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Down Syndrome Clinics and Health Care Providers
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Down Syndrome Clinics and Health Care Providers

For optimal health care, families may locate a developmental pediatrician, a specialist knowledgeable about Down syndrome or a Down syndrome clinic. These specialists can work with the primary care physician. Local parent groups are an excellent resource for learning of health care professionals who have exp

erience with Down syndrome. You can search for NDSS affiliate parent support groups near you in the Affiliates section, here.

However, it is not always necessary or possible to find an expert on Down syndrome. The most important thing is that the doctor is willing to learn about the condition and collaborate with the family and individual with Down syndrome.



Down Syndrome Clinics and Health Care Providers Database

This database of clinical providers with specialty services available for patients with Down syndrome was created by NDSS in partnership with its Clinical Advisory Board. All information included in this database was provided by the institutions themselves through a survey conducted by NDSS.


ARKANSAS

UAMS Adult Medical Genetics/Down Syndrome Clinic
Affiliation: University of Arkansas Medical Sciences, College of Medicine, Division of Genetics
Address: 4301 West Marham Street, Slot 514
Little Rock, AR 72205-7199
Website: www.uams.edu
Contact: Michelle Haygood, Administrative Assistant
Phone: 501-526-4020
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it , This e-mail address is being protected from spambots. You need JavaScript enabled to view it , This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Ages Served: Adults
Geographic Area Served: Arkansas
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, evaluation, therapeutic services, mental health services, education, behavior, registered dietitian
Services: Occupational Therapy staff evaluate patients and refers for orthotics, physical therapy and speech, when necessary, registered dietitian counsels each new patient for weight loss/management, gluten free foods. MD/APN refers to behavior psychologist as necessary.
Days/Hours: Monday - Friday 8:30AM - 4:30PM; Monday, Thursday and Tuesday clinics

CALIFORNIA

Child Neurology Clinic
Affiliation: University of California, San Francisco
Address: 400 Parnassus Boulevard San Francisco, CA 94143
Contact: Terry Hutchison, M.D.
Phone: 415-353-3682
Ages Served: Pediatric
Geographic Area Served: Northern California
Taking New Patients: Yes
Focus of Clinic: Specialty medical care
Services: Child neurology
Days/Hours: Monday – Friday, 8:30AM – 5:00PM

Doctors' Research
Affiliation: Down Syndrome - Epilepsy Foundation
Address: 41248 East Grand, Suite A Arroyo Grande, CA 93420
Contact: R. Thiel, Ph.D.
Phone: 805-489-7185
Ages Served: All
Geographic Area Served: California
Taking New Patients: Yes
Focus of Clinic: Specialty nutritional care, research
Services: Nutrition, diet assessments
Days/Hours: Monday – Friday, 9:00AM – 5:00PM

COLORADO

Denver Adult Down Syndrome Clinic
Affiliation: Metro Community Providers Network
Address: 700 Potomac Street, Suite A Aurora, CO 8001
Phone: 303-360-3877
Ages Served: 14+
Geographic Area Served: Western United States
Taking New Patients: Yes
Focus of Clinic: Evaluation
Services: The Denver Adult Down Syndrome Clinic is a referral clinic that provides a complete medical examination and psychosocial evaluation for adolescents and adults with Down syndrome beginning at age 14.
Days/Hours: 2 half days each month

CONNECTICUT

Division of Human Genetics
Affiliation: University Connecticut Health Center
Address: 65 Kana Street West Hartford, CT 06119
Contact: Robert M. Greenstein, M.D.
Phone: 860-523-6470
Ages Served: All
Geographic Area Served: Connecticut
Taking New Patients: Yes
Focus of Clinic: Specialty medical services, evaluation, mental health services, education
Services: Medical (developmental)
Days/Hours: Monday – Friday

Down Syndrome Adult Assessment Program
Affiliation: Hospital of Saint Raphael
Address: 1450 Chapel Street New Haven, CT 65110
Contact: Gerard Kerins
Phone: 203-789-3536 or 203-789-3275
Ages Served: Adult
Geographic Area Served: Connecticut
Taking New Patients: Yes
Focus of Clinic: Evaluation
Services: Comprehensive medical and functional assessments
Days/Hours: 4th Tuesday of each month, 9:00AM – 5:00PM

