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Down Syndrome Clinics and Health Care Providers
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Down Syndrome Clinics and Health Care Providers

For optimal health care, families may locate a developmental pediatrician, a specialist knowledgeable about Down syndrome or a Down syndrome clinic. These specialists can work with the primary care physician. Local parent groups are an excellent resource for learning of health care professionals who have experience with Down syndrome.

However, it is not always necessary or possible to find an expert on Down syndrome. The most important thing is that the doctor is willing to learn about the condition and collaborate with the family and individual with Down syndrome.


Database

This database of clinical providers with specialty services available for patients with Down syndrome was created by NDSS in partnership with its Clinical Advisory Board. All information included in this database was provided by the institutions themselves through a survey conducted by NDSS.

This database was created as an informational tool, not a referral, rating or medical service.

If you represent a clinic and do not see your institution listed here, please call 1-800-221-4602 or email This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

 

CALIFORNIA

 

Name: Child Neurology Clinic

Affiliation: University of California, San Francisco

Address: 400 Parnassus Blvd, San Francisco, CA 94143

Contact: 415 353-3682 This e-mail address is being protected from spambots. You need JavaScript enabled to view it www.ucsf.health.org/childrens Terry Hutchison, M.D.

Ages Served: pediatric

Geographic Area Served: northern CA

Taking New Patients: yes

Focus of Clinic: specialty medical care

Services: child neurology

Days/Hours: 8:30-5 M-F

 

Name: Doctors' Research

Affiliation: Down-Syndrome Epilepsy Foundation

Address: 41248 E. Grand, #A, Arroyo Grande, CA 93420

Contact: 805-489-7185 R Thiel, Ph.D.

Ages Served: pediatric and adult

Geographic Area Served: CA

Taking New Patients: yes

Focus of Clinic: specialty nutritional care, research

Services: nutrition, diet assessments

Days/Hours: 9:00-5:00 M-F

 

COLORADO

Name: Denver Adult Down Syndrome Clinic

Affiliation: Metro Community Providers Network

Address: 700 Potomac Street, Suite A

               Aurora, CO 80011

Contact: (303) 360-3877, This e-mail address is being protected from spambots. You need JavaScript enabled to view it , www.denverdsclinic.org

Ages Served: 14 and up

Geographic Area Served: western US

Taking New Patients: yes

Focus of Clinic: evaluation

Services: The Denver Adult Down Syndrome Clinic is a referral clinic which provides a complete medical examination and psychosocial evaluation for adolescents and adults with Down syndrome beginning at age 14.

Days/Hours: 2 half days a month

 

 

CONNECTICUIT

 

Name: Down Syndrome Adult Assessment Program

Affiliation: Hospital of Saint Raphael

Address: 1450 Chapel Street, New Haven, CT 65110

Contact: Gerard Kerins, 203 789-3536, 203 789-3275

Ages Served: 18 and older

Geographic Area Served: CT

Taking New Patients: yes

Focus of Clinic: Evaluation

Services: comprehensive medical and functional assessments

Days/Hours: 4 Tuesday of each month 9-12

 

Name: Division of Human Genetics

Affiliation: University Connecticut Health Center

Address: 65 Kana St., West Hartford, CT 06119

Contact: 860 523-6470 Robert M. Greenstein, MD

Ages Served: 80% under 18 and 20% over

Geographic Area Served: upper half of CT (70%) and lower half of Ct (30%)

Taking New Patients: yes

Focus of Clinic: specialty medical services, evaluation, mental health services, and education

Services: medical (developmental)

Days/Hours: Monday- Friday

 

DELAWARE

 
Name: Down Syndrome Clinic at the Alfred I. duPont Hospital for Children

Affiliation: Alfred I. duPont Hospital for Children - Medical Genetics

Address: 1600 Rockland Road Wilmington, DE  19803

Contact: Nadine Shavack, 302-651-5916

Ages Served: Newborn to age 21

Geographic Area Served: Delaware, Pennsylvania, New Jersey, Maryland

Taking New Patients: Yes

Focus of Clinic: To provide a coordinate, interdisciplinary approach, which addresses the medical, social, and development needs of children with Down Syndrome and their families
Services: Present at clinic are genetics, physical therapy, speech therapy, and an outreach coordinator from the local Down Syndrome chapter. Appropriate referrals are made to ENT, dental, behavioral health, audiology, ophthalmology, endocrinology, cardiology, developmental medicine, weight management, therapeutic services and gastroenterology.
Days/Hours: Second and fourth Tuesday afternoons of every month. 

