Congratulations on the birth, or expected birth, of your baby! We understand that your baby may have Down syndrome. You probably have many questions, concerns and fears right now. That’s okay.

The most important thing to keep in mind is that this diagnosis is not as “life changing” as the fact that you have a new baby. And in most ways, your baby will be just like other infants. Every baby needs to be fed, held and most of all, loved.

There will be challenges in raising your child, but there will also be many, many joys. It’s normal to be nervous about what lies ahead, but remember that Down syndrome is a condition your baby has, it is not who your baby is. Now is the time to begin learning all you can about Down syndrome and this website is a great place to start.

Where should I go from here?

• If you would like to speak with someone from a local parent group in your area, click here to find the group nearest you.
• If you would like to speak to an information specialist at the National Down Syndrome Society (Monday-Friday from 9am to 5pm EST) call 1-800-221-4602.
• Click Here to watch the NDSS new parent video, A Promising Future Together: A Guide for New Parents of Children with Down Syndrome. This video features families discussing different stages in their children’s lives, as well as developmental pediatricians and other professionals giving information about medical, social and educational issues for families of children with Down syndrome. The video covers early intervention, local and national resources and health care screenings that can help their children achieve their full potential.
• Click Here to download a PDF version of the NDSS new parent package A Promising Future Together: A Guide for New Parents of Children with Down Syndrome, or call 1-800-221-4602 to order a complimentary copy of this publication in English or Spanish.
• Click Here for Brighter Tomorrows, a web-based resource on receiving a diagnosis of Down syndrome prenatally or at birth. This cost-free site provides answers to questions that families and prospective parents may have at this critical moment in their lives. In both English and Spanish.
• Or choose from one of the following sections of this website to learn more about how to help you, your family and your baby get off to the best start possible:

About Down Syndrome

Understanding a Diagnosis of Down Syndrome

A Healthy Start

Early Intervention

Finding Support

A Parent's Perspective

Promising Future Together Video

Parent & Family Resource List

Caring For Your Family