Stanley “Bud” Buckhout
Stanley “Bud” Buckhout is the Director of the InclusiveU program and Associate Director of the Taishoff Center. He has worked in education for over 20 years. He earned his Teaching Certificate, M.S. in Special Education and a C.A.S. from Le Moyne College. He has worked in exploring research and facilitation of groups to aid in the identification of student instructional needs at the collegiate, district and school level. He has implemented trainings at many educational levels to develop effective learning environments for students.
Dr. Capone attended college at Wesleyan University and worked as a research assistant at the Dana Farber Cancer Institute in Boston before obtaining his medical degree from the University of Connecticut in 1983. After a residency and fellowship in pediatrics at the Children’s Hospital Medical Center in Cincinnati, Dr Capone came to Baltimore in 1988 to pursue a fellowship in neurobiology research at Johns Hopkins. Dr. Capone currently serves as the director of Kennedy Krieger Institute’s Down Syndrome Clinic and Research Center (DSCRC) and is an attending physician on the institute’s comprehensive rehabilitation unit.
Dr. Capone will speak during the breakout session entitled: Common Medical Conditions in Adults with Down syndrome during our inaugural 2018 NDSS Adult Summit on Monday April 9, 2018 from 10:45am – 11:45am in Arlington, Virginia. This session will address the medical conditions that should be watched out for, addressed and treated through the life span of adults with Down syndrome.
Phillip Clark, Founder and President of ENABLE Special Needs Planning, LLC
Phillip Clark is the proud older brother of a sister, Sarah, who has Down syndrome. He feels incredibly blessed to have Sarah in his life, as she has impacted him in incredible ways.
When Sarah was born 29 years ago, Clark’s parents did not receive “Congratulations” from their doctors. Instead, they heard, “I’m sorry, your daughter has Down syndrome” followed by a list of abilities that his sister would NOT develop. Despite the doctors’ limited expectations, Clark’s parents believed Sarah could live a great life so they encouraged her in every way. Today, Sarah works in a second-grade classroom where one of her job duties is tutoring students in reading—an ability the doctors thought she would never develop herself!
Clark founded ENABLE Special Needs Planning, LLC, to help other families with children with special needs overcome negative and limited expectations for their children’s abilities and potential through comprehensive special needs planning.
Clark is the co-creator of the ENABLE Special Needs Planning SystemTM, a first-of-its-kind interactive, online planning platform that allows families to comprehensively plan for their child’s GREAT life—a life of purpose and impact—from the ease and comfort of their own homes. The System includes Vision, Life, Resource, Financial, and Legal Planning tools.
Clark believes that EVERYONE has the ability to #BeImpactful.
Patty offers educational programs, facilitation and professional development services related to creative planning, strategic visioning and individual and family-directed service designs. Her work has been dedicated to advancing the standards of excellence in person-centered planning in support of the development of highly personalized support arrangements that are based on the unique interests and needs of individuals and families. Patty has extensive background in process facilitation and natural support strategies, has authored several publications on person-centered planning, and provides training at both the state and national levels.
Paul R. Dolan recently retired after 35 years as an executive at ABC News and prior to that served as Executive Director of the One to One Foundation which was set up to provide community housing in New York, New Jersey and Connecticut as an alternative to state institutions. One to One also funded the Willowbrook landmark litigation to protect the human rights of people with disabilities. He is a trustee of the Robert Sterling Clark Foundation and with his wife JoAnn is parent of three sons, Peter, Thomas and Jamie. Jamie works as an Information and Referral Assistant at NDSS.
E. Adel Herge, OTD, OTR/L, FAOTA is an occupational therapist who specializes in providing services to individuals with intellectual disabilities in family homes, residential and day programs. Dr. Herge is Associate Professor and Director of the BSMS OT Program at Thomas Jefferson University in Philadelphia. She is also an interventionist for Jefferson Elder Care, a dementia service that uses evidence based interventions to improve the daily lives of persons with dementia and their caregivers. Dr. Herge has a special interest and expertise in supporting caregivers in developing their skills in helping persons with ID and dementia lead full meaningful lives. She has co-developed and implemented a variety of innovative training programs with caregivers and is currently modifying an evidence based program for family caregivers for use with staff in group homes. She is a member of the National Task Group (NTG) on Intellectual Disabilities and Dementia Practices Steering Committee and the Evaluation Committee as well as co-author of the NTG Education and Training Curriculum on Dementia and I/DD.
Jerry retired as General Agent of The Washington Group of MassMutual in 2004. The same year he formed The
Washington Group Special Care Planning Team, a group of financial planners who specialize in planning for
families with individuals with special needs. Additionally, in 2014, he started Caring Consulting Group (CCG).