DELAWARE

Down Syndrome Clinic at the Alfred I. du Pont Hospital for Children
Affiliation: Alfred I. duPont Hospital for Children – Medical Genetics
Address: 1600 Rockland Road Wilmington, DE 19803
Contact: Nadine Shavack
Phone: 302-651-5916
Ages Served: Pediatric (newborn – 21)
Geographic Area Served: Delaware; Pennsylvania; New Jersey; Maryland
Taking New Patients: Yes
Focus of Clinic: To provide a coordinate, interdisciplinary approach, which addresses the medical, social, and development needs of children with Down Syndrome and their families.
Services: Present at clinic are genetics, physical therapy, speech therapy, and an outreach coordinator from the local Down Syndrome chapter. Appropriate referrals are made to ENT, dental, behavioral health, audiology, ophthalmology, endocrinology, cardiology, developmental medicine, weight management, therapeutic services and gastroenterology.
Days/Hours: 2nd and 4th Tuesday of each month (afternoons)
FLORIDA

Down Syndrome Center at Hope Haven
Affiliation: Hope Haven Children's Clinic and Family Center
Address: 4600 Beach Boulevard Jacksonville, FL 32207
Contact: Laura Watts, Program Director
Phone: 904-346-5100 Ages Served: Pediatric (prenatal - 21)
Geographic Area Served: Worldwide
Taking New Patients: Yes
Focus of Clinic: Evaluation, therapeutic services, mental health services, education, behavior
Services: Team evaluations (OT, PT, ST, education and behavioral/medical are all strength-based with focus on educational potential ongoing therapies and tutoring for local clients) Days/Hours: Monday - Friday, 8:00AM - 5:00PM

Mailman Center for Child Development
Affiliation: University of Miami Hospital, JM Hospital
Address: 1601 Northwest 12 Avenue Miami, FL 33136
Contact: Rosa Rivera
Phone: 305-243-6006
Ages Served: All
Geographic Area Served: Miami, Homestead and Broward Counties
Taking New Patients: Yes
Focus of Clinic: Specialty medical care
Services: Medical, genetic and consultation with other specialist
Days/Hours: Mondays
GEORGIA

Emory University Down Syndrome Clinic
Affiliation: Emory University Department of Human Genetics
Address: 2165 North Decatur Road Decatur, GA 30033
Contact: Pat Olney, MS
Phone: 404-778-8484
Ages Served: Pediatric
Geographic Area Served: Georgia (southeast region)
Taking New Patients: Yes
Focus of Clinic: Specialty medical care
Services: Comprehensive developmental screening and physical examination by our medical director, a developmental pediatrician; health care guidelines, referrals to specialists and genetic counseling with a board certified genetic counselor, provide community resources/ educational recommendations.
Days/Hours: Wednesdays and Thursdays

ILLINOIS

Adult Down Syndrome Center
Affiliation: Lutheran General Hospital
Address: 1999 Dempster Street Park Ridge, IL 60068
Phone: 847-318-2303
Ages Served: 12+
Geographic Area Served: Illinois
Taking New Patients: Yes
Focus of Clinic: Primary and specialty care
Services: Medical and psychosocial services
Days/Hours: Monday – Friday, 9:00AM – 5:00PM and Wednesday evenings

Section of Developmental and Behavioral Pediatrics
Affiliation: University of Chicago
Address: 950 East 61st Street SSC Suite 207 Chicago, IL 60637
Phone: 773-702-3095
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Ages Served: Pediatric (birth - 21)
Geographic Area Served: No limit, generally "Chicagoland"
Taking New Patients: Yes
Focus of Clinic: Specialty medical care
Services: Medical and case coordination
Days/Hours: Various hours, no weekends
IOWA

Healy Clinic Down Syndrome Services
Affiliation: Center for Disabilities and Development, University of Iowa Children's Hospital
Address: 100 Hawkins Drive Iowa City, IA 52242
Contact: Dianne McBrien, M.D.
Phone: 319-353-6900
Ages Served: All
Geographic Area Served: Iowa and surrounding states
Taking New Patients: Yes
Focus of Clinic: Primary medical care, specialty medical care, evaluation, therapeutic services, mental health services, education, behavior
Services: Comprehensive health care and services through a combination of outpatient, in patient and community based services. Services include OT, PT, education, social work, audiology, speech language, psychology, nutrition and medical
Days/Hours: Monday – Friday, 8:00AM – 5:00PM

