| Parent and Family Support Resource List |
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Organizations and Websites
Access to Respite Care and Help (ARCH)
The
800 Eastowne Drive, Suite 105
Telephone: 800-473-1727 or 800-773-5433
Website: http://chtop.org/ARCH.html
Compassionate Friends (grief support after the death of a child)
P.O. Box 3696
Telephone: 630-990-0010 or 877-969-0010
Website: www.compassionatefriends.org
D.A.D.S. (Dads Appreciating Down Syndrome)
P.O. Box 88346
Telephone: 888-989-9255
Email:
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Website: www.dadsnational.org
Downsed Online
Email:
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Website: www.downsed.org
Mended Little Hearts (support for parents of children with heart defects)
7272 Greenville Avenue
Dallas, Texas 75231 Telephone: 888-432-7899
Email:
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Website: www.mendedhearts.org
MUMS: National Parent to Parent Network
150 Custer Court
Telephone: 877-336-5333 or 920-336-5333
Email:
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Website: www.netnet.net/mums
National Family Caregivers Association
10400 Connecticut Avenue, Suite 500
Telephone: 800-896-3650
Fax: 301-942-2302
Email:
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Website: www.thefamilycaregiver.org
National Fathers Network
The
16120 NE 8th Street
Telephone: 206-747-4004
Fax: 425-747-1069
Email:
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Website: www.fathersnetwork.org
National Organization of Mothers of Twins Clubs
2000 Mallory Lane, Suite 130-600
Telephone: 248-231-4480
Email:
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Website: www.nomotc.org
Parent Advocacy Coalition for Educational Rights (
8161 Normandale Blvd.
Telephone: 952-838-0190 or 888-248-0822
Fax: 952-838-0199
Website: www.pacer.org
Sibling Support Project
6512 23rd Avenue NW, #213
Telephone: 206-297-6368
Fax: 509-752-6789
Email:
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Website: www.siblingsupport.org
Specialized Training of Military Parents (STOMP)
6316 South 12th Street
Telephone: 253-565-2266 or 800-572-7368
Fax: 253-566-8052
E-mail:
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Website: www.stompproject.org
Through the Looking Glass
2198 Sixth Street, Suite 100
Telephone: 800-644-2666
Fax: 510-848-4445
Email:
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Website: www.lookingglass.org
¡Uno Mas!
40485 Murrieta Hot Springs Road #207
Email:
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Website: www.unomas21.com
Books for Parents and Families
Pueschel, S. M. A Parent's Guide to Down Syndrome: Toward a Brighter Future. Second Edition.
Rector, L. Supporting Siblings and Their Families During Intensive Baby Care.
Skallerup, Susan J. (Ed.) Babies with Down Syndrome: A New Parents’ Guide. Third Edition.
Soper, K. (Ed.) Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives.
Soper, K. (Ed.) Gifts 2: How Children with Down Syndrome Enrich the World.
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