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Congratulations on the birth, or expected birth, of your baby! Now is the time to begin learning all you can about Down syndrome and this section is a great place to start.
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Through our toll-free helpline and email service, NDSS receives more than 10,000 requests a year for information on Down syndrome.
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NDSS has more than 375 affiliates that service the Down syndrome community in their area. Use the interactive map to locate the one nearest you.
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NDSS produces a variety of educational tools including printed materials, videos and recordings of our monthly Webinar Series.
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People with Down syndrome have specific health care needs above and beyond standard medical care. This section includes information on conditions that are more likely to occur in individuals with Down syndrome, as well as health care guidelines and a map of specialty clinics for people with Down syndrome.
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Details on how early intervention therapies can benefit a baby with Down syndrome, the various kinds of early intervention available and how to access services.
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Many kinds of therapeutic services are offered to people with Down syndrome, and the articles in this section are merely overviews and suggestions. All children, whether they have Down syndrome or not, develop at their own pace. Always speak with your child’s doctor or therapist before starting any new therapies.
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The behavioral challenges seen in children and adults with Down syndrome are usually not all that different from those seen in typically developing children. However, they may occur at a later age and last somewhat longer.
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This section includes information about inclusion, elementary and secondary schooling, and college and postsecondary options for students with Down syndrome.
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Tips and resources for children and adults with Down syndrome and their families to access recreation opportunities and friendships in the community.
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Research shows that families of children with Down syndrome can be stable, successful and happy. This section provides information on things you can do to meet the needs of your entire family.
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Issues that effect adolescents and adults with Down syndrome and their families include sexuality, employment, housing, transition planning and specific health conditions that are associated with Down syndrome.
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Self-advocates play an important role in the work and operation of NDSS. Self-advocates testify on important policy issues, serve on the National Board of Directors and the Self-Advocate Advisory Board, and act as Goodwill Ambassador.
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Through a variety of research programs and activities, now focusing on advocacy for Down syndrome research on the federal level, NDSS has long played a major role in advancing knowledge about Down syndrome.
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El objetivo del NDSS es de ofrecer el recurso primero en el web con respecto al síndrome de Down, proporcionando a las familias, los individuos con el síndrome de Down, profesionales de asistencia médica, profesionales educativos y el gran público con un solo recurso completo, hasta la fecha, accesible de información y recursos sobre el síndrome de Down. Mientras tanto, NDSS todavía esta comprometido a servir miembros de la comunidad del síndrome de Down en español.