 

FLORIDA

 

Name: Mailman Center for Child Development

Affiliation: UM Hospital, JM Hospital

Address: 1601 NW 12 Ave Miami FL 33136

Contact: 305 243-6006 Rosa Rivera

Ages Served: Pediatric, 0 to 21 and adults

Geographic Area Served: Miami, Homestead, Broward

Taking New Patients: yes

Focus of Clinic: specialty medical care

Services: medical, genetic and consultation with other specialist (last word not clear on form)

Days/Hours: Mondays 9am +pm

 

Name: Down Syndrome Center at Hope Haven

Affiliation: Hope Haven Children's Clinic and Family Center

Address: 4600 Beach Blvd, Jacksonville FL, 32207

Contact: 904 346-5100 www.hope-haven.org Laura Watts, M.Ed, program director

Ages Served: pre-natal-21 years

Geographic Area Served: worldwide

Taking New Patients: yes

Focus of Clinic: evaluation, therapeutic services, mental health services, education, behavior

Services: team evaluations - OT, PT, ST, Education & Behavioral/Medical all strength-based with focus on educational potential ongoing therapies & tutoring for local clients

Days/Hours: M-F 8-5

 

GEORGIA

 

Name: Emory University Down Syndrome Clinic

Affiliation: Emory University Department of Human Genetics

Address: 2165 No. Decatur Rd, Decatur, GA 30033

Contact: 404 778-8484 www.genetics.emory.edu  Pat Olney, MS

Ages Served: Pediatric

Geographic Area Served: Georgia, southeast region

Taking New Patients: yes

Focus of Clinic: specialty medical care

Services: comprehensive developmental screening and physical examination by our medical director, a developmental pediatrician; health care guidelines, referrals to specialists and genetic counseling with a board certified genetic counselor, provide community resources/ educational recommendations.

Days/Hours: Wednesdays and Thursdays

 

ILLINOIS

 

Name:  Adult Down Syndrome Center

Affiliation: Lutheran General Hospital

Address: 1999 Dempster St., Park Ridge, IL, 60068

Contact: 847-318-2303

 Ages Served: 12 and up

Geographic Area Served: Illinois

Taking New Patients: yes

Focus of Clinic: primary and specialty care

Services: medical and psychosocial services

Days/Hours: Monday-Friday 9-5 and Wednesday evenings

 

Name: Section of Developmental and Behavioral Pediatrics

Affiliation: University of Chicago

Address: 950 East 61st Street SSC Suite 207 Chicago, IL 60637

Contact: 773-702-3095 This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Ages Served: birth to 21

Geographic Area Served: no limit, generally "Chicagoland"

Taking New Patients: yes

Focus of Clinic: specialty medical care

Services: MD and case coordination

Days/Hours: various hours, no weekends

IOWA

 

Name: Healy Clinic DS Services

Affiliation: Center for Disabilities and Development, University of Iowa Children's Hospital

Address: 100 Hawkins Dr, Iowa City, IA 52242

Contact: 319 353-6900 www.uihealthcare.com/cdd Dianne McBrien, MD Clinical Assoc Professor, Pediatrics

Ages Served: Pediatric and adult

Geographic Area Served: Iowa and surrounding states

Taking New Patients: yes

Focus of Clinic: primary medical care, specialty medical care, evaluation. Therapeutic services, mental health services, education, behavior

Services: comprehensive health care and services through a combination of outpatient, in patient and community based services. Services include OT, PT, education, social work, audiology, speech language, psychology, nutrition and medical

Days/Hours: Monday-Friday 8am to 5pm

 

INDIANA

 

Name: Anne Whitehill DS Clinic

Affiliation: Riley Children's Hospital

Address: Riley Hospital 702 Barnhill Drive, Room 1601, Indianapolis, IN 46202-5225

