The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome.
The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.
NDSS supports and advocates for the Down syndrome community by focusing on three key areas of programming: Resources & Support, Policy & Advocacy, and Community Engagement. Within these focus areas NDSS engages in various activities, events and programs. Among these are the National Advocacy & Public Policy Center; resources to support individuals with Down syndrome, their families and caregivers through the lifespan; education and employment; as well as community events like the National Buddy Walk® Program and New York City Buddy Walk®, the annual NDSS Gala & Auction, Racing for 3.21 for World Down Syndrome Day, Run for 3.21 and various Team NDSS charity racing events across the country.
Our Core Values
In 2020, President and CEO Kandi Pickard challenged the NDSS staff to develop Core Values to guide our work on behalf of the organization and the Down syndrome community. The four values – Service, Integrity, Collaboration and Belonging – represent the way we work today and will challenge and inspire the way we continue to work in the future.
NDSS is a 501c3 organization. Our advocacy work is nonpartisan and we do not endorse any political party or candidate.