The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
[email protected] 

Research Innovation & Discovery Fund (The Fund)

The National Down Syndrome Society (NDSS) established the NDSS Research Innovation & Discovery Fund (The Fund) in 2013. The Fund supports research and clinical infrastructure needs for the Down syndrome scientific and research community by funding strategic priorities and initiatives that help advance the biomedical research field in Down syndrome. The goal of The Fund is to improve health outcomes, increase the quality and access to care and develop new therapies and treatments for all people with Down syndrome. Since 2013, NDSS has raised over $200,000 for The Fund.

Since 1979, NDSS has been dedicated to making a difference for people with Down syndrome. As the largest nonprofit representing individuals with Down syndrome and their families in the US, our mