National Down Syndrome Society Announces New Board of Directors Leadership and Members 

FOR IMMEDIATE RELEASE   NDSS Contact:   Michelle Sagan media@ndss.org 301-728-0447 National Down Syndrome Society Announces New Board of Directors Leadership and Members    New York, NY (Sept. 24, 2021) – The National Down Syndrome Society (NDSS), the leading human rights organization for all individuals with Down syndrome, is pleased to introduce their newly elected board chairwoman, […]

NDSS hosts 340 Mile Run from Los Angeles, CA to Las Vegas, NV

NEW YORK, NY (August 30, 2021) – The National Down Syndrome Society (NDSS), the leading human rights organization for all individuals with Down syndrome, is preparing to take on a new kind of running challenge this weekend. Run for 3.21 LALV is a 50+ hour relay that will cover 340 miles from Los Angeles to Las Vegas through the California desert. Beginning on Friday, […]

NDSS, LuMind IDSC and NTG CMS Response Letter

The National Down Syndrome Society (NDSS) is joined by LuMind IDSC and The National Task Group on Intellectual Disabilities and Dementia Practices (NTG) in submitting comments to federal Medicaid and Medicare regulators, asking them to give thought to the consequences for people with Down syndrome as this new class of Alzheimer’s disease drugs is considered […]

Coalition of employer, financial and disability groups endorses new legislation to promote ABLE accounts in the workplace

    FOR IMMEDIATE RELEASE   NDSS Contact: Michelle Sagan media@ndss.org 301-728-0447   COALITION OF EMPLOYER, FINANCIAL AND DISABILITY GROUPS ENDORSES NEW LEGISLATION TO PROMOTE ABLE ACCOUNTS IN THE WORKPLACE   Washington, D.C. (July 23, 2021) – Led by the National Down Syndrome Society (NDSS), a diverse coalition of organizations representing employers, financial companies and […]

ABLE Employment Flexibility Act Letter of Support

  July 23rd, 2021   The Honorable Thomas Suozzi 407 Cannon House Office Building Washington, DC 20515   The Honorable Brad Wenstrup 2419 Rayburn House Office Building Washington, DC 20515   Dear Representatives Suozzi and Wenstrup:   The above listed organizations are writing to support H.R. 4672, the ABLE Employment Flexibility Act. As you know, […]

Down Syndrome Self-Advocate’s Book Urged as a Must-Read for Members of Congress

FOR IMMEDIATE RELEASE NDSS Contact Michelle Sagan media@ndss.org 202-848-5409 Down Syndrome Self-Advocate’s Book Urged as a Must-Read for Members of Congress   Vienna, VA (April 14, 2021) – At a young age, David Egan used to watch C-SPAN and dream of making speeches like members of Congress. When he published his book, “More Alike Than […]

National Down Syndrome Society endorses the introduction of the Transformation to Competitive Integrated Employment Act  

FOR IMMEDIATE RELEASE    NDSS Contact:   Michelle Sagan    media@ndss.org  301-728-0447    National Down Syndrome Society endorses the introduction of the Transformation to Competitive Integrated Employment Act     New York, NY (April 9, 2021) – The National Down Syndrome Society (NDSS) endorses the introduction of the Transformation to Competitive Integrated Employment Act (H.R. 2373) by Congressman Bobby Scott (VA-03) and Congresswoman Cathy McMorris-Rodgers (WA-05) on April 5, 2021. As the leading human rights organization […]

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