How a bill becomes a law- Washington State Organ Transplant Discrimination Legislation

  How a bill becomes a law- Washington State Organ Transplant Discrimination Legislation   May 9, 2019   Passing legislation is a long game. In a democracy, rarely do things happen overnight, even for something as obvious as banning discrimination in organ transplantation because the recipient has a disability. In August 2018, at the request […]


Thank You and Let’s Go!

This has been a very bittersweet time for the NDSS Team. May 1 marked the beginning of a new chapter as Sara Hart Weir transitioned out of her role as President and CEO. First, Sara is my friend, a great colleague and has been an unbelievable advocate for NDSS for over a decade. We all […]


NDSS VP of Communications: Joshua Harlow

  NDSS is excited to announce that veteran communications and advocacy strategist Joshua Harlow will now be serving as Vice President for our communications department. Kandi Pickard, Interim President and CEO said the role was a natural fit for Joshua and NDSS. “As we look to strengthen our message and communications strategy, I felt it […]


2019 New York City Buddy Walk®

    The 25th Annual New York City Buddy Walk® will take place on Saturday, September 14, to honor and celebrate individuals with Down syndrome in our communities. This event is focused on raising awareness and funds for NDSS programs that benefit people with Down syndrome and their families.   Register for the 2019 New York […]


NFL Star Jamison Crowder Hosting Football Camp with National Down Syndrome Society

FOR IMMEDIATE RELEASE April 25, 2019   Media Contact: Michelle Sagan National Down Syndrome Society (301) 728-0447 msagan@ndss.org   NFL Star Jamison Crowder Hosting Football Camp with National Down Syndrome Society DURHAM, NC. – NFL star football player Jamison Crowder has teamed up with the National Down Syndrome Society (NDSS) to host the First Annual […]


2019 GiGi’s Playhouse NYC “I have a Voice” Gala!

  We are thrilled to announce that the National Down Syndrome Society’s President & CEO Sara Hart Weir will be honored at the 2019 GiGi’s Playhouse NYC “I Have a Voice” Gala on May 1 in NYC! We hope you will be able to join us at the event that celebrates achievements in the Down […]


Important Announcement from NDSS

To Our National Down Syndrome Society Family: It is with both deep gratitude and sadness that we announce that after seven years in the trenches, our National Down Syndrome Society’s (NDSS) President and C.E.O. Sara Hart Weir has decided to step down this year to pursue opportunities to continue her advocacy and service to our […]


2019 Marine Corps Marathon

Run for Down Syndrome and Add Gratitude to Your Miles! Apply to Race! Join #TeamNDSS for the 44th Annual Marine Corps Marathon! Space is Limited!! Race and Registration details: Date: October 27, 2019 Location: Washington, DC To be considered for the 44th Annual Marine Corps Marathon through #TeamNDSS, please complete the application form with your […]


2019 Disney Wine & Dine Half Marathon Weekend

Run for Down syndrome and add gratitude to your miles!   Apply to Race! Join #TeamNDSS, an official charity partner, for the Disney Wine & Dine Half Marathon Weekend! With your commitment to participate in the 2019 Disney Wine & Dine Half Marathon Weekend, you will be helping to support and share our mission of […]