Contact: 317 274-4820 Charlene Davis, RN, CPNP

Ages Served: birth-19

Geographic Area Served: Indiana, Ohio, Michigan, Illinois

Taking New Patients: yes

Focus of Clinic: specialty medical care, evaluation, therapeutic services, mental health services, education, behavior

Services: seen by a board certified developmental pediatrician, nurse practitioner, speech therapist, nutritionist, social worker, parent liaison

Days/Hours: M-F 8-5

 

Name: St. Vincent Children's Hospital – Down Syndrome Clinic

Affiliation: St. Vincent Hospital - Medical Genetics

Address: 8402 Harcourt Road, Suite 300, Indianapolis, IN 46260

Contact: 317 338-5288

Ages Served:

Geographic Area Served: statewide

Taking New Patients: yes

Focus of Clinic: specialty medical care, evaluation, therapeutic services, behavior

Services: ENT, cardiology, PT, OT, speech, nutrition, genetics, endocrinology

Days/Hours: M-F 8am-5pm

 

KANSAS

 

Name: Adults with Down Syndrome Specialty Clinic

Affiliation: Department of Family Medicine and the University of Kansas Medical Center

Address: KUMC 3901 Rainbow Blvd., Kansas City, KS 66160

Contact: 913 588-1915 Moya Peterson, PhD, ARNP

Ages Served: adult

Geographic Area Served: Midwest

Taking New Patients: yes

Focus of Clinic: primary medical care, specialty medical care, evaluation, therapeutic services, mental health services, education, behavior

Services: dietary/social service professionals & nurse practitioner will see each patient at each visit; other services on referral basis; in negotiation to have OT in clinic for evaluation; will provide primary care or consultation services as family desires

Days/Hours: starting with 1/2 day of clinic/month, will expand as needs arise

 

LOUISIANA

 

Name: Children’s Hospital of New Orleans Down Syndrome Clinic

Affiliation: Children’s Hospital of New Orleans

Address: 200 Henry Clay, New Orleans, LA 70118

Contact: 504 896-9254 chnola.org Dr. Robin McGoey, coordinator

Ages Served: Pediatric through Adult

Geographic Area Served: South Central US/ LA

Taking New Patients: yes

Focus of Clinic: specialty medical care, evaluation, education, medical genetics

Services: genetic counseling, speech therapy, physical therapy, occupational therapy, ophthalmology, aduitology

Days/Hours: second Monday of every month at 9 am

 

MARYLAND

 

Name: Behavioral Development Clinic and NICU follow up clinic

Affiliation: University of Maryland

Address: 737 W. Lombard Street, Suite 215, Baltimore, MD 21201

Contact: 410 706-6538 http://www.umm.edu/pediatrics/peds-development.htm

Ages Served: 3 to 21

Geographic Area Served: Maryland

Taking New Patients: yes

Focus of Clinic: evaluation, behavior

Services: Consultation

Days/Hours: 8 to 5 pm

 

Name: Kennedy Krieger Institute Down Syndrome Clinic

Affiliation: Johns Hopkins Medical Institutions

Address: 707 N Broadway, Baltimore Maryland 21205

Appointment Contact: 443-923-9400 or 1-888-554-2080

Ages Served: birth to 35 years

Geographic Area Served: Mid-Atlantic

Taking New Patients: Yes

Focus of Clinic: Comprehensive Evaluations & Follow-up at all ages: Medical, Developmental, Behavioral and Mental Health

Services: Medical specialties (Pediatric Gastrointestinal, Orthopedics, Neurology & Psychiatry; Access to Johns Hopkins specialists); Multidisciplinary programs (Feeding Clinic, Behavior Clinic); Audiology, Physical therapy, Occupational therapy, Speech & Language, Education, Assistive Technology, Neuropsychology, Behavioral Psychology, Individual & Group Counseling

Days/Hours: M-F 8a-5p

 

 

 

MASSACHUSETTS 

 

Name: Down Syndrome Clinic for Adults and Adolescents

Affiliation: Massachusetts General Hospital

Address: Simches Research Building, CPZN 2222, 185 Cambridge Street, Boston, MA 02114