INDIANA

Anne Whitehill DS Clinic
Affiliation: Riley Children's Hospital
Address: 702 Barnhill Drive, Room 1601 Indianapolis, IN 46202-5225
Contact: Charlene Davis, RN, CPNP
317-274-4820
Ages Served: Birth – 19 years
Geographic Area Served: Indiana, Ohio, Michigan, Illinois
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, evaluation, therapeutic services, mental health services, education, behavior
Services: Seen by a board certified developmental pediatrician, nurse practitioner, speech therapist, nutritionist, social worker, parent liaison
Days/Hours: Monday – Friday, 8:00AM – 5:00PM

Deaconess Riley Children's Specialty Center - Down Syndrome Clinic
Affiliation: Deaconess Hospitaland Riley Hospital for Children
Address: 4133 Gateway Boulevard, Suite 220 Newburgh, IN 47630
Phone: 800-276-5235 or 812-858-3131
Ages Served: Birth – 10 years
Geographic Area Served: Southern Indiana, southeast Illinois and northwest Kentucky
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, evaluation, therapeutic services, mental health services, education, behavior
Services: Patients are seen by a board-certified developmental pediatrician from Riley Hospital for Children. Social worker, speech therapist and dietitian are available as needed. The unique partnership between Deaconess Hospitaland Riley Hospitalfor Children is helping countless tri-state families. Instead of travelling to receive specialty care, families receive the most innovative treatment options close to home. Physicians from Riley Hospitalfor Children provide services at our Gateway location during regularly scheduled clinics. These specialty physicians supplement on-site visits with telemedicine visits and consultations.
Days/Hours: Mondays – Fridays, 8:30AM – 5:00PM

St. Vincent Children's Hospital – Down Syndrome Clinic
Affiliation: St. Vincent Hospital - Medical Genetics
Address: 8402 Harcourt Road, Suite 300 Indianapolis, IN 46260
Contact: 317-338-5288
Geographic Area Served: Statewide
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, evaluation, therapeutic services, behavior
Services: ENT, cardiology, PT, OT, speech, nutrition, genetics, endocrinology
Days/Hours: Monday – Friday, 8:00AM – 5:00PM

KANSAS

Adults with Down Syndrome Specialty Clinic
Affiliation: Department of Family Medicine and the University of Kansas Medical Center
Address: KUMC 3901 Rainbow Blvd. Kansas City, KS 66160
Contact: Moya Peterson, PhD, ARNP
Phone: 913-588-1915
Ages Served: Adult
Geographic Area Served: Midwest
Taking New Patients: Yes
Focus of Clinic: Primary medical care, specialty medical care, evaluation, therapeutic services, mental health services, education, behavior
Services: Dietary/social service professionals and nurse practitioner will see each patient at each visit; other services on referral basis; in negotiation to have OT in clinic for evaluation; will provide primary care or consultation services as family desires
LOUISIANA

Children’s Hospital of New Orleans Down Syndrome Clinic
Affiliation: Children’s Hospital of New Orleans
Address: 200 Henry Clay New Orleans, LA 70118
Contact: Dr. Robin McGoey, Coordinator
Phone: 504-896-9254
Ages Served: All
Geographic Area Served: South central United States
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, evaluation, education, medical genetics
Services: Genetic counseling, speech therapy, physical therapy, occupational therapy, ophthalmology, audiology
Days/Hours: Second Monday of each month at 9:00AM

MARYLAND

Behavioral Development Clinic and NICU Follow Up Clinic
Affiliation: University of Maryland
Address: 737 West Lombard Street, Suite 215 Baltimore, MD 21201
Phone: 410-706-6538
Ages Served: Pediatric (3 – 21)
Geographic Area Served: Maryland
Taking New Patients: Yes
Focus of Clinic: Evaluation, behavior
Services: Consultation
Days/Hours: 8:00AM – 5:00PM

Kennedy Krieger Institute Down Syndrome Clinic
Affiliation: Johns Hopkins Medical Institutions
Address: 707 North Broadway Baltimore, MD 21205
Phone: 443-923-9400 or 888-554-2080
Ages Served: Birth - 35 years
Geographic Area Served: Mid-Atlantic
Taking New Patients: Yes
Focus of Clinic: Comprehensive evaluations and follow-up at all ages: medical, developmental, behavioral and mental health
Services: Medical specialties (pediatric gastrointestinal, orthopedics, neurology and psychiatry; access to Johns Hopkins specialists), multidisciplinary programs (feeding clinic, behavior clinic), audiology, physical therapy, occupational therapy, speech and language, education, assistive technology, neuropsychology, behavioral psychology, individual and group counseling

