LuMind IDSC Foundation, the National Down Syndrome Society, and Eli Lilly and Company Release Findings of Ongoing Study of Clinical Trial Participation by the Down Syndrome Community 

LuMind IDSC Foundation, the National Down Syndrome Society, and Eli Lilly and Company Release Findings of Ongoing Study of Clinical Trial Participation by the Down Syndrome Community March 9, 2021 (Burlington, MA): LuMind IDSC Foundation, the National Down Syndrome Society (NDSS), and pharmaceutical leader Eli Lilly and Company (Lilly) recently released findings of a study that identifies barriers to clinical trial participation by people with Down syndrome and Alzheimer’s disease. […]


National Organizations Join Forces to Publish New Covid-19 & Down Syndrome Resource

NATIONAL ORGANIZATIONS JOIN FORCES TO PUBLISH NEW COVID-19 & DOWN SYNDROME RESOURCE An Important Resource for Families with Updated CDC Guidelines PLYMOUTH, Minn., DENVER, BURLINGTON, Mass., ATLANTA, NEW YORK CITY, and ROCKPORT, Maine, March 2, 2021 /PRNewswire/ — Today, an important and timely COVID-19 and Down Syndrome Resource (“Resource”) was published by a consortium of national Down syndrome organizations: the Down Syndrome Medical Interest […]


Herrera Beutler, Porter Reintroduce Organ Transplant Bill

February 23, 2021 FOR IMMEDIATE RELEASE Contact: Craig Wheeler @ 202-225-3536   Herrera Beutler, Porter Reintroduce Organ Transplant Bill Legislation tackles disability-based discrimination of organ transplant recipients WASHINGTON, D.C. – U.S. Representatives Jaime Herrera Beutler (WA-03) and Katie Porter (CA-45) today reintroduced the Charlotte Woodward Organ Transplant Discrimination Prevention Act, which will prohibit using an […]


NDSS Response to the Use of the R-word by Rep. Marjorie Taylor Greene

New York, NY (January 29, 2021) – The National Down Syndrome Society (NDSS) denounces the use of outmoded and offensive terms to refer to individuals with Down syndrome. The R-word has no place in the public discourse or the halls of Congress. Individuals with Down syndrome or any other disability have the right to be treated with the same respect and dignity as any other member of society. It is long past time to […]


The National Down Syndrome Society and Voya Cares® release financial wellness guide to address the unique planning needs of the disability community

FOR IMMEDIATE RELEASE  NDSS Contact:  Michelle Sagan media@ndss.org 202-848-5409 Voya Contact: Jessica Speziale Jessica.Speziale@voya.com 646-284-3063   The National Down Syndrome Society and Voya Cares® release financial wellness guide to address the unique planning needs of the disability community    New York, NY (January 29, 2021)– Voya Financial, Inc. (NYSE: VOYA), announced today that the National […]


Lila’s Law – Lawmaker Introduces Legislation to Prevent Organ Transplant Discrimination

FOR IMMEDIATE RELEASE   NDSS MEDIA CONTACT: Michelle Sagan media@ndss.org 202-848-5409   LAWMAKER INTRODUCES LEGISLATION TO PREVENT ORGAN TRANSPLANT DISCRIMINATION   Little Rock, AR (January xx, 2021) – The National Down Syndrome Society (NDSS), the leading human rights organization for all individuals with Down syndrome, applauds the introduction of SB 155, known as Lila’s Law to uphold the rights of qualified organ transplant candidates who […]


Lawmakers Introduce Federal Legislation To Prevent Organ Transplant Discrimination

FOR IMMEDIATE RELEASE  NDSS MEDIA CONTACT: Michelle Sagan media@ndss.org 202-848-5409   Lawmakers Introduce Federal Legislation To Prevent Organ Transplant Discrimination   Washington, D.C. (December 17, 2020) – The National Down Syndrome Society (NDSS), the leading human rights organization for all individuals with Down syndrome, applauds the introduction of the Charlotte Woodward Organ Transplant Discrimination Prevention Act to uphold the rights of qualified organ transplant candidates who have a […]


An Open Letter to CEOs for National Disability Employment Awareness Month

(October 30, 2020) FROM THE CEO COMMISSION: To our fellow CEOs, in celebration of National Disability Employment Awareness Month:   Throughout the past 10 years, working-age people with disabilities have participated in the workforce at an average rate of 18.1%, as compared to an average rate of 64.6% for those without disabilities.1&2  The disparity is especially remarkable […]