Contact: 617-726-1561

Ages Served: 12 to Adult

Geographic Area Served: Massachusetts greater New England

Taking New Patients: yes

Focus of Clinic: specialty medical care, evaluation, theraputic services

Services: initial evaluation, with referrals to specialists in physical therapy, occupational therapy, speech, nutrition, ophthalmology, audiology, GYN, cardiology

Days/Hours: Adolescents 3rd Wednesday of each month, 1-5pm Adults 3rd Wednesdays and 1st and 3rd Fridays 9-12pm

 

Name: Down Syndrome Program

Affiliation: Children's Hospital Boston

Address: 300 Longwood Ave., Boston, MA 02115

Contact: 857-218-4329

Ages Served: 0-3

Geographic Area Served: Massachusetts and beyond

Taking New Patients: yes

Focus of Clinic: specialty medical care

Services:  audiology, psychology, physical therapy, nutrition, dentistry, speech-language pathology, and referrals to all other medical specialities

Days/Hours: 8:30 a.m.-12:00 p.m. Thursdays

 

MICHIGAN

 

Name: Euro-Peds National Center for Intensive PT

Affiliation: North Oakland Medical Centers (hospital)

Address: 461 W. Huron St., Suite 406, Pontiac MI 48341

Contact: 888 875-6662 www.europeds.org Chris Millis/Pam Montroy

Ages Served:

Geographic Area Served: international base of patients

Taking New Patients: yes (6-month to 1-year waiting list for new patients & an application must be submitted/approved by Medical Director prior to treatment)

Focus of Clinic: specialty medical care, therapeutic services, intensive PT

Services: intensive pediatric PT, using European-Inspired concepts and tools, such as Suit Therapy & Univ. Exercise Unit

Days/Hours: M-F 8am-6p

MINNESOTA 

Name: Down Syndrome Clinic

Affiliation: Children's Hospitals and Clinics of Minnesota

Address: 2525 Chicago Avenue, Minneapolis, MN 55404 &

345 N. Smith Avenue, St. Paul, MN 55102

Contact: 612-813-6777

Ages Served: birth-18

Geographic Area Served: Upper Midwest

Taking New Patients: Yes

Focus of Clinic: Medical Assessment (growth & nutrition, thyroid function, gastrointestinal issues, vision & hearing, musculoskeletal development, sleep) and Developmental Assessment and Support (feeding skills, gross motor development & fitness, communication skills, self care skills & toilet training, behavior, social skills, personal safety)

Services: Audiology, Occupational Therapy, Speech & Language Therapy, Physical Therapy, Nutrition, and Psychology

Days/Hours: Monday-Friday

Name: HealthEast Pediatric Care-Maplewood

Affiliation: HealthEast Care System, Childrens Hospitals and Clinics Minnesota

Address: 3100 Kennard St. #100 Maplewood, MN 551009

Contact: 651-232-7800 Amy Coker www.HealthEast.org

Ages Served: pediatric

Geographic Area Served: Minnesota, Wisconsin

Taking New Patients: yes

Focus of Clinic: specialty medical care, primary medical care, behavior

Services: case and med management

Days/Hours: M-F

 

MISSOURI

 

Name: Down Syndrome Clinic

Affiliation: Children's Mercy Hospitals and Clinics

Address: 2401 Gillham Road, Kansas City, MO 64108

Contact: 816 234-3290 (Information) 816 234-3771 (appointments)

Emily Coughlin, MA - Parent Support Specialist, DS Clinic Coordinator 816-234-3784

Ages Served: birth-18

Geographic Area Served: Kansas City area & surrounding cities (some out of state)

Taking New Patients: yes

Focus of Clinic: specialty medical care (comprehensive, consultative, DS clinic), some evaluation, some therapeutic services, some education, some behavior

Services: genetics consultation, audiology/some ENT, speech therapy, OT, nutrition services, behavioral psychology, SW, parent support/advocate

Days/Hours: Wed am

 

Name: Down Syndrome Center

Affiliation: St. Louis Children's Hospital

Address: 1 Children's Place, Suite 2C, St. Louis, MO 63110

Contact: 314 454-6093 www.slch.org Alison Morrison, CPNP

Ages Served: birth-21

Geographic Area Served: MO & IL

Taking New Patients: yes

Focus of Clinic: specialty medical care, evaluation, therapeutic services

Services: genetics, cardiology, ophthalmology, ENT, audiology, therapy services, dietitian, social services