MASSACHUSETTS

Down Syndrome Clinic for Adults and Adolescents
Affiliation: Massachusetts General Hospital
Address: Simches Research Building, CPZN 2222, 185 Cambridge Street Boston, MA 02114
Contact: 617-726-1561
Ages Served: 12+
Geographic Area Served: Massachusetts and greater New England
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, evaluation, therapeutic services
Services: Initial evaluation, with referrals to specialists in physical therapy, occupational therapy, speech, nutrition, ophthalmology, audiology, GYN, cardiology
Days/Hours: Adolescents: 3rd Wednesday of each month, 1:00PM – 5:00PM; Adults: 3rd Wednesdays and 1st and 3rd Fridays, 9:00AM – 12:00PM

Down Syndrome Program
Affiliation: Children's Hospital Boston
Address: 300 Longwood Avenue Boston, MA 02115
Phone: 857-218-4329
Ages Served: Pediatric (Birth - 3)
Geographic Area Served: Massachusetts and beyond
Taking New Patients: Yes
Focus of Clinic: Specialty medical care
Services: Audiology, psychology, physical therapy, nutrition, dentistry, speech-language pathology, and referrals to all other medical specialties
Days/Hours: Thursdays, 8:30AM - 12:00PM
MICHIGAN

Euro-Peds National Center for Intensive PT
Affiliation: North Oakland Medical Centers
Address: 461 West Huron Street, Suite 406 Pontiac MI 48341
Contact: Chris Millis or Pam Montroy
Phone: 888-875-6662
Geographic Area Served: International
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, therapeutic services, intensive PT
Services: Intensive pediatric PT, using European-inspired concepts and tools, such as suit therapy and universal exercise unit
Days/Hours: Monday – Friday, 8:00AM – 6:00PM

MINNESOTA

Down Syndrome Clinic
Affiliation: Children's Hospitals and Clinics of Minnesota
Address: 2525 Chicago Avenue Minneapolis, MN 55404 &
345 North Smith Avenue, St. Paul, MN 55102
Phone: 612-813-6777
Ages Served: Pediatric (birth – 18)
Geographic Area Served: Upper Midwest
Taking New Patients: Yes
Focus of Clinic: Medical assessment (growth and nutrition, thyroid function, gastrointestinal issues, vision and hearing, musculoskeletal development, sleep) and developmental assessment and support (feeding skills, gross motor development and fitness, communication skills, self care skills and toilet training, behavior, social skills, personal safety)
Services: Audiology, occupational therapy, speech and language therapy, physical therapy, nutrition, and psychology
Days/Hours: Monday - Friday

HealthEast Pediatric Care-Maplewood
Affiliation: HealthEast Care System, Childrens Hospitals and Clinics Minnesota
Address: 3100 Kennard Street, #100 Maplewood, MN 551009
Contact: Amy Coker
Phone: 651-232-7800
Ages Served: Pediatric
Geographic Area Served: Minnesota, Wisconsin
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, primary medical care, behavior
Services: Case and medical management
Days/Hours: Monday - Friday
MISSOURI

Albert Pujols Wellness Center for Adults with Down Syndrome
Affiliation: St. Luke's Hospital
Address: 121 St. Luke's Center Drive Chesterfield, MO 63017
Contact: Nicole Hunt, MSW
Phone: 314-576-2300
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Ages Served: 17+
Geographic Area Served: Midwest
Taking New Patients: Yes
Focus of Clinic: After a physician visit for a comprehensive physical, patients are referred to various services focused on nutrition, exercise, safety and social/emotional well-being. These services are specifically designed for adult patients with Down syndrome. The Center also offers parent/caregiver classes on various topics.
Days/Hours: Monday - Friday, 8:30AM - 5:00PM

Down Syndrome Center
Affiliation: St. Louis Children's Hospital
Address: 1 Children's Place, Suite 2C St. Louis, MO 63110
Website: www.slch.org
Contact: Alison Morrison, CPNP
Phone: 314-454-6093
Ages Served: Pediatric (birth – 21)
Geographic Area Served: Missouri and Illinois
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, evaluation, therapeutic services
Services: Genetics, cardiology, ophthalmology, ENT, audiology, therapy services, dietitian, social services
Days/Hours: Tuesdays

