2021 National Buddy Walk® Program Announcement – March 1, 2021 After the challenges of 2020, we hope you can join us in feeling optimistic about the year ahead. Last year, it was extremely important to everyone at NDSS that we waived Buddy Walk® licensing fees in support of your local events. We are thrilled to have worked with so many of you over the past year to […]
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Down Syndrome Self-Advocate’s Book Urged as a Must-Read for Members of Congress
FOR IMMEDIATE RELEASE NDSS Contact Michelle Sagan media@ndss.org 202-848-5409 Down Syndrome Self-Advocate’s Book Urged as a Must-Read for Members of Congress Vienna, VA (April 14, 2021) – At a young age, David Egan used to watch C-SPAN and dream of making speeches like members of Congress. When he published his book, “More Alike Than […]
LuMind IDSC Foundation, the National Down Syndrome Society, and Eli Lilly and Company Release Findings of Ongoing Study of Clinical Trial Participation by the Down Syndrome Community
LuMind IDSC Foundation, the National Down Syndrome Society, and Eli Lilly and Company Release Findings of Ongoing Study of Clinical Trial Participation by the Down Syndrome Community March 9, 2021 (Burlington, MA): LuMind IDSC Foundation, the National Down Syndrome Society (NDSS), and pharmaceutical leader Eli Lilly and Company (Lilly) recently released findings of a study that identifies barriers to clinical trial participation by people with Down syndrome and Alzheimer’s disease. […]
National Organizations Join Forces to Publish New Covid-19 & Down Syndrome Resource
NATIONAL ORGANIZATIONS JOIN FORCES TO PUBLISH NEW COVID-19 & DOWN SYNDROME RESOURCE An Important Resource for Families with Updated CDC Guidelines PLYMOUTH, Minn., DENVER, BURLINGTON, Mass., ATLANTA, NEW YORK CITY, and ROCKPORT, Maine, March 2, 2021 /PRNewswire/ — Today, an important and timely COVID-19 and Down Syndrome Resource (“Resource”) was published by a consortium of national Down syndrome organizations: the Down Syndrome Medical Interest […]
Herrera Beutler, Porter Reintroduce Organ Transplant Bill
February 23, 2021 FOR IMMEDIATE RELEASE Contact: Craig Wheeler @ 202-225-3536 Herrera Beutler, Porter Reintroduce Organ Transplant Bill Legislation tackles disability-based discrimination of organ transplant recipients WASHINGTON, D.C. – U.S. Representatives Jaime Herrera Beutler (WA-03) and Katie Porter (CA-45) today reintroduced the Charlotte Woodward Organ Transplant Discrimination Prevention Act, which will prohibit using an […]
NDSS Response to the Use of the R-word by Rep. Marjorie Taylor Greene
New York, NY (January 29, 2021) – The National Down Syndrome Society (NDSS) denounces the use of outmoded and offensive terms to refer to individuals with Down syndrome. The R-word has no place in the public discourse or the halls of Congress. Individuals with Down syndrome or any other disability have the right to be treated with the same respect and dignity as any other member of society. It is long past time to […]
The National Down Syndrome Society and Voya Cares® release financial wellness guide to address the unique planning needs of the disability community
FOR IMMEDIATE RELEASE NDSS Contact: Michelle Sagan media@ndss.org 202-848-5409 Voya Contact: Jessica Speziale Jessica.Speziale@voya.com 646-284-3063 The National Down Syndrome Society and Voya Cares® release financial wellness guide to address the unique planning needs of the disability community New York, NY (January 29, 2021)– Voya Financial, Inc. (NYSE: VOYA), announced today that the National […]
Lila’s Law – Lawmaker Introduces Legislation to Prevent Organ Transplant Discrimination
FOR IMMEDIATE RELEASE NDSS MEDIA CONTACT: Michelle Sagan media@ndss.org 202-848-5409 LAWMAKER INTRODUCES LEGISLATION TO PREVENT ORGAN TRANSPLANT DISCRIMINATION Little Rock, AR (January xx, 2021) – The National Down Syndrome Society (NDSS), the leading human rights organization for all individuals with Down syndrome, applauds the introduction of SB 155, known as Lila’s Law to uphold the rights of qualified organ transplant candidates who […]