Activities

The Congressional Task Force on Down Syndrome:

  • Holds informational events for Members of Congress and their staff to increase awareness about Down syndrome
  • Ensures Down syndrome is adequately addressed in all relevant legislation and regulations
  • Works with national and local Down syndrome groups to develop educational, medical and employment-related initiatives that support and expand opportunities for individuals with Down syndrome
  • Identifies and works to remove barriers in the law for people with intellectual disabilities
  • Strives to build the Congressional Task Force on Down Syndrome into a sustainable, dynamic political force and information clearinghouse by increasing membership and activities

 

Take Action

If your Representative and Senators are not members of the Congressional Task Force on Down Syndrome, please contact them and ask them to join. Members of Congress who want to join should contact Elle Ciapciak in Congresswoman Cathy McMorris Rodgers’ office and Kyle Christian in Senator Jerry Moran’s office. If your Representative and Senators are members of the Congressional Task Force on Down Syndrome, please thank them and consider thanking them on social media using the hashtag #DSTaskForce.

Members of Congress

Membership in the 115th Congress

The 115th Congress began on January 3, 2017, and invitations to join the Congressional Task Force on Down Syndrome have been distributed to Members of Congress by the Task Force Co-Chairs:

The following is a list of current members in the Congressional Task Force on Down Syndrome for the 115th Congress:

Co-Chairs:

The Task Force also has these members:

Representatives:

  • Mark Amodei (R-NV)
  • Brian Babin (R-TX)
  • Don Bacon (R-NE)
  • Diane Black (R-TN)
  • Dave Brat (R-VA)
  • Julia Brownley (D-CA)
  • Salud Carbajal (D-CA)
  • Tony Cárdenas (D-CA)
  • John Carney (D-DE)
  • Steve Chabot (R-OH)
  • Barbara Comstock (R-VA)
  • Gerald Connolly (D-VA)
  • Jim Cooper (D-TN)
  • Ryan Costello (R-PA)
  • John Delaney (D-MD)
  • Brian Fitzpatrick (R-PA)
  • Trent Franks (R-AZ)
  • Vicente Gonzalez (D-TX)
  • Bob Goodlatte (R-VA)
  • Josh Gottheimer (D-NJ)
  • Garret Graves (R-LA)
  • Jaime Herrera Beutler (R-WA)
  • Lynn Jenkins (R-KS)
  • John Katko (R-NY)
  • Joseph Kennedy lll (D-MA)
  • Peter King (R-NY)
  • Ted Lieu (D-CA)
  • David Loebsack (D-IA)
  • Zoe Lofgren (D-CA)
  • John Larson (D-CT)
  • Doug Lamborn (R-CO)
  • Blaine Luetkemeyer (R-MO)
  • Thomas MacArthur (R-NJ)
  • Sean Patrick Maloney (D-NY)
  • Kenny Marchant (R-TX)
  • Kevin McCarthy (R-CA)
  • James McGovern (D-MA)
  • Seth Moulton (D-MA)
  • Stephanie Murphy (D-FL)
  • Kristi Noem (R-SD)
  • Tom O’Halleran (D-AZ)
  • Mark Pocan (D-WI)
  • Aumua Amata Coleman Radewagen (R-American Samoa)
  • Jamie Raskin (D-MD)
  • Lucille Roybal-Allard (D-CA)
  • C.A. Dutch Ruppersberger (D-MD)
  • John Rutherford (R-FL)
  • Tim Ryan (D-OH)
  • Kurt Schrader (D-OR)
  • Adam Smith (D-WA)
  • Chris Smith (R-NJ)
  • Darren Soto (D-FL)
  • Steve Stivers (R-OH)
  • Glenn “GT” Thompson (R-PA)
  • David Valadao (R-CA)
  • Greg Walden (R-OR)
  • Randy Weber (R-TX)
  • Kevin Yoder (R-KS)
  • David Young (R-IA)

Senators:

  • Roy Blunt (R-MO)
  • Richard Burr (R-NC)
  • Christopher Coons (D-DE)
  • Tom Cotton (R-AR)
  • Amy Klobuchar (D-MN)
  • Pat Roberts (R-KS)

Membership in the 114th Congress

The following is a list of legislators who were members of the Congressional Task Force on Down Syndrome during the 114th Congress, which ended in December 2016:

Co-Chairs:

In the 114th Congress, the Task Force also had these members:

Representatives:

  • Brad Ashford (D-NE)
  • Brian Babin (R-TX)
  • Diane Black (R-TN)
  • Julia Brownley (D-CA)
  • Tony Cárdenas (D-CA)
  • John Carney (D-DE)
  • Steve Chabot (R-OH)
  • Barbara Comstock (R-VA)
  • John Delaney (D-MD)
  • Mike Fitzpatrick (R-PA)
  • Trent Franks (R-AZ)
  • Bob Goodlatte (R-VA)
  • Michael Honda (D-CA)
  • Lynn Jenkins (R-KS)
  • John Katko (R-NY)
  • Joseph Kennedy lll (D-MA)
  • Ted Lieu (D-CA)
  • Zoe Lofgren (D-CA)
  • Blaine Luetkemeyer (R-MO)
  • Sean Patrick Maloney (D-NY)
  • Kenny Marchant (R-TX)
  • Kevin McCarthy (R-CA)
  • James McGovern (D-MA)
  • Aumua Amata Coleman Radewagen (R-American Samoa)
  • Lucille Roybal-Allard (D-CA)
  • Adam Smith (D-WA)
  • Chris Smith (R-NJ)
  • Glenn “GT” Thompson (R-PA)
  • David Valadao (R-CA)
  • Randy Weber (R-TX)
  • Kevin Yoder (R-KS)

Senators:

  • John Boozman (R-AR)
  • Christopher Coons (D-DE)
  • Tom Cotton (R-AR)
  • Chuck Grassley (R-IA)
  • John Hoeven (R-ND)
  • Senator Joe Manchin III (D-WV)
  • Pat Roberts (R-KS)

For More Information

For more information, please contact NDSS at policy@ndss.org.