy Walk® on Washington
February 24th and 25th, 2010
Government Affairs Committee (GAC) leaders, affiliate leaders in government relations, seasoned self-advocates and others will come together to "walk" right into the offices of their elected officials! This will be an ideal opportunity to:
- Learn strategies for successful advocacy
- Meet with elected representatives
- Create lasting partnerships
- Connect with other Down syndrome advocates from around the country
Preliminary Conference Schedule:
Wednesday, February 24
2:00 p.m.-4:30 p.m.
Interactive advocacy training to unite and prepare for visits on the Hill
6:30 p.m.-9:30 p.m.
Buddy Walk on Washington Reception and Award Ceremony
Thursday, February 25
8:00 a.m.-9:30 a.m.
Legislative Breakfast on the Hill
9:00 a.m.-5:30 p.m.
Meetings with Elected Officials
To register, call Vanessa Quick at 1-800-221-4602. The fee for registration, which
includes a ticket to the Reception and Award Ceremony, is $25. All registrants will
receive online training, information and resources before the conference to facilitate
preparations for meetings with elected officials.
To arrange your stay, contact the conference hotel, the Washington Plaza Hotel at www.washingtonplazahotel.com or 1-800-424-1140. The hotel is located in close proximity to the offices on Capitol Hill. Please let the reservation agent know you will be attending the Buddy Walk on Washington to receive the special conference rate.
New Advice for Doctors Diagnosing Down Syndrome
The National Down Syndrome Society is dedicated to ensuring that all new and expectant parents around the country receive accurate, up-to-date, and balanced information about Down syndrome when they first learn of the diagnosis. So many new and expectant parents around the country report that the way in which they received the news could certainly have been improved. Further, physicians often lack the training in how to deliver such a sensitive diagnosis.
All new and expectant parents should be receiving the same information in a sensitive manner. To this end, NDSS asked Dr. Brian Skotko, Dr. Priya Kishnani, and Dr. George Capone of its Clinical Advisory Board to assemble a research team of 29 experts around the country to review research from 1960 to present day so that the following questions could be answered: Who is the best person to communicate the news? When is the best time to share the news? Where should the news be delivered? What information should be offered? How should the diagnosis be communicated?
The evidence-based results have now been published in two landmark papers, printed in the medical journals, American Journal of Medical Genetics and Pediatrics.
Remembering Senator Edward Kennedy
Edward M. Kennedy (D-MA), U.S. Senator, legislative advocate for people with disabilities and friend of the National Down Syndrome Society, died on Tuesday, August 25, 2009. Along with thousands of individuals with disabilities and their families across the country, NDSS mourns the loss of Senator Kennedy.
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My Great Story Headlines
AMI Entertainment Network Highlights the My Great Story Campaign Across The U.S.
The 15-second My Great Story PSA will appear in idle mode on all AMI countertops and jukeboxes that are registered to run advertising from October 19th- November 20. Click here to read more.
The My Great Story Campaign will be Featured in the November Issues of Conde Nast Magazines.
Vogue, Conde Nast Traveler, The New Yorker, Wired, Golf Digest, Lucky, and Allure have donated space to profile The Traveler and The Public Speaker. These magazines are available in specific regions by subscription only.
 
Toys“R”Us Unveils Annual Toy Guide For Differently-Abled Kids
Toys“R”Us, Inc. announced the release of the 2009 Toys“R”Us Toy Guide for Differently-Abled Kids, an easy-to-use toy selection guide that matches specific skill sets with a wide range of everyday playthings. Released annually, this complimentary resource will be available in Toys“R”Us and Babies“R”Us stores nationwide and online, in English and Spanish, at Toysrus.com/DifferentlyAbled. Whoopi Goldberg, mother and grandmother, Oscar®, Tony, GRAMMY® and Emmy® Award-Winner and child advocate, is featured on the cover along with Grace Kurowski, a five-year-old girl from Skillman, NJ.
New this year, the Guide features a special section dedicated to providing critical safety tips to help parents and caregivers avoid playtime injuries. While the 2009 edition includes updated features and an enhanced website, the fundamental elements that remain family favorites year after year, like the recognizable skill-building icons, still appear in this beloved resource. Learn more
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