Global Down Syndrome Foundation, the National Down Syndrome Congress, and the National Down Syndrome Society Highlight the FDA’s Public Warning About Risks Associated with Non-Invasive Prenatal Screening Tests

Global Down Syndrome Foundation, the National Down Syndrome Congress, and the National Down Syndrome Society Highlight the FDA’s Public Warning About Risks Associated with Non-Invasive Prenatal Screening Tests ATLANTA, DENVER, NEW YORK (April 27, 2022) – Last week, the U.S. Food and Drug Administration (FDA) warned the public of the risk of false results, inappropriate […]


Coalition Response to CMS Decision

April 11, 2022 Your advocacy is making a difference! The Down Syndrome Coalition, along with our colleagues from the Down Syndrome Diagnosis Network (DSDN), Down Syndrome Medical Interest Group-USA (DSMIG), International Mosaic Down Syndrome Association (IMDSA), and National Task Group on Intellectual Disabilities and Dementia Practices (NTG), and in partnership with our self-advocates and families, […]


Grammy® Award Winning Musician Mark Tremonti Partners With National Down Syndrome Society For New Charity Initiative Inspired By His Daughter Stella

FOR IMMEDIATE RELEASE March 21, 2022   GRAMMY® AWARD WINNING MUSICIAN MARK TREMONTI –FOUNDING MEMBER OF THE BANDS ALTER BRIDGE/ CREED/TREMONTI – PARTNERS WITH NATIONAL DOWN SYNDROME SOCIETY (NDSS) FOR NEW CHARITY INITIATIVE INSPIRED BY HIS DAUGHTER STELLA  Album Tremonti Sings Sinatra – Scheduled for Release On May 27th Through Mark’s New Charity Organization Take […]


NDSS Letter to WHO in Response to World Birth Defects Day Posts

Dr Tedros Adhanom Ghebreyesus Director-General, World Health Organization Avenue Appia 20 1211 Geneva Switzerland   March 9, 2022   Dear Dr Tedros: People with Down syndrome are not defective.   This past Friday, March 4, 2022, the World Health Organization (WHO) embarked on an informational campaign on social media recognizing World Birth Defects Day. In […]


National Down Syndrome Organizations Launch Joint Effort To Change CMS Proposal Concerning Coverage For New Class Of Alzheimer’s Treatments

FOR IMMEDIATE RELEASE    NATIONAL DOWN SYNDROME ORGANIZATIONS LAUNCH JOINT EFFORT TO CHANGE CMS PROPOSAL CONCERNING COVERAGE FOR NEW CLASS OF ALZHEIMER’S TREATMENTS   Atlanta, GA., Bismarck, ND., Burlington, MA., Denver, CO., Hoffman Estates, IL., New York, NY., Rockport, ME (February 4, 2022) – Down Syndrome Affiliates in Action (DSAIA), GiGi’s Playhouse Down Syndrome Achievement […]


New Resource Introduced to Support Inclusive Education of Individuals with Down Syndrome

NDSS Contact:    Michelle Sagan    media@ndss.org  301-728-0447    FOR IMMEDIATE RELEASE    NEW RESOURCE INTRODUCED TO SUPPORT   INCLUSIVE EDUCATION OF INDIVIDUALS WITH DOWN SYNDROME    New York, NY (January 26, 2022) – The National Down Syndrome Society (NDSS) and Down Syndrome Education International (DSEI) are pleased to announce the availability of a new resource to support inclusive education for young people with Down syndrome. Down Syndrome: Guidelines for Inclusive Education aims to equip educators, […]


LAWMAKERS INTRODUCE FEDERAL LEGISLATION TO PREVENT ORGAN TRANSPLANT DISCRIMINATION  

FOR IMMEDIATE RELEASE    NDSS MEDIA CONTACT:  Michelle Sagan  media@ndss.org  301-728-0447    LAWMAKERS INTRODUCE FEDERAL LEGISLATION TO PREVENT ORGAN TRANSPLANT DISCRIMINATION     Washington, D.C. (December 2, 2021) - The National Down Syndrome Society (NDSS), the leading human rights organization for all individuals with Down syndrome, applauds the introduction of the Senate companion to the Charlotte Woodward Organ Transplant Discrimination Prevention Act (H.R. 1235/ S.3301) to prohibit […]