Days/Hours: Tuesdays

 

MONTANA

 

Name: Shodair Hospital Genetics Department/ Clinics

Affiliation: Shodair Children's Hospital

Address: P.O Box 5539, Helena, MT 59604-5539

Contact: 406 444-7530 www.shodairhospital.org Dept. Secretary

Ages Served: all

Geographic Area Served: state of MT

Taking New Patients: yes

Focus of Clinic: specialty medical care, and evaluation

Services: division of diagnosis, health implications, chromosomal origins

Days/Hours: 9-5 M-F

 

NORTH CAROLINA

 

Name: Down Syndrome Center

Affiliation: Levine Children's Hospital at Carolinas Medical Center

Address: PO Box 32861 Charlotte, NC 28232-2861

Contact: 704 381-6810 Cam Brasington, MS, CGC

Ages Served: birth-adult

Geographic Area Served: NC/SC

Taking New Patients: yes

Focus of Clinic: specialty medical care, evaluation

Services: medical, nutrition, nursing, audiology, speech, PT, OT, parent, genetic counselor, SW

Days/Hours: 3rd Thurs of month

 

NORTH DAKOTA

 

Name: Down Syndrome Clinic/ Coordinated Treatment Center

Affiliation: Meritcare Hospital

Address: 736 Broadway, Fargo, ND 58122-0180

Contact: 701 234-6600 www.meritcare.comCarla Houle, RN

Ages Served: 0-21

Geographic Area Served: NW Minnesota, eastern ND, Northern SD

Taking New Patients: yes

Focus of Clinic: evaluation, Therapeutic Services

Services: occupational therapy evaluation, physical therapy evaluation, speech evaluation, medical social worker consultant, lab and xrays as appropriate, dietician consult, pediatrician evaluation, audiology evaluation, ophthalmology evaluation, psychiatry evaluation

Days/Hours: M-F 8-5pm Central time, Down Syndrome Clinic first Tuesday of each month

 

NEW YORK

 

Name: Robert Warner Center for Children with Special Needs (formerly Robert Warner Rehab Center)

Affiliation: Women and Children's Hospital of Buffalo

Address: 219 Bryant St. Buffalo, NY 14222

Contact: 716 878-1260

Ages Served: typically under age 10, but up to 21 for special situations

Geographic Area Served: Western NY

Taking New Patients: yes

Focus of Clinic: primary medical care at separate "Special Needs Clinic" (716-878-7288), specialty medical care, evaluation, behavior

Services: Developmental evaluation; medical monitoring of DS

Days/Hours: Wed am

 

OHIO

 

Name: The Jane & Richard Thomas Center for Down Syndrome

Affiliation: Cincinnati Children's Hospital - Division of Developmental and Behavioral Pediatrics (DDBP)

Address: MLC 4002, 333 Burnet Avenue, Cincinnati, OH 45229-3039

Contact: 513 636-0520 www.cincinnatichildrens.org

Ages Served: birth-16

Geographic Area Served: Midwest or anyone interested in coming

Taking New Patients: yes

Focus of Clinic: specialty medical care, evaluation, therapeutic services, mental health services, education, behavior, research & SW

Services: multidisciplinary

Days/Hours: clinics are offered Mon and Tues, therapies offered daily

 

Name: Rainbow Babies and Children's Hospital/Rainbow Child Development Clinic

Affiliation: Rainbow Babies and Children's Hospital

Address: 105 24 Euclid Ave, Cleveland, OH 44106, suite 3150

Contact: 216-844-3230; Scheduling: 216-844-7700

Ages Served: Pediatric

Geographic Area Served: North East Ohio

Taking New Patients: yes

Focus of Clinic: specialty medical care

Services: Developmental-behavioral Pediatrics, specialty services

Days/Hours: variable

 

