The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
666 Broadway, 8th Floor
New York New York 10012
800-221-4602
info@ndss.org 

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  1. My Great Story

    Mark and I met in 2005 after years of searching for each other. We fell in love almost from day one and knew we would spend the rest of our days together as a team. We knew we wanted to have kids from the beginning. We tried for some time without luck. Then, we started fertility treatments and found out we would be having three beautiful babies. We were over the moon. Then, in December, we lost...

  2. My Great Story

    We were devastated when we found out Davis had Down syndrome. All the thoughts of what he wouldn’t be able to do flooded our minds. Now, almost ten years into the journey, we know those initial thoughts were based only on our own ignorance. Life with Davis is a constant celebration of all he can do. Here he is proudly showing off his gymnastics skills in anticipation of the Special Olympics...

  3. My Great Story

    I was only a few weeks along in my pregnancy when my husband and I packed up ourselves and our two daughters for a mini family vacation to Saint Louis. This was actually the first vacation we had ever taken as a family. Our oldest daughters are actually my husband's step children. This pregnancy was his soon to be first biological child. We were extremely excited. We had been waiting for what w...

  4. My Great Story

    The doctor walked into the ER and said “I know this is going to be hard to handle but it looks like she has leukemia.” Tears streamed down my face as I tried to process what was just said. I asked him “are you sure? This already happened, the labs were wrong, please look again.” I was sobbing so hard that I could barely talk. The doctor said they were positive, it was not a mistake. I looked at...

  5. My Great Story

    One year has passed since I learned the fateful news about my unborn baby. On November 1, 2011, I learned my son’s heart had not formed properly, and he would require heart surgery as an infant. Two weeks later, I learned why: my child had Down syndrome. Learning about the heart problem was hard; I felt such guilt, that perhaps somehow I had caused this. I grieved over knowing my poor baby was...

  6. My Great Story

    In early January, I decided to launch a Facebook page dedicated to my son Colton Ryder, who had been diagnosed with Down syndrome soon after his birth the previous September. The goal was to update family and friends about his growth and development. However, what started out as a personal website quickly turned into a vibrant journey of advocacy attracting thousands of fans nationwide. Hence t...

  7. My Great Story

    Our sweet Emma Grace was born March 25, 2010. She entered this world two weeks early for fear she would be ten pounds. She surprised us all by only weighing 7 lbs 11 ounces. Her brother was so excited to finally meet her. Emma Grace is "his Baby." You are privileged if you get to hold her, but only for a few minutes. He still whispers in my ear, "I want my baby back. Tell them to give her back,...

  8. My Great Story

    My big brother Joey, I love him more than words can express! He and the Lord have made me who I am today! His love caused me to have a heart of compassion, a desire to help our community and change our world! After having been a special education teacher & professional advocate I brought Joey to live with me after some sketchy issues at his former house. When it didn't work out four months late...

  9. My Great Story

    My triple screen came back slightly abnormal, but the high resolution ultrasound told staff and my family that the baby was perfectly fine. None of the things they needed to look at raised a flag. No sign of Down syndrome at all. Had her at my hospital, (a scheduled C-Section, she was breech) a mile from home. We were told she needed bowel surgery right away, god this will always make me tear...

  10. My Great Story

    After my C-Section, my husband and I waited for the doctors to bring in our baby. When the door opened and we saw the doctor without our boy all swaddled, my heart dropped. Our doctor spoke slowly as he began to tell us that our baby was sick. His heart had a hole in it, and he had Down syndrome. My heart started beating fiercely; my body was full of so many emotions that I broke down and cried...

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