Global Down Syndrome Foundation, the National Down Syndrome Congress, and the National Down Syndrome Society Highlight the FDA’s Public Warning About Risks Associated with Non-Invasive Prenatal Screening Tests ATLANTA, DENVER, NEW YORK (April 27, 2022) – Last week, the U.S. Food and Drug Administration (FDA) warned the public of the risk of false results, inappropriate […]
Newsroom
Coalition Response to CMS Decision
April 11, 2022 Your advocacy is making a difference! The Down Syndrome Coalition, along with our colleagues from the Down Syndrome Diagnosis Network (DSDN), Down Syndrome Medical Interest Group-USA (DSMIG), International Mosaic Down Syndrome Association (IMDSA), and National Task Group on Intellectual Disabilities and Dementia Practices (NTG), and in partnership with our self-advocates and families, […]
George The Jeweler Creates One of A Kind Diamond Ring To Auction With The National Down Syndrome Society In Honor Of World Down Syndrome Day 2022
George The Jeweler Creates One of A Kind Diamond Ring To Auction With The National Down Syndrome Society In Honor Of World Down Syndrome Day 2022 (New York, NY) – Celebrity jeweler George Khalife, better known as George The Jeweler, has created a one-of-a-kind ring to auction in partnership with The […]
Grammy® Award Winning Musician Mark Tremonti Partners With National Down Syndrome Society For New Charity Initiative Inspired By His Daughter Stella
FOR IMMEDIATE RELEASE March 21, 2022 GRAMMY® AWARD WINNING MUSICIAN MARK TREMONTI –FOUNDING MEMBER OF THE BANDS ALTER BRIDGE/ CREED/TREMONTI – PARTNERS WITH NATIONAL DOWN SYNDROME SOCIETY (NDSS) FOR NEW CHARITY INITIATIVE INSPIRED BY HIS DAUGHTER STELLA Album Tremonti Sings Sinatra – Scheduled for Release On May 27th Through Mark’s New Charity Organization Take […]
NDSS Letter to WHO in Response to World Birth Defects Day Posts
Dr Tedros Adhanom Ghebreyesus Director-General, World Health Organization Avenue Appia 20 1211 Geneva Switzerland March 9, 2022 Dear Dr Tedros: People with Down syndrome are not defective. This past Friday, March 4, 2022, the World Health Organization (WHO) embarked on an informational campaign on social media recognizing World Birth Defects Day. In […]
National Down Syndrome Organizations Launch Joint Effort To Change CMS Proposal Concerning Coverage For New Class Of Alzheimer’s Treatments
FOR IMMEDIATE RELEASE NATIONAL DOWN SYNDROME ORGANIZATIONS LAUNCH JOINT EFFORT TO CHANGE CMS PROPOSAL CONCERNING COVERAGE FOR NEW CLASS OF ALZHEIMER’S TREATMENTS Atlanta, GA., Bismarck, ND., Burlington, MA., Denver, CO., Hoffman Estates, IL., New York, NY., Rockport, ME (February 4, 2022) – Down Syndrome Affiliates in Action (DSAIA), GiGi’s Playhouse Down Syndrome Achievement […]
New Resource Introduced to Support Inclusive Education of Individuals with Down Syndrome
NDSS Contact: Michelle Sagan media@ndss.org 301-728-0447 FOR IMMEDIATE RELEASE NEW RESOURCE INTRODUCED TO SUPPORT INCLUSIVE EDUCATION OF INDIVIDUALS WITH DOWN SYNDROME New York, NY (January 26, 2022) – The National Down Syndrome Society (NDSS) and Down Syndrome Education International (DSEI) are pleased to announce the availability of a new resource to support inclusive education for young people with Down syndrome. Down Syndrome: Guidelines for Inclusive Education aims to equip educators, […]
LAWMAKERS INTRODUCE FEDERAL LEGISLATION TO PREVENT ORGAN TRANSPLANT DISCRIMINATION
FOR IMMEDIATE RELEASE NDSS MEDIA CONTACT: Michelle Sagan media@ndss.org 301-728-0447 LAWMAKERS INTRODUCE FEDERAL LEGISLATION TO PREVENT ORGAN TRANSPLANT DISCRIMINATION Washington, D.C. (December 2, 2021) - The National Down Syndrome Society (NDSS), the leading human rights organization for all individuals with Down syndrome, applauds the introduction of the Senate companion to the Charlotte Woodward Organ Transplant Discrimination Prevention Act (H.R. 1235/ S.3301) to prohibit […]
NDSS Letter of Support for Transformation to Competitive Integrated Employment Act
View the full letter here.