The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
800-221-4602
info@ndss.org 

Advocacy

Featured ImageThe NDSS National Policy Center was founded in 2005 as the NDSS advocacy arm to support our mission to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. Our National Policy Center facilitates and mobilizes advocacy efforts for federal, state, and local policies that positively impact people with Down syndrome across the country.

  1. About the NDSS National Advocacy & Public Policy Center

    About the NDSS National Advocacy & Public Policy CenterThe NDSS National Advocacy & Public Policy Center advocates for laws, regulations, and policies that span the life experience of individuals with Down syndrome.

  2. Advocacy Programs

    Advocacy ProgramsNDSS leads state of the art national advocacy programs to support all Down syndrome advocates across the country. Our national programs are designed to support all advocates for people with Down syndrome by recognizing there are varying levels of volunteer advocacy involvement.

  3. Buddy Walk® on Washington Advocacy Conference

    Buddy Walk® on Washington Advocacy ConferenceThe NDSS Buddy Walk® on Washington is an annual two-day advocacy conference that brings the Down syndrome community together to advocate for legislative priorities that impact the lives of people with Down syndrome and their families.

  4. ABLE Act

    The Stephen Beck Jr. Achieving a Better Life Experience (ABLE) Act (Public Law 113-295) was signed into law by President Obama on December 19, 2014. The ABLE Act amends the Internal Revenue Service Code of 1986 to create tax-free savings accounts for individuals with disabilities. The funds in the ABLE account do not count toward the $2,000 cap on assets that is required to remain eligible for critical government supports.

  5. Legislative Agenda

    *This section is under construction. Please check back for updated information.* The NDSS legislative agenda spans the life experience of individuals with Down syndrome from birth through adulthood and ranges in issue from health care to asset development. These priorities have been shaped by self-advocates, families, affiliate leaders and others under the direction of the NDSS Board of Directors.

  6. Congressional Task Force on Down Syndrome

    The Congressional Task Force on Down Syndrome was established in May 2015. NDSS works with the Task Force to educate Members of Congress and their staff about Down syndrome. The Task Force supports legislative activities and public policies that would enhance the quality of life for those with Down syndrome.

  7. Advocacy 101

    Advocacy 101As the national advocate for the value, acceptance and inclusion of people with Down syndrome, NDSS wants to ensure that advocates across the country understand what advocacy is and how to get involved. This section includes an introduction to advocacy, information about NDSS Advocacy Alerts, a glossary of advocacy terms and ideas for incorporating advocacy into your local Buddy Walk®.

  • Buddy Walk
  • NDSS Yourway
  • NDSS DS-Ambassadors