NDSS on Fox Business

NDSS on Fox Business, #NoCutsNoCaps

July 27, 2017 Today, the National Down Syndrome Society (NDSS) President Sara Hart Weir was joined by self-advocate, Kayla McKeon and Elvia Kahyaoglu, mother of a 12-year-old daughter, Janissa, with Down syndrome, appeared on Fox Business to discuss the Senate healthcare debate, Medicaid cuts and the overall impact on people with Down syndrome and their families. Sara, […]

NDSS Opposition to Health Care Bill

National Down Syndrome Society Opposes the U.S. Senate Healthcare Bill

July 5, 2017 In a letter hand-delivered to all 100 United States Senators today, the National Down Syndrome Society, the leading human rights organization for all individuals with Down syndrome, reiterated its strong opposition to the Senate “Better Care Reconciliation Act (BCRA) of 2017”. The Senate bill outlines a new Medicaid financing mechanism – per capita spending […]

Pace and Andrew Athlete Ambassadors

Happy Father’s Day from NDSS

June 18, 2017 Meet Andrew Callihan, proud dad to Pace and a dedicated member of our NDSS Athlete Ambassador Program. “Before Pace was born and we received his diagnosis, I approached racing differently. I was all about meeting goals and crossing the finish line in the time I’d set for myself. Last year, I raced the Ironman Raleigh […]

NDSS Even Strength Boston Golf Outing

NDSS Announces First Annual Boston Golf Outing

June 15, 2017 Please join NDSS, Proskauer and the New Jersey Devils for our first ever Even Strength Golf Outing, on Tuesday, July 18, 2017 at the Renaissance Golf Club located in Haverhill, MA. Would you like to play with our celebrity NHL players? Add an NHL player from the list below (more players to come) as […]


MO ABLE Opens Window of Opportunity for Missouri Families

June 3, 2017 This week National Down Syndrome Society’s President Sara Hart Weir and Missouri State Treasurer Eric Schmitt coauthored an op-ed explaining the importance and impact of the state’s ABLE program. MO ABLE is honoring the dignity and potential of every person and lessening the burden of costly disability expenses. NDSS hopes every eligible Missourian takes part in this opportunity. You can […]

Kansas Organ Transplate Discrimination

Protecting Kansans with Down Syndrome From Organ Transplant Discrimination

May 10, 2017 NDSS continues to lead an effort to enact state legislation to prohibit discrimination for individuals with intellectual and developmental disabilities when it comes to life-saving organ transplants. The Kansas Legislature is considering a measure aimed to save countless lives of people with Down syndrome and other disabilities in dire need of organ transplants. […]