Down Syndrome Clinic
Affiliation: Children's Mercy Hospitals and Clinics
Address: 2401 Gillham Road Kansas City, MO 64108
Contact: Emily Coughlin, MA - Parent Support Specialist, DS Clinic Coordinator
Phone: 816-234-3290 (for information); 816-234-3771 (for appointments)
Ages Served: Birth – 18 years
Geographic Area Served: Kansas City area & surrounding cities (some out of state)
Taking New Patients: Yes
Focus of Clinic: Specialty medical care (comprehensive, consultative, DS clinic), some evaluation, some therapeutic services, some education, some behavior
Services: Genetics consultation, audiology/some ENT, speech therapy, OT, nutrition services, behavioral psychology, SW, parent support/advocate
Days/Hours: Wednesdays
MONTANA

Shodair Hospital Genetics Department - Clinics
Affiliation: Shodair Children's Hospital
Address: P.O Box 5539 Helena, MT 59604-5539
Phone: 406-444-7530
Ages Served: All
Geographic Area Served: State of Montana
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, and evaluation
Services: Division of diagnosis, health implications, chromosomal origins
Days/Hours: Monday – Friday, 9:00AM - 5:00PM

NORTH CAROLINA

Down Syndrome Center
Affiliation: Levine Children's Hospital at Carolinas Medical Center
Address: P.O. Box 32861 Charlotte, NC 28232-2861
Contact: Cam Brasington, MS, CGC
Phone: 704-381-6810
Ages Served: All
Geographic Area Served: North Carolina/South Carolina
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, evaluation
Services: Medical, nutrition, nursing, audiology, speech, PT, OT, parent, genetic counselor, SW
Days/Hours: 3rd Thursday of each month
NORTH DAKOTA

Down Syndrome Clinic / Coordinated Treatment Center
Affiliation: Meritcare Hospital
Address: 736 Broadway Fargo, ND 58122-0180
Contact: Carla Houle, RN
Phone: 701-234-6600
Ages Served: Pediatric (birth – 21)
Geographic Area Served: Northwest Minnesota, eastern North Dakota, northern South Dakota
Taking New Patients: Yes
Focus of Clinic: Evaluation, therapeutic services
Services: Occupational therapy evaluation, physical therapy evaluation, speech evaluation, medical social worker consultant, lab and x rays as appropriate, dietitian consult, pediatrician evaluation, audiology evaluation, ophthalmology evaluation, psychiatry evaluation
Days/Hours: Monday – Friday, 8:00AM -5:00PM

NEW YORK

Robert Warner Center for Children with Special Needs
Affiliation: Women and Children's Hospital of Buffalo
Address: 219 Bryant Street Buffalo, NY 14222
Phone: 716-878-1260
Ages Served: Typically under age 10, but up to 21 for special situations
Geographic Area Served: Western New York
Taking New Patients: Yes
Focus of Clinic: Primary medical care at separate "Special Needs Clinic" (716-878-7288), specialty medical care, evaluation, behavior
Services: Developmental evaluation; medical monitoring of DS
Days/Hours: Wednesday mornings
OHIO

Blick Clinic
Address: 640 West Market Street Akron, OH 44303
Contact: Bill Mizer, Intake
Phone: 330-762-5425
Ages Served: All
Geographic Area Served: Summit County
Taking New Patients: Yes
Focus of Clinic: Therapeutic services, mental health services, education, behavior
Services: OT, PT, speech, social work, psychology, psychiatry, nursing, day programs, residential, Help Me Grow
Days/Hours: Residential - 24 hours a day, Office: 8:30AM - 5:00PM

Down Syndrome Clinic
Affiliation: The Children's Medical Center
Address: 1 Children's Plaza Dayton, OH 45404
Contact: Colleen Henn RN; Nicole Manns (office coordinator)
Phone: 937-641-4073, 937-641-4000 to schedule appointments
Ages Served: Pediatric (birth – 21)
Geographic Area Served: Western and west central Ohio
Taking New Patients: Yes
Focus of Clinic: Specialty medical care
Services: Genetic counselor, developmental behavioral pediatrician, RN
Days/Hours: Monday afternoons, 1:00PM – 4:00PM

Down Syndrome Program in the Neurodevelopmental Center
Affiliation: Akron Children's Hospital
Address: 1 Perkins Square Akron, OH 44308
Contact: Deanna Albigo
Phone: 330-543-8050
Ages Served: Pediatric (infant -18)
Geographic Area Served: Northeast Ohio
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, education, evaluation
Services: Evaluation, medical and rehab specialists, dietitian, audiology, speech and language therapy, physical therapy, occupational therapy, developmental-behavioral pediatrics, genetic counseling
Days/Hours: 1 Wednesday afternoon per month; 1 Thursday morning per month

