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Sara’s M.O. is that if you aren’t at the table, you’re on the menu, and as the President & CEO, she makes it a priority to bring people with Down syndrome to the table.
To read Sara’s full bio, click here.
Fun Fact: My political party = Down syndrome
Sara Hart Weir, MS
President & CEO
Kandi Pickard is the Chief of Staff at NDSS, where she manages 17 professional staff members on a day-to-day basis. Working in close coordination with President & CEO of NDSS, Kandi oversees the success of each department in the organization and is a visionary when it comes to the long-term goals and achievements of both NDSS and the Down syndrome community.
Chief of Staff
Ashley Helsing is the Director of Government Relations. She who works with Members of Congress and their staff, federal agencies and state and local leaders to help pass legislation that is beneficial to the Down syndrome community.
While spending time in Poland, Ashley accidentally ate cow tongue soup. She does NOT recommend it.
Director of Government Relations
Michelle Ray is the Director of National Inclusive Health & Sports Program, overseeing the National Buddy Walk Program, Athlete Ambassador Program, Charity Racing Teams and Our Healthy Community.
Michelle is passionate about health and fitness, and combines her passion and her advocacy experience in the disability community in making health, an important human right, a priority for individuals with Down syndrome and their families.
Director of National Inclusive Health and Sports Program
Joshua Harlow serves as the Senior Communications Advisor with NDSS working alongside the leadership team and all departments to help compose, refine and ultimately craft compelling messages to tell the stories of the thousands of advocates, families and supporters of NDSS.
Joshua is first in the state of Missouri in the “Hit By Pitch” category.
Senior Communications Advisor
Joshua B. Hill is the Executive Assistant to the President and CEO, Sara Weir. Josh coordinates with all departments and staff in order to ensure the day-to-day success of NDSS as it seeks to be the leading human rights organization for all individuals with Down syndrome.
Josh is often very busy and, although he tries his very best, never finishes anythi
Executive Assistant to the President
Colleen Hatcher is the Community Outreach and Engagement Mangager with the National Down Syndrome Society.
Colleen is an ice cream fanatic! She has stood in line for almost 2 hours waiting for ice cream.
Community Outreach and Engagement Manager
Melissa Robertson is the Office Manager and oversees Finance and Development tasks at the National Down Syndrome Society. She holds a media degree from Webster University in St. Louis, Missouri.
Melissa had performed in a Balinese percussion orchestra for several years.
Kayla McKeon is the Manager of Grassroots Advocacy with the National Down Syndrome Society. She educates and inspires others who are Differently Abled.
Kayla enjoys hot air balloon rides, but really loves riding with her friend on his Harley!
Manager of Grassroots Advocacy
Nicole Patton is the Manager of Grassroots Advocacy who works and assists our NDSS DS-Ambassadors® in their advocacy efforts on the federal, state and local level.
Nicole has flown a helicopter.
Grassroots Advocacy Manager
Khadijah Farmer is the Community Outreach Associate who manages the structure of the #DSWORKS program. Through training and problem solving, Khadijah facilitates the development of longstanding and mutually beneficial relationships between employers and employees living with Down syndrome.
Khadijah is a die-hard Marvel fan.
Community Outreach Associate
Jessica Kuss is the Athlete Ambassador Program Associate managing the Athlete Ambassador Team, Charity Racing, and Racing for 3.21 on World Down Syndrome Day. She ensures there are plenty of opportunities and avenues to stay fit and healthy.
Jessica always disliked running and preferred other modes of exercise. However, she has run multiple races, including three half marathons.
Athlete Ambassador Program Associate
Michelle Sagan is the Buddy Walk® Program Associate who works with Buddy Walk® organizers to help kick start, maintain and grow Walks across the country. She also helps plan the annual NYC Buddy Walk® and Buddy Walk® Conference.
Michelle was born in Colombia, South America, and is fluent in Spanish!
Buddy Walk® Program Associate
Rachel Grimm is the Special Events and Conference Coordinator who works with members of each department to plan and execute special events throughout the year.
Rachel likes to challenge herself every year to try something new! Rachel has scaled down a 17-story building to benefit charity and has also been skydiving – jumping out of a plane from 14,000 feet!
Special Events and Conference Coordinator
Emily Kaczmarczyk is our #DSWORKS® Outreach Coordinator and is responsible for growing our #DSWORKS® company database. In addition to outreach, she also works as a support role for all #DSWORKS® efforts.
Emily is the daughter of Cuban immigrants and first-generation American.
#DSWORKS® Outreach Coordinator
Caleb Herr is a Digital Media Technical Specialist who works with Buddy Walk® organizers and NDSS staff members to provide technical support and assistance on a host of issues.
Caleb has a twin brother who also works in the field of computers.
Digital Media Technical Specialist
Jamie Dolan is an Assistant Information and Referral Specialist preparing information kits about the needs and abilities of people with Down syndrome. Jamie has also had the opportunity to represent NDSS at the United Nations for the 2016 World Down Syndrome Day.
Information & Referral Assistant
Adrian Forsythe Korzeniewicz is an Advocacy Program Assistant for NDSS. Adrian works within the office and on Capitol Hill. Adrian is also a liaison between the Self Advocate Advisory Board and the NDSS staff.
Advocacy Programs Assistant
Email Sara Jo
Sara Jo Soldovieri is the Manager of Inclusive Education Policy and Programming who works around the country on issues related to inclusive education.
While in college, Sara Jo spent her summers working at a camp for the deaf and knows how to sign.
Sara Jo Soldovieri
Manager of Inclusive Health Policy & Programming
Maeve O’Connor is the Development Manager at NDSS. She provides research and development the to staff. She strongly believes that excellent research and donor stewardship positively influence the growth of all organizations.
Maeve grew up in Ireland, on the scenic “Ring of Kerry,” but never spotted any leprechauns while living there.
Meet an Athlete Ambassador
Andrew Harris is an avid runner and climber, enjoys movies, music, animals, and anything outdoors. He and his brother-in-law, Max Hammer, along with Andrew’s sister Amy, reached the Summit of the Grand Teton in August 2017; making Andrew the first person with Down syndrome to do so! Andrew, Max, and Amy believe there are no limits to what Andrew can accomplish and with the opportunity, he can do anything he puts his mind to.
— Andrew (Bob)