The NDSS legislative agenda spans the life experience of individuals with Down syndrome from birth through adulthood and ranges in issues from health care to asset development. These priorities have been shaped by self-advocates, families, affiliate leaders and others under the direction of the NDSS Board of Directors.
NDSS advocates for education laws and policies that uphold the rights of individuals with Down syndrome to receive a free and appropriate public education in the least restrictive setting: promote principles and practices designed to improve educational outcomes for students with Down syndrome.
People with Down syndrome face many challenges in gaining economic self-sufficiency. NDSS advocates break down barriers and to develop financial planning opportunities for people with Down syndrome and their families.
NDSS is actively involved in advocacy efforts to create meaningful, integrated employment opportunities for people with Down syndrome. The broad scope of our efforts and our federal and state legislative priorities are described in this section.
People have approached me many times since I have become an ambassador. Some people have wanted direction or help on topics ranging from inclusion, finding therapists, or extracurricular activities. There have been circumstances where people have come to me to question the role of disability rights in human rights. Yesterday, a lady approached me because she read that I was named ambassador of the year. She explained to me that she lost a baby with Down syndrome when she was six months pregnant many years ago. The lady wanted to talk about her pain. My ambassadorship allows me to pass on this guidance. It allows me to be an ear for people who need to talk. I am given the opportunity to serve others.