The Jane and Richard Thomas Center for Down Syndrome
Affiliation: Cincinnati Children's Hospital - Division of Developmental and Behavioral Pediatrics (DDBP)
Address: MLC 4002 333 Burnet Avenue Cincinnati, OH 45229-3039
Phone: 513-636-0520
Ages Served: Pediatric (birth – 16)
Geographic Area Served: Midwest or anyone interested in coming
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, evaluation, therapeutic services, mental health services, education, behavior, research
Services: Multidisciplinary
Days/Hours: Clinics are offered Monday and Tuesday; therapies offered daily

Ohio State Adult Down Syndrome Clinic
Affiliation: Ohio State Medical Center, Division of Human Genetics
Address: OSU Polaris Innovation Center
2001 Polaris Parkway
Columbus, OH 43240
Phone: 888-329-1654 0r 614-293-6694
Contact: Dawn Allain, Genetic Counselor
Ages Served: Adult
Geographic area served: Ohio
Taking new patients: Yes
What is the focus of clinic: Specialty medical care
Services: Comprehensive overview of known complications seen in adults with Trisomy21 with focus on anticipatory and preventative care
Days/hours of operation: Second Monday of each month is a devoted clinic

Rainbow Babies and Children's Hospital/Rainbow Child Development Clinic
Affiliation: Rainbow Babies and Children's Hospital
Address: 105-24 Euclid Avenue, Suite 3150 Cleveland, OH 44106
Phone: 216-844-3230; scheduling: 216-844-7700
Ages Served: Pediatric
Geographic Area Served: Northeast Ohio
Taking New Patients: Yes
Focus of Clinic: Specialty medical care
Services: Developmental-behavioral pediatrics, specialty services
Days/Hours: Variable

OREGON

Down Syndrome Clinic
Affiliation: Oregon Health & Science University (OHSU) Child Development and Rehabilitation Center (CDRC)
Address: CDRC Clinics at OHSU's Doernbecher Children's Hospital, 7th Floor, 700 SW Campus Drive, Portland, OR 97201
Contact: Joseph Pinter, MD
Phone: 503-346-0640 or toll free 800-452-3563
Fax: 503-494-4447
Ages Served: Pediatric
Geographic Area Served: Northwestern United States
Taking New Patients: Yes
Focus of Clinic: Multidisciplinary clinical evaluation (Pediatrics/Pediatric Neurology, Physical Therapy, Occupational Therapy, Audiology), information and assistance with community and educational resources, laboratory and radiologic studies as indicated, referrals as needed to specialists (including Sleep, ENT, Dentistry, Heme/Onc, Endocrinology, Cardiology, Ophthalmology, Feeding Clinic, Nutrition, Psychology, Psychiatry, and ongoing outpatient therapy services (Speech and Language, PT, OT).
Services: Comprehensive medical and functional assessments, including PT, OT, Speech/Language, Audiology.
Days/Hours: Three Fridays per month from 830 am to 5 pm (Each patient in clinic for a half-day, including evaluations by Dr. Pinter, PT, OT, SLP, Audiology).

 

 

PENNSYLVANIA

Down Syndrome Center of Western PA
Affiliation: Children's Hospital of Pgh/UPMC
Address: 3705 5th Avenue Pittsburgh, PA 15213
Contact: Sheila Cannon, M.Ed
Phone: 412-692-7963
Ages Served: All
Geographic Area Served: Western Pennsylvania, eastern Ohio, northern Wyoming
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, education, behavior
Services: Medical services/referral to other specialties; family support/resources/information; developmental evaluations 0-2; behavioral consults
Days/Hours: Monday – Friday, 9:00AM – 5:00PM

Trisomy 21 Program
Affiliation: The Children's Hospital of Philadelphia
Address: 510-511 34th Street and Civic Center Blvd. Philadelphia, PA 19104-4399
Contact: Kim Schadt, RN, BSN, CCRP
Phone: 267-426-5283
Ages Served: Pediatric patients seen by division of child development; adult patients evaluated through division of neurology
Geographic Area Served: Majority from Pennsylvania, New Jersey, Delaware; some from New York, Connecticut and surrounding states
Taking New Patients: Yes
Focus of Clinic: Specialty medical care (division of child development: developmental/behavioral evaluations; division of neurology: neurological evals/treatment), evaluation, therapeutic services (OT, PT), education, behavior
Services: Developmental/behavioral assessments, neurological evaluations, OT evaluations, PT consultation, SW consultation
Days/Hours: Clinic days vary according to need of new patient versus follow up appointments
RHODE ISLAND

