The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
[email protected] 


  1. New & Expectant Parents

    New & Expectant ParentsCongratulations on the birth, or expected birth, of your baby! Now is the time to begin learning all you can about Down syndrome and this section is a great place to start.

  2. Helpline

    HelplineThrough our toll-free helpline and email service, NDSS receives more than 10,000 requests a year for information on Down syndrome.

  3. Local Support

    Local SupportNDSS has more than 375 affiliates that service the Down syndrome community in their area. Use the interactive map to locate the one nearest you.

  4. Publications

    PublicationsNDSS produces a variety of educational tools including printed materials, videos and recordings of our monthly Webinar Series.

  5. Health Care

    Health CarePeople with Down syndrome have specific health care needs above and beyond standard medical care. This section includes information on conditions that are more likely to occur in individuals with Down syndrome, as well as health care guidelines and a map of specialty clinics for people with Down syndrome.

  6. Therapies & Development

    Therapies & DevelopmentEarly Intervention and many other therapeutic services are offered to people with Down syndrome, and the articles in this section are merely overviews and suggestions. All children, whether they have Down syndrome or not, develop at their own pace. Always speak with your child’s doctor or therapist before starting any new therapies.

  7. Wellness

    WellnessMany people think of wellness as “the absence of illness,” but it is much more than that. Wellness involves looking at the whole picture. It is the combination of six main areas of life: the intellectual, physical, emotional, social, psychological and spiritual. Wellness means finding a balance between all of these things. A perfect balance rarely happens for anyone, but if one aspect is not addressed at all or is overshadowed by others, that is a red flag.

  8. Education

    EducationThis section includes information about inclusion, elementary and secondary schooling, and college and postsecondary options for students with Down syndrome.

  9. Caring for Your Family

    Caring for Your FamilyResearch shows that families of children with Down syndrome can be stable, successful and happy. This section provides information on things you can do to meet the needs of your entire family.

  10. Transition & Beyond

    Transition & BeyondIssues that effect adolescents and adults with Down syndrome and their families include sexuality, employment, housing, transition planning and specific health conditions that are associated with Down syndrome.

  11. Aging Matters

    Aging MattersAdults with Down syndrome are now reaching old age on a regular basis and are commonly living into their 50s, 60s and 70s. In order to enjoy all the wonderful aspects of a longer life, it is important to be proactive and learn about the issues that may lie ahead.

  12. Research

    ResearchThrough a variety of research programs and activities, now focusing on advocacy for Down syndrome research on the federal level, NDSS has long played a major role in advancing knowledge about Down syndrome.

  13. NDSS en Español

    NDSS en EspañolEl objetivo de la NDSS (Sociedad Nacional del Síndrome de Down) es ofrecer el recurso primero en el web con respecto al síndrome de Down, proporcionando a las familias, los individuos con el síndrome de Down, profesionales de asistencia médica, profesionales educativos y el gran público con un solo recurso completo, hasta la fecha, accesible de información y recursos sobre el síndrome de Down. Mientras tanto, NDSS todavía esta comprometido a servir miembros de la comunidad del síndrome de Down en español.

  • Buddy Walk
  • NDSS Yourway
  • NDSS DS-Ambassadors