An Overview of Down syndrome

What is Down syndrome? What causes Down syndrome? How is Down syndrome diagnosed? We cover your questions and more in this overview!

NDSS Brochure

El Folleto de NDSS 

NDSS One Pager

Aging and Down Syndrome: A Health & Well-Being Guidebook

A resource for families, professionals, direct caregivers, or anyone concerned with the general welfare of an adult with Down syndrome with a specific focus on aging and health-related matters in an individual with Down syndrome such as:

  • Common medical conditions
  • Alzheimer’s and Down syndrome
  • Mental health

Aging and Down Syndrome

Envejecimiento y Síndrome de Down

A Promising Future Together: A Guide for New and Expectant Parents

A comprehensive overview of Down syndrome written especially for parents, this booklet includes sections on healthy starts, early intervention therapies, how to find support and care for your family and what the future holds for your child.

Additionally, this has been translated into three additional languages: Russian, Simplified Chinese and Vietnamese.

*Please email Colleen Hatcher at if you are looking to purchase bulk orders.

A Promising Future Together

Un Futuro Prometedor Juntos

Additional Translations

Alzheimer’s Disease & Down Syndrome: A Practical Guidebook for Caregivers

The National Down Syndrome Society, in partnership with The National Task Group on Intellectual Disabilities and Dementia Practices and the Alzheimer’s Association, is releasing a guidebook specifically for those caring for an individual with Down syndrome diagnosed with Alzheimer’s disease. We want to show these caregivers that NDSS is with them every step of the way and provide resources about Alzheimer’s disease gathered into one collective guide.

Download the Caregiver Guide

Download the guide in Spanish

Prenatal Testing & Information

NDSS, Global Down Syndrome Foundation and National Down Syndrome Congress have collaborated to co-publish an important resource for expectant and new parents.

Download the English Pamphlet

Download the Spanish Pamphlet

Inclusive Education Guidelines

Down Syndrome: Guidelines for Inclusive Education is the first document of its kind in the United States. The document addresses the education settings that support students with Down syndrome, covering the period from early intervention and primary education through secondary and through higher education, with the primary focus being K-12 students.


NDSS Coloring Book

Eleven artists with Down syndrome from across the country share what they are dreaming about, everything from NYC to pizza, flowers to cake, in this EXCLUSIVE coloring book!

today and share your pictures with us! A special thank you to the French family and all of the artists for sharing their work.