Kandi Pickard Selected as the New NDSS President and CEO

FOR IMMEDIATE RELEASE     National Down Syndrome Society Names Kandi Pickard President and CEO Pickard Previously Served as a Local Buddy Walk Organizer, NDSS Executive and is a Parent in the Down syndrome Community. Her Focus will be on the Growing Adult Population in the Down syndrome Community Washington, D.C. (July 11, 2019) – […]


How a bill becomes a law- Washington State Organ Transplant Discrimination Legislation

How a bill becomes a law- Washington State Organ Transplant Discrimination Legislation May 9, 2019   Passing legislation is a long game. In a democracy, rarely do things happen overnight, even for something as obvious as banning discrimination in organ transplantation because the recipient has a disability. In August 2018, at the request of Congresswoman […]


Thank You and Let’s Go!

This has been a very bittersweet time for the NDSS Team. May 1 marked the beginning of a new chapter as Sara Hart Weir transitioned out of her role as President and CEO. First, Sara is a great colleague and has been an unbelievable advocate for NDSS for over a decade. We all know she […]


2019 New York City Buddy Walk®

The 25th Annual New York City Buddy Walk® will take place on Saturday, September 14, to honor and celebrate individuals with Down syndrome in our communities. This event is focused on raising awareness and funds for NDSS programs that benefit people with Down syndrome and their families.   Register for the 2019 New York City Buddy […]


Important Announcement from NDSS

To Our National Down Syndrome Society Family: It is with both deep gratitude and sadness that we announce that after seven years in the trenches, our National Down Syndrome Society’s (NDSS) President and C.E.O. Sara Hart Weir has decided to step down this year to pursue opportunities to continue her advocacy and service to our […]


2020 Marine Corps Marathon

Run for Down Syndrome and Add Gratitude to Your Miles!   Race details: Date: October 25, 2020 Location: Virtual   Fundraising Commitment: To participate as a #TeamNDSS team member you must meet a minimum fundraising commitment, All participants must fundraise a minimum of $500 to run for #TeamNDSS Race registration fee is NOT included with […]


2019 Disney Wine & Dine Half Marathon Weekend

Run for Down syndrome and add gratitude to your miles!   Apply to Race! Join #TeamNDSS, an official charity partner, for the Disney Wine & Dine Half Marathon Weekend! With your commitment to participate in the 2019 Disney Wine & Dine Half Marathon Weekend, you will be helping to support and share our mission of […]


Facts on Fire: How to Have Fun and Be Safe During the Holidays

By Ann Graham Ann Graham is Chief Communications Officer for FireGuide, an app that automates custom fire drills for the cognitively impaired. Follow us on Facebook @FireGuideApp.   Fires at home happen more often than you think. In fact, the American household averages a fire of some significance every 15 years, according to the National Association for […]