Buddy Walk® on Washington Advocacy Conference

The 2018 NDSS Annual Buddy Walk® on Washington is an annual two-day advocacy conference that brings the Down syndrome community together to advocate for legislative priorities that directly impact the lives of people with Down syndrome and their families. During the first day of the conference, advocates receive training. They head to Capitol Hill on the second […]

First Annual Zac Stacy NDSS All-Star Clinic

We are inviting individuals with Down syndrome to participate in our First Annual Zac Stacy NDSS All-Star Clinic. Join NDSS and Zac Stacy, former Vanderbilt and NFL running back, along with other Vanderbilt athletes at the Vanderbilt Recreation Center on May 5th for football drills and games, lunch and a photo/autograph session. Become an All-Star […]

Flu Factsheet

The National Down Syndrome Society wants to make sure that you have the information you need in order to protect your health during this severe flu season. This resource will arm you with the facts you need to fight the flu! Download the Factsheet        

Kayla’s Korner

Kayla’s Korner is here! Are you ready? 🎙🤞🏼 Kayla’s Korner is a podcast where Kayla McKeon, Manager of Grassroots Advocacy at NDSS, interviews VIPs, Members of Congress, members of the NDSS Board of Directors, and fellow self-advocates on their perspectives on life, experiences, and careers. Tune in to Kayla’s Korner every Tuesday!  

NDSS Letter From Sara Hart Weir and Gordon Spoor

Letter from Sara and Gordon This year, NDSS’ number one priority was the ABLE to Work Act, which helps build upon the success of the Stephen Beck Jr., Achieving a Better Life Experience (ABLE) Act to incentivize employment by allowing ABLE beneficiaries to earn a federal tax credit to contribute toward their ABLE Accounts. We […]

2018 NDSS Caring with Congress

Public Event Our 14th Annual Caring with Congress event is on July 11th! Join Senators, Congressmen and other supporters on Capitol Hill in Washington, D.C. to raise money for the NDSS Research Innovation & Discovery Fund. The Fund supports research and clinical infrastructure needs for the Down syndrome scientific and research community. Join us for […]

2nd Annual Even Strength Golf Outing

Our golf outing is in support of our Even Strength Internship Program (Even Strength) in collaboration with Proskauer. We partner with professional sports organizations to bring exciting and high-profile internships to career-coached young adults with Down syndrome. As an internship program, Even Strength provides individuals with Down syndrome the opportunity to work on the game […]


Join #TeamNDSS at The 20th Annual FLYING PIG MARATHON in Cincinnati, Ohio. It’s the largest weekend party in town, and you can be part of it! There is a race for everyone, including kids races. If you race with us, we will send you a code for a special discount on the following races: Marathon, […]

Kayla Speaks at State of Art Conference

Kayla McKeon, Manager of Grassroots Advocacy, speaks at the State of Art Conference in Syracuse, New York. Kayla spoke about her job at NDSS and #DSWORKS. Watch the Video