The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017

Research Innovation & Discovery Fund (The Fund)

The National Down Syndrome Society (NDSS) established the NDSS Research Innovation & Discovery Fund (The Fund) in 2013. The Fund supports research and clinical infrastructure needs for the Down syndrome scientific and research community by funding strategic priorities and initiatives that help advance the biomedical research field in Down syndrome. The goal of The Fund is to improve the health outcomes, increase the quality and access to care and develop new therapies and treatments for all people with Down syndrome by funding priorities focused on advancing scientific and research needs of the Down syndrome research community. Since 2013, NDSS has raised over $200,000 for The Fund.

Since 1979, NDSS has been dedicated to making a difference for people with Down syndrome. As the largest nonprofit representing individuals with Down syndrome and their families in the US, our mission is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The Fund plays a vital role in helping us accomplish our mission by directly supporting critical research and clinical infrastructure needs for the entire Down syndrome community. The Fund helps our organization fund strategic priorities and initiatives that help advance the biomedical research field in Down syndrome and will continue to do so for years to come.  

Ways to Donate to the NDSS Research Innovation & Discovery Fund


Online donations to NDSS are easy and secure. Make an online donation.

By Phone

Please call the toll-free NDSS helpline at 800-221-4602, Monday - Friday, 9am-5pm Eastern time to make a donation by phone.

By Mail or Fax

Please download the donation form and enclose with your donation. Mail or fax the completed form to:

National Down Syndrome Society

8 E. 41st St, 8th Floor

New York, NY 10017

Fax: 212-979-2873

NDSS Caring with Congress Event

Each year, NDSS hosts Caring with Congress, an annual Washington, DC-based event, to raise funds to support the Research Innovation & Discovery Fund. The 12th Annual Caring with Congress will be held on Wednesday, July 13, 2016 from 5:30 - 7:30 PM at the Eastern Market, North Hall, 225 7th Street SE, Washington, DC. If you have any questions regarding this year's event, please email Kandi Pickard at

A special thanks to our 2015 Caring with Congress corporate sponsors:

Gold Sponsor


Premier Sponsor

Advanced Medical Technology Association
Independent Insurance Agents & Brokers of America, Inc.

Supporting Sponsor

Annapolis Yacht Sales
Arnold & Porter LLC
Koch Industries
National Association of Realtors


American Financial Services Association
Biotechnology Industry Organization
Chubb Group of Insurance Companies
Darren Willcox
The Council of Independent Insurance Agents & Brokers
National Association of Mutual Insurance Companies
Rite Aid 
The Walt Disney Company

Friends of NDSS


Check out pictures from our 2014 Caring with Congress event here.  

*Please note, the National Down Syndrome Society is a registered 501(c)(3) nonprofit organization. All donations of $250 or more will receive a letter of acknowledgment for tax purposes. For donations under $250, your cancelled check or credit card statement serve as your receipt.


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