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Parent and Family Resource List
 
Organizations and Websites

 

Access to Respite Care and Help (ARCH)

The Chapel Hill Training-Outreach Project

800 Eastowne Drive, Suite 105

Chapel Hill, NC 27514

Telephone: 800-473-1727 or 800-773-5433

Website: http://chtop.org/ARCH.html

 

Candlelighters Childhood Cancer Foundation (support for parents of children with cancer)

P.O. Box 498 

Kensington MD 20895

Telephone: 800-366-2223

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.candlelighters.org

 

 

Compassionate Friends (grief support after the death of a child)

P.O. Box 3696

Oak Brook, IL  60522-3696

Telephone: 630-990-0010 or 877-969-0010

Fax: 630-990-0246

Website: www.compassionatefriends.org

 

D.A.D.S. (Dads Appreciating Down Syndrome)

P.O. Box 88346

Indianapolis, IN 46208

Telephone: 888-989-9255

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.dadsnational.org

 

Downsed Online

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.downsed.org

 

Family Village Online

www.familyvillage.wisc.edu

  

Little Hearts (support for parents of children with heart defects)

P.O. Box 171

110 Court Street, Suite 3A

Cromwell, CT 06416

Telephone: 866-435-4673

Website: www.littlehearts.org

 

    

Mended Little Hearts (support for parents of children with heart defects)

7272 Greenville Avenue

Dallas, Texas 75231

Telephone: 888-432-7899

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.mendedhearts.org

    

MUMS: National Parent to Parent Network

150 Custer Court

Green Bay, WI 54301

Telephone: 877-336-5333 or 920-336-5333

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.netnet.net/mums

 

National Family Caregivers Association

10400 Connecticut Avenue, Suite 500

Kensington, MD 20895-3944

Telephone: 800-896-3650

Fax: 301-942-2302

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.thefamilycaregiver.org

 

National Fathers Network

The Kindering Center

16120 NE 8th Street

Bellevue, WA 98008-3937

Telephone: 206-747-4004

Fax: 425-747-1069

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.fathersnetwork.org

 

National Organization of Mothers of Twins Clubs

2000 Mallory Lane, Suite 130-600

Franklin, TN  37067-8231

Telephone: 248-231-4480

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.nomotc.org

 

Parent Advocacy Coalition for Educational Rights (PACER Center)

8161 Normandale Blvd.

Bloomington, MN 55437

Telephone: 952-838-0190 or 888-248-0822

Fax: 952-838-0199

Website: www.pacer.org

 

Sibling Support Project

6512 23rd Avenue NW, #213

Seattle, WA 98117

Telephone: 206-297-6368

Fax: 509-752-6789

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.siblingsupport.org

  

Specialized Training of Military Parents (STOMP)

Washington PAVE – STOMP Project

6316 South 12th Street

Tacoma, WA 98465

Telephone: 253-565-2266 or 800-572-7368

Fax: 253-566-8052

E-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.stompproject.org

 

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

Telephone: 800-644-2666

Fax: 510-848-4445

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.lookingglass.org

 

¡Uno Mas! 

40485 Murrieta Hot Springs Road #207

Murrieta, CA 92563

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.unomas21.com

     
 
Books for Parents and Families
 

Baskin, A. and Fawcett, H. More Than a Mom: Living a Full and Balanced Life When Your Child Has Special Needs.  Bethesda, MD: Woodbine House (2007). www.woodbinehouse.com

 

Marshak, L. and Pollack Presant, F.  Married with Special-Needs Children: A Couples' Guide to Keeping Connected. Bethesda, MD: Woodbine House (2007). www.woodbinehouse.com

 

Meyer, D. (Ed.) Uncommon Fathers: Reflections on Raising a Child with a Disability. Bethesda, MD: Woodbine House (1995). www.woodbinehouse.com

 

Pueschel, S. M. A Parent's Guide to Down Syndrome: Toward a Brighter Future. Second Edition. Baltimore, MD: Brookes (2002). www.brookespublishing.com
 
Rector, L. Supporting Siblings and Their Families During Intensive Baby Care. Baltimore, MD: Brookes Publishing (2007).  http://www.brookespublishing.com
 
Skallerup, Susan J. (Ed.)  Babies with Down Syndrome: A New Parents’ Guide. Third Edition. Bethesda, MD: Woodbine House (2008). www.woodbinehouse.com

 

  

 

Soper, K. (Ed.) Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives. Bethesda, MD: Woodbine House (2007). www.woodbinehouse.com

 

Soper, K. (Ed.) Gifts 2: How Children with Down Syndrome Enrich the World. Bethesda, MD: Woodbine House (2009). www.woodbinehouse.com