Down Syndrome Program
Affiliation: Rhode Island Hospital, Brown University
Address: 593 Eddy Street Providence, RI 02903
Contact: S. M. Pueschel MD, PHD
Phone: 401-444-8477 or 401-444-5685
Ages Served: All
Geographic Area Served: Rhode Island, Southern Massachusetts
Focus of Clinic: Primary medical care, specialty medical care, evaluation, therapeutic services
Days/Hours: Tuesday and Thursday mornings
SOUTH CAROLINA

MUSC Down Syndrome Center
Affiliation: Medical University of South Carolina
Address: 135 Rutledge Avenue, MSC 567 Charleston, SC 29425
Contact: Karen van Bakergem, LMSW
Phone: 843-876-1524
Ages Served: 0 - 5 years
Geographic Area Served: Low country and regions of South Carolina
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, evaluation, therapeutic services (evaluation with PT, OT, ST), education, behavior
Services: Medical evaluation by a developmental pediatrician, evaluations by PT, OT, ST, evaluation by ENT and audiology, behavioral evaluation as needed parental support, coordination of care
Days/Hours: 2nd Thursday of each month, AM clinic

Greenwood Genetic Center
Address: 101 Gregor Mendel Circle Greenwood, SC 29646
Website: www.ggc.org
Contact: Fran Annese, LMSW
Phone: 864-941-8100
Ages Served: All
Geographic Area Served: South Carolina (main campus in Greenwood, South Carolina)
Taking New Patients: Yes
Focus of Clinic: Specialty medical care-genetics
Services: Genetic evaluation and referrals to agencies
Days/Hours: Monday – Friday, 8:00AM – 5:00PM

SOUTH DAKOTA

Sanford Children's Down Syndrome Clinic
Affiliation: SanfordHealth
Address: 1305 West 18th Street Sioux Falls, SD 57117
Contact: Quinn Stein, MS, CGC
Phone: 605-333-7188 or 800-850-0064
Ages Served: All (most patients are under 18)
Geographic Area Served: South Dakota, Iowa, Minnesota, Nebraska, North Dakota
Taking New Patients: Yes
Focus of Clinic: Primary medical care, specialty medical care, evaluation, therapeutic services
Services: Genetics, endocrine, cardiology, ear/nose/throat, PT, OT, speech pathology, social work, dietician, genetic counselor, South Dakota patient connections, audiology
Days/Hours: 3rd Friday of each month, 8:00AM – 12:00PM
TENNESSEE

Vanderbilt Children's Hospital Down Syndrome Clinic
Affiliation: Vanderbilt University
Address: 220 Children's Way 9th Floor Doctor's Office Tower Nashville, TN 37232
Contact: Melissa Finney-Webb, Program Coordinator
Phone: 615-343-3696 or 866-900-3696
Ages Served: All
Geographic Area Served: Tennessee and surrounding states (no limits)
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, evaluation, therapeutic services, mental health services, education, behavior
Services: PT/OT/ST evals/screenings; development psychology evaluations testing; behavioral therapist; nutrition/weight programs; specialty health care and cardiology; referrals to specialists
Days/Hours: Thursdays 8:00AM – 12:00PM, Wednesdays 9:00AM – 12:00PM by appointments

TEXAS

Down Syndrome Clinic
Affiliation: Marni Paul Specialty Care Center; Dell Children's Medical Center of Central Texas
Address: 4900 Mueller Boulevard Austin, TX 78723
Contact: Nancy Ross, RN, Coordinator
Phone: 512-324-0137
Ages Served: Pediatric (birth – 18)
Geographic Area Served: Central Texas
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, evaluation, education, other, referrals to all above (on given checklist) as needed
Services: Physical exams by physician, therapy evaluation (PT, OT, Speech), labs, x-rays; translators; resources/referrals, patient and families meet with physician, occupational and speech therapist, nurse, and social worker (also dietitian, if needed)
Days/Hours: 1st Wednesday afternoon and 2nd Monday afternoons of each month