Name: Down Syndrome program in the Neurodevelopmental Center

Affiliation: Akron Children's Hospital

Address: 1 Perkins Square, Akron, OH 44308

Contact: 330 543-8050www.akronchildrens.org Deanna Albigo

Ages Served: infant-18 years

Geographic Area Served: northeast Ohio

Taking New Patients: yes

Focus of Clinic: specialty medical care, education, evaluation

Services: evaluation-medical and rehab specialists (dietician, audiology, speech and language therapy, physical therapy, occupational therapy, developmental-behavioral pediatrics, genetic counseling

Days/Hours: 1 Wednesday afternoon per month. 1 Thursday morning per month

 

Name: Blick Clinic

Affiliation:

Address: 640 W. Market St, Akron, OH 44303

Contact: 330 762-5425 www.blickclinic.org Bill Mizer, intake

Ages Served: all ages

Geographic Area Served: Summit Co

Taking New Patients: yes

Focus of Clinic: Therapeutic services, mental health services, education, behavior

Services: OT, PT, Speech, social work, psychology. Psychiatry, nursing, day programs, residential, Help Me Grow

Days/Hours: residential-24 hours a day, Office: 8:30-5

 

Name: Down Syndrome Clinic

Affiliation: The Children's Medical Center

Address: 1 Children's Plaza, Dayton, OH 45404

Contact: 937 641-4073, 937 641-4000 to schedule appointments www.childrensdayton.org Colleen Henn RN; Nicole Manns (office coordinator)

Ages Served: birth-21

Geographic Area Served: western and west-central Ohio

Taking New Patients: yes

Focus of Clinic: specialty medical care

Services: genetic counselor, developmental behavioral pediatrician, RN

Days/Hours: Monday afternoons 1-4 PM

 

PENNSYLVANIA

 

Name: Down Syndrome Center of Western PA

Affiliation: Children's Hospital of Pgh/UPMC

Address: 3705 5th Avenue, Pittsburgh, PA 15213

Contact: 412 692-7963 www.chp.edu/clinic/downsyndrome Sheila Cannon, M.Ed

Ages Served: pediatric/adult

Geographic Area Served: Western PA, eastern OH, Northern WV

Taking New Patients: yes

Focus of Clinic: specialty medical care, education, behavior

Services: medical services/referral to other specialties; family support/resources/information; developmental evaluations 0-2y; behavioral consults

Days/Hours: M-F 9-5; Clinic hours: Mon am, Tues am (adult only), Tues pm, Thurs am Fri am

 

Name: Trisomy 21 Program

Affiliation: The Children's Hospital of Philadelphia

Address: The Children's Hospital of Philadelphia, Trisomy 21 Program, ARB 510-511, 34th Street and Civic Center Blvd, Philadelphia, PA  19104-4399

Contact: 267 426-5283 www.chop.edu/consumer/jsp/division/generic.jsp?id=76660 Kim Schadt, RN, BSN, CCRP

Ages Served: pediatric patients seen by division of child development; adult patients evaluated through division of neurology

Geographic Area Served: majority from PA, NJ, DE; some from NY, CT, surrounding states

Taking New Patients: yes

Focus of Clinic: specialty medical care (Division of Child Development: developmental/behavioral evaluations; Division of Neurology: neurological evals/treatment), evaluation, therapeutic services (OT, PT), education, behavior

Services: developmental/behavioral assessments, neurological evaluations, OT evaluations, PT consultation, SW consultation

Days/Hours: clinic days vary according to need of new patient vs. follow up appts.

 

RHODE ISLAND

 

Name: Down Syndrome Program

Affiliation: Rhode Island Hospital, Brown University

Address: 593 Eddy Street, Providence, RI, 02903

Contact: 401 444-8477, 401 444-5685 S. M. Pueschel MD. PHD

Ages Served: all ages

Geographic Area Served: Rhode Island, Southern Massachusetts

Taking New Patients:

Focus of Clinic: Primary Medical care, specialty medical care, evaluation, therapeutic services

Services:

Days/Hours: Tuesday and Thursdays am

 

SOUTH CAROLINA

 

Name: MUSC Down Syndrome Center

Affiliation: Medical University of South Carolina

Address: 135 Rutledge Avenue, MSC 567, Charleston, SC 29425

Contact: 843 876-1524 www.musckids.com/about/dept_prog/down_syndrome_center/ Karen van Bakergem, LMSW