CCG offers consulting in education and technical advisory on special needs planning for Non-Profit
Organizations, Businesses, Corporations and Educational Institutions with the mission of understanding and
enhancing the quality of life issues of caregivers and individuals with disabilities. Jerry is also an expert witness
on financial and insurance matters for families with special needs situations.
A pioneer and advocate for the special needs community, Jerry has spoken across the country at various
conferences, forums, and panels dealing with issues and planning for the special needs community (World
Congress on Disabilities, Academy of Special Needs Planners Conference, National Down Syndrome Congress,
etc.). He has been a guest on numerous radio talk programs (Hugh Hewitt Show, Sirius XM’s Dr Radio Show,
Jerry has been active in the financial services industry for over 40 years. Jerry was one of the first people in the
country to receive the Chartered Special Needs Consultant (ChSNC) designation from The American College
(the premier designation for financial professionals working in special needs planning). Jerry earned his
Chartered Life Underwriter (CLU), and Chartered Financial Consultant (ChFC) designations also from The
American College. Jerry is also certified in Long Term Care (CLTC). He holds a Life/Health Insurance license
and Series 6, 7, 63, 22, 24 & 65. Jerry graduated from Virginia Tech in Blacksburg, Virginia.
He joined Connecticut Mutual Insurance Company as an Agent in 1973. He was appointed General Agent in
1986. In March 1996, Connecticut Mutual merged into the MassMutual Life Insurance Company. He continued
as General Agent in Washington following the merge of Connecticut Mutual with MassMutual. His agency was
one of the largest and earned the highest honors for leading in production and brokerage development from
Jerry is a member of the Virginia Tech Foundation Board, Virginia Tech National Campaign Chairman for the
College of Liberal Arts and Human Sciences, and Dean’s Roundtable Executive Committee for the College of
Science. He is a life member of Alpha Phi Omega Service Fraternity, charter member and Past President of the
Fair Oaks Rotary Club, and was an Elder with Faith Presbyterian Church of Alexandria, Virginia. In 2014 Jerry
was awarded the Eleanor Sue Finkelstein Award for Special Needs from the Jewish Community Center of
Northern Virginia for his work in special needs. Jerry is also very active with many local special needs nonprofits
such as ArtStream and The Jewish Community Center of Northern Virginia’s Special Needs Department.
Jerry’s activism in the Special Needs community is also inspired by several Special Needs individuals in his own
Dr. Janicki is Research Associate Professor at DHD, UIC. Formerly, he was Director for Aging and Special Populations for the New York State Office of Persons with Intellectual and Developmental Disabilities and is the author of numerous journal articles and textbooks on I/DD. Dr. Janicki originated and chaired the IASSIDD special interest group on aging for a number of years, was a member of Executive Committee for IASSIDD, and was the founding editor of the IASSIDD’s Journal on Policy and Practice in Intellectual Disabilities. He was instrumental in organizing an international research and policy meeting on intellectual disability and aging that was held at the World Health Organization in Geneva, Switzerland. Currently he is the co-chair of the National Task Group on Intellectual Disability and Dementia Practices (the “NTG”), and manages a longitudinal study of dementia capable group homes for adults with intellectual disability.
Margareta Lunde-Martinson has many years of experience working in health and social care. Including 10 years as a nurse providing support, supervision and training for care workers within municipally funded care homes.
Margareta became in 2011, ”the nurse of pain” in Sweden because of her work with pain and intellectual disabilities.
Today, Margareta work in her own company Smartbojen Utbildning AB, and lectures in various subjects at a location in Scandinavia. Her focus is to provide tools that can help to increase the standard of everyday life for people with intellectual disabilities.
Harold “Hackie” Reitman, M.D.
Harold “Hackie” Reitman, M.D. is the founder and president of the 501(C)3 nonprofit Different Brains Inc., the only place where intellectual and developmental differences (like autism, dyslexia, ADHD, and down syndrome), mental health challenges (such as bipolar or anxiety) and neurological issues (such as Alzheimer’s, Parkinson’s, strokes, and Traumatic Brain Injuries) all converge under one positive roof: DifferentBrains.org. The organization’s neurodiverse team produces videos, blogs, podcasts and more – all accessible free of charge – to support those of us with different brains, from autism to Alzheimer’s and all brains in between!
