National Down Syndrome Society8 E 41st Street, 8th FloorNew York New York 10017800-221-4602[email protected]
Through a variety of research programs and activities, now focusing on advocacy for Down syndrome research on the federal level, NDSS has long played a major role in advancing knowledge about Down syndrome.
Since 1979, the National Down Syndrome Society has been at the forefront of Down syndrome research.
NDSS is excited to be a part of DS-Connect™: The Down Syndrome Registry, the Down syndrome registry hosted by the National Institutes of Health and the Down Syndrome Consortium.
Use this guide to learn about how trials and studies are structured and the kinds of questions you might ask when considering participating in a research study or clinical trial.
A listing of clinical trials and research studies actively recruiting participants with Down syndrome.