Down Syndrome Clinic
Affiliation: Children's Medical Center Dallas
Address: 1935 Medical District Drive Dallas, TX 75235
Contact: Joanna Spahis, clinical nurse specialist
Ages Served: Pediatric (birth – 18)
Geographic Area Served: North Texas
Taking New Patients: Yes, but there is a 9 month wait
Focus of Clinic: Specialty medical care, evaluation, therapeutic services, behavior
Services: Medical exams, evaluations, preventative medical care, speech and physical therapy evaluations, genetic counseling, social services, parent outreach, dietary counseling
Days/Hours: Friday mornings every week

Baylor Transition Medicine Clinic
Affiliation: Baylor College of Medicine
Address: 6620 Main Street Suite 1250, Huston, TX 77030
Contact: This e-mail address is being protected from spambots. You need JavaScript enabled to view it or This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Phone: 713-798-0198
Ages Served: 14+
Geographic Area Served: Huston metro and surrounding counties
Taking New Patients: Yes
Focus of Clinic: Primary medical care, specialty medical care, evaluation, mental health services, education, behavior
Services: Medical home, consultation, subspecialty services, case management and case coordination by LCSWs with emphasis on supportive employment and vocational education
Days/Hours: New consults/visits on Wednesday and Thursday evening. Return visits Mondays - Fridays 8:00AM - 5:00PM

UTAH

Down Syndrome Clinic
Affiliation: Primary Children's Medical Center
Address: Primary Children's Medical Center Outpatient Department
100 North Mario Capecchi Drive
Salt Lake City, UT 84113-1100
Contact: Elaine Atkinson, R.N.
Phone: 801-662-1600
Ages Served: Pediatric
Geographic area served: Utahand Southern Idaho and Western Wyoming
Taking new patients? Yes
Focus of clinic? Primary medical care, Evaluation, Education
What services are provided? We are primary care referral clinic. We do not assume care of the patients but rather do evaluations and make recommendations to their individual primary care physicians. We often see patients more than once-often at times of transition: infants, toddlers, pre-school, school age, adolescents. Audiometry is offered at our clinic as well as lab work if needed or medical imaging if needed. An early intervention specialist and a child life specialist are also part of the clinic. The patient meets with the physician for 45 minutes and with the other specialist for 45 minutes.
Days/Hours: Fourth Tuesday of the month from 9:00AM - 12:00PM
VIRGINIA

Developmental Pediatrics
Affiliation: Children's Hospital of the King's Daughters, Eastern Medical Center
Address: 100 Constitution Drive, Suite 217 Virginia Beach, VA 23462
Website: www.chkd.org
Contact: 757-961-0169
Ages Served: Pediatric (birth – 18)
Geographic Area Served: Southeastern Virginia, northeastern North Carolina
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, evaluation, mental health services, behavior
Services: Developmental pediatric evaluation and management
Days/Hours: Mondays – Fridays, 8:00AM - 4:00PM
WISCONSIN

Down Syndrome Clinic
Affiliation: Gundersen Lutheran
Address: 1900 South Avenue Lacrosse, WI 54601
Contact: Julie Holzwarth (adult), Kevin Josephson (pediatric)
Phone: 608-775-2789 (adult clinic) 608-775-2771
Ages Served: All
Geographic Area Served: Western Wisconsin, northeast Iowa, southeast Minnesota
Taking New Patients: Yes
Focus of Clinic: Specialty medical care, evaluation, behavior
Services: (Adult) Internal medicine, medical genetics, neuropsychology testing, cardiology, nutrition, speech and language, social work, gynecology, audiology, other specialists available medical genetics, developmental pediatrics, audiology, speech and language, nutrition, genetic counseling and social work, referrals and possible inclusion on clinic days
Days/Hours: 4 two-day adult clinics each year; currently one pediatric clinic day every other month

Down Syndrome Clinic of Wisconsin
Affiliation: Children's Hospital of Wisconsin
Address: CHW Down Syndrome Clinic 9000 West Wisconsin, PO Box 1997 MB140, Milwaukee, WI 53201-1997
Contact: Terri Couwenhoven, MS - Clinic Coordinator
Phone: 414-266-6259
Ages Served: All
Geographic Area Served: Wisconsin - some patients from out of state
Taking New Patients: Yes (do NOT provide primary care)
Focus of Clinic: Specialty medical care
Services: Full physical; lab, x-ray; care coordination (time limited for more complex patients (research; community and professional education; I and R (for families and doctors); family advisory committee
Days/Hours: Every 1st or 2ndThursday of each month