Dr. Reitman is a retired orthopedic surgeon, a former professional heavyweight boxer (who donated every purse from his 26 professional matches to children’s charities), an independent filmmaker, and the past chairman and present board member of the Boys and Girls Clubs of Broward County. He is also the author of the book “Aspertools: A Practical Guide for Understanding and Embracing Asperger’s, Autism Spectrum Disorders and Neurodiversity” (released by HCI Books, publishers of the “Chicken Soup for the Soul” series), and the writer and producer of the full-length independent film, “The Square Root of 2” starring Darby Stanchfield of ABC’s hit show “Scandal.” The movie was inspired by the experiences of his own daughter Rebecca, and her perseverance over adversity. In 2016 Hackie was given the award for Significant Contributions in Development from AASCEND (Autism Asperger Spectrum Coalition for Education Networking and Development).
Separate from Different Brains, Hackie is the founder and CEO of PCE Media, a media production company focusing on reality based content. He recently co-executive produced the documentary “Foreman”, the definitive feature documentary on legendary boxer and pitchman George Foreman.
Sam has worked with the Taishoff Center at Syracuse University since 2014, holding multiple positions. Currently, Sam is the Student Support Coordinator, advising InclusiveU students on courses, campus life, and independent living. Sam graduated in 2013 from SUNY Fredonia with a dual degree in History and Social Studies Adolescent Education. Prior to his roles with the Taishoff Center, he worked as a campus mentor, supporting individual InclusiveU students as they navigated college life.
Dr. William Sears, M.D.
William Sears, M.D., has been advising parents on how to raise healthier families for over 40 years. He received his medical training at Harvard Medical School’s Children’s Hospital in Boston and The Hospital for Sick Children in Toronto, the world’s largest children’s hospital, where he was associate ward chief of the newborn intensive care unit before serving as the chief of pediatrics at Toronto Western Hospital, a teaching hospital of the University of Toronto. He has served as a professor of pediatrics at the University of Toronto, University of South Carolina, University of Southern California School of Medicine, and University of California: Irvine. A father of 8 children, he and his wife Martha have written more than 45 books and countless articles on parenting, childcare, nutrition, and healthy aging. He is the co-founder of the Dr. Sears Wellness Institute for training health coaches, and he runs the health and parenting website AskDrSears.com. Dr. Sears and his contribution to family health were featured on the cover of TIME Magazine in May 2012. He is noted for his science-made-simple-and-fun approach to family health.
Consuelo Senior, LMSW
Consuelo Senior has 20+ years experience working in the field of intellectual and developmental disabilities and mental health. Ms. Senior brings a myriad of experience from a variety of areas within the field; teacher, staff trainer, Curriculum Developer, Medicaid Service Coordinator, administrator, direct support professional (residential, day program, employment), psychotherapist and consultant.
Ms. Senior’s love for the field began with her beloved uncle who had Down syndrome. Ms. Senior currently is an expert staff trainer and develops curriculum for a wide range of populations within the disability field (Autism, Complex Needs, Aging, Multiple Disabilities, Dementia/Alzheimer, Social-Sexual Issues, Vocational, Dual Diagnosis-Mental Illness and Intellectual and Developmental Disabilities and Profound Disabilities). She currently works at YAI & at the Center for Specialty Therapy Clinic
Ms. Senior has been providing sex education for people with disabilities, families and support staff for 16 years. She has been practicing (group and individual) psychotherapy for 11 years. Ms. Senior is also an Adjunct Lecturer at City College of New York
(CCNY) and Adelphi University. Ms. Senior has presented at numerous conferences, symposiums, radio programs and panel discussions as an expert mental health clinician. Ms. Senior is an agency representative to the U.N’s Economic and Social Council and is published in The Autism News.
Rob Snow is a nationally recognized motivational speaker who has performed throughout the country and internationally. His show, Minimize The Mountain, combines his background in stand-up comedy with several personal experiences to provide an entertaining, humorous, and inspiring story for all audiences. Through this show, you will learn how to manage through life’s biggest “mountains”, and perhaps come out even stronger on the other side. Rob is also the founder of Stand Up For Downs, a non-profit dedicated to enhancing the lives of those with Down syndrome through humor.
Kathleen M. Srsic-Stoehr, MSN, MS, RN, NEA-BC
Kathleen Srsic-Stoehr has been a family and caregiver advocate member of the National Task Group on Intellectual Disabilities and Dementia Practices since 2011. Kathleen’s advocacy activities began as a result of her own experiences in caregiving for her brother, Carl, who was born with Down’s syndrome and died at the age of 50 years from complications of Alzheimer’s disease. She has provided support and guidance to other family caregivers and given presentations at various organization conferences and community gatherings in the Washington, DC National Capital Area. She was a contributor author to two National Down Syndrome Society publications: Aging and Down Syndrome: A Health and Well-Being Guidebook and Alzheimer’s Disease and Down Syndrome: A Practical Guidebook for Caregivers. Kathleen’s professional nursing career spans over 40 years in clinical, administration, research, and education positions with a particular focus on quality and patient safety.