Ages Served: pediatric (0-5 yrs)

Geographic Area Served: low country and PeeDee regions of SC

Taking New Patients: yes

Focus of Clinic: specialty medical care, evaluation, therapeutic services (evaluation with PT, OT, ST), education, behavior

Services: medical evaluation by a developmental pediatrician, evaluations by PT, OT, ST, evaluation by ENT and audiology, behavioral evaluation as needed parental support, coordination of care

Days/Hours: 2nd Thurs of month, am clinic

 

Name: Greenwood Genetic Center

Affiliation:

Address: 101 Gregor Mendel Circle, Greenwood, SC 29646

Contact: 864 941-8100, 888 GGC-GENE www.ggc.org Fran Annese, LMSW

Ages Served: pediatric/adult

Geographic Area Served: South Carolina (main campus in Greenwood, SC)

Taking New Patients: yes

Focus of Clinic: specialty medical care-genetics

Services: Genetic Evaluation and referrals to agencies

Days/Hours: M-F 8-5

 

SOUTH DAKOTA

 

Name: Sanford Children's Down Syndrome Clinic

Affiliation: Sanford Health

Address: 1305 W 18th Street, Sioux Falls SD 57117

Contact: 605 333-7188, 800 850-0064 www.sanfordchildrens.org  Quinn Stein, MS, CGC

Ages Served: birth to 99 but most of our patients are under the age of 18

Geographic Area Served: South Dakota, Iowa, Minnesota, Nebraska, North Dakota

Taking New Patients: yes

Focus of Clinic: primary medical care, specialty medical care, evaluation, therapeutic services

Services: Genetics, endocrine, cardiology, ear/nose/throat, PT, OT, Speech pathology, social work, dietician, Genetic Counselor, South Dakota patient connections, audiology

Days/Hours: 3rd Friday of each month, 8am to noon

 

TENNESSEE

 

Name: Vanderbilt Children's Hospital Down Syndrome Clinic

Affiliation: Vanderbilt

Address: 220 Children's Way, 9th Floor Doctor's Office Tower, Nashville, TN 37232

Contact: 615 343-3696, 866 900-3696www.vanderbiltdownsyndromeclinic.com Melissa Finney-Webb, Program Coordinator

Ages Served: all ages

Geographic Area Served: Tennessee & surrounding states (no limits)

Taking New Patients: yes

Focus of Clinic: specialty medical care, evaluation, therapeutic services, mental health services, education, behavior

Services: PT/OT/ST evals/screenings; Development Psych evals & testing; Behavioral therapist; Nutrition/Weight programs; Specialty Health Care & Cardiology; referrals to specialists

Days/Hours: Thurs 8-12, Wed 9-12 by appt

 

TEXAS

 

Name: Down Syndrome Clinic

Affiliation: Marni Paul Specialty Care Center; Dell Children's Medical Center of Central Texas

Address: 4900 Mueller Blvd., Austin TX 78723

Contact: 512 324-0137 www.dellchildrens.net, Nancy Ross, RN/Nurse Coordinator

Ages Served: birth-18

Geographic Area Served: Central Texas

Taking New Patients: yes

Focus of Clinic: specialty medical care, evaluation, education, other, referrals to all above (on given checklist) as needed

Services: physical exams by physician; therapy evals (PT, OT, Speech); labs, x-rays; translators; resources/referrals; patient & families meet with physician, occupational & speech therapist, nurse, and social worker (also dietitian if needed)

Days/Hours: 2 clinics/month  - 1st Wed afternoon & 2nd Mon afternoon

 

Name: Down Syndrome Clinic

Affiliation: Children's Medical Center Dallas

Address: 1935 Medical District Drive, Dallas, TX 75235

Contact: 214 www.childrens.com Joanna Spahis, clinical nurse specialist

Ages Served: birth to 18 years

Geographic Area Served: north Texas

Taking New Patients: yes but there is a 9 month wait

Focus of Clinic: specialty medical care, evaluation, therapeutic services, behavior

Services: medical exams, evaluations, preventative medical care, speech and physical therapy evaluations, genetic counseling, social services, parent outreach, dietary counseling

Days/Hours: Friday mornings every week

Name: Baylor Transition Medicine Clinic

Affiliation: Baylor College of Medicine

Address: 6620 Main St. Suite 1250, Huston, TX 77030

Contact: 713-798-0198, This e-mail address is being protected from spambots. You need JavaScript enabled to view it , This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Ages Served: 14 and up

Geographic Area Served: Huston metro and surrounding counties

Taking New Patients: yes

Focus of Clinic: primary medical care, specialty medical care, evaluation, mental health services, education, behavior

Services: Medical home, consultation, subspecialty services, case management and case coordination by LCSWs with emphasis on supportive employment and vocational education

Days/Hours: New consults/visits on Wed and Thurs evening.  Return visits M-Friday 8-5pm

 

VIRGINIA

 

Name: Developmental Pediatrics

Affiliation: The Children's Hospital of the King's Daughters, Eastern Medical Center

Address: 100 Constitution Drive, suite 217, Virginia Beach, VA 23462

Contact: 757 961-0169 www.chrd.org

Ages Served: birth to age 18

Geographic Area Served: southeastern Virginia, Northeastern North Carolina

Taking New Patients: yes

Focus of Clinic: specialty medical care, evaluation, mental health services, behavior

Services: developmental pediatric evaluation and management

Days/Hours: M-F 8am to 4pm

 

WISCONSIN

 

Name: Down Syndrome Clinic

Affiliation: Gundersen Lutheran

Address: 1900 South Ave, Lacrosse, WI 54601

Contact: 608 775-2789 (adult clinic) 608 775-2771

www.gundluth.org Julie Holzwarth (adult), Kevin Josephson (pediatric)

Ages Served: all

Geographic Area Served: Western Wisconsin, Northeast Iowa, Southeast Minnesota

Taking New Patients: yes

Focus of Clinic: specialty medical care, Evaluation, Behavior

Services: (adult) Internal medicine, medical genetics, neuropsych testing, cardiology, nutrition, speech and language, social work, gynecology, audiology, other specialists available (peds) medical genetics, developmental pediatrics, audiology, speech and language, nutrition, genetic counseling and social work, referrals and possible inclusion (?) on clinic days

Days/Hours: 4 two day clinics each year (adult) currently one clinic day every other month (peds)

 

Name: Down Syndrome Clinic of Wisconsin

Affiliation: Children's Hospital of Wisconsin

Address: CHW Down Syndrome Clinic, 9000 W. Wisconsin, PO Box 1997 MB140, Milwaukee, WI 53201-1997

Contact: 414 266-6259 http://www.chw.org/display/PPF/DocID/33576/router.aspTerri Couwenhoven, MS - Clinic Coordinator

Ages Served: all

Geographic Area Served: Wisconsin - some patients from out of state

Taking New Patients: yes (do NOT provide primary care)

Focus of Clinic: specialty medical care

Services: full physical; lab, x-ray; care coordination (time limited for more complex patients (; research; community & professional education; I & R (for families & doctors); Family Advisory Committee

Days/Hours: every 1st or 2nd Thurs of month

 

Name: Deaconess Riley Children's Specialty Center-Down Syndrome Clinic

Affiliation: Deaconess Hospital and Riley Hospital for Children

Address: 4133 Gateway Blvd., Suite 220, Newburgh, IN 47630

Contact: 800-276-5235, 812-858-3131, www.deaconess.com

Ages Served: birth to 10

Geographic Area Served: Southern Indiana, Southeast Illinois and Northwest Kentucky

Taking New Patients: yes

Focus of Clinic: specialty medical care, evaluation, therapeutic services, mental health services, education behavior

Services: Patients are seen by a board-certified developmental pediatrician from Riley Hospital for Children.  Social worker, speech therapist and dietician are available as needed

Days/Hours: M-F 8:30 am-5pm

The unique partnership between Deaconess Hospital and Riley Hospital for Children is helping countless tri-state families.  Instead of travelling to receive specialty care, families receive the most innovative treatment options close to home.  Physicians from Riley Hospital for Children provide services at our Gateway location during regularly scheuled clinics.  These specialty physicians supplement on-site visits with telemedicine visits and consulations.