Participants in the NDSS DS-AMBASSADOR® Program are valued volunteers, yet do not receive compensation for their services. The estimated minimum time commitment is 2-4 hours per month.

Expectations of participants in the NDSS DS-AMBASSADOR® Program:

  • Establish positive relationships with the Senators and Representatives (and their staff) who represent their state in the US Congress
  • Build a network of grassroots advocates within their state and local context
  • Encourage local affiliates and advocates to support national legislative efforts that are beneficial to the Down syndrome community by making calls, sending e-mails and meeting with elected officials at critical points in time
  • Gather input from local affiliates and advocates regarding NDSS’ advocacy efforts, programs and key initiatives
  • Partner with NDSS on special assignments to advance the organization’s advocacy efforts
  • Make all efforts to attend the annual Buddy Walk® on Washington (a limited number of scholarships are available)
  • Consider participating in or supporting the development of a Down syndrome policy network in your state
  • Help to expand the number of participants in the NDSS DS-AMBASSADOR® Program in their state by sharing information and inviting qualified advocates to join the program
  • Demonstrate support for NDSS in dealings with legislators, advocates, the public and on social media
  • Conduct all Ambassadorial responsibilities and communications with professionalism and respect for all parties involved
  • Participants in the NDSS DS-AMBASSADOR® Program are solely volunteers of NDSS, and shall not use the name NDSS DS-AMBASSADOR® Program on emails and social media, or otherwise represent themselves as speaking on behalf of NDSS unless authorized by NDSS to do so

Expectations of NDSS to participants in the NDSS DS-AMBASSADOR® Program:

  • Organize quarterly business phone calls to provide legislative and program updates
  • Offer tools needed for successful advocacy including talking points and templates for meeting requests, press releases and letters to the editor
  • Host the annual two-day Buddy Walk® on Washington conference and advocacy training
  • Issue Advocacy Alerts regarding priority issues
  • Provide e-newsletters every other month featuring important information and happenings at NDSS and in the Down syndrome community
  • Provide free educational webinars conducted by NDSS and other national experts on topics related to Down syndrome such as health, education, research and family life
  • Facilitate relationships among advocates for information sharing and support
  • Respond to requests via e-mail and phone for guidance and advice on pursuing legislative initiative

NDSS DS-AMBASSADOR® Program Business Calls

NDSS holds quarterly webinars for participants in the NDSS DS-AMBASSADOR® Program to provide legislative and program updates. Slides and recordings from the webinars are e-mailed to participants and posted on the program’s Facebook page. If you are a participant in the program and need the information to be present, please contact the NDSS Advocacy and Public Policy Team at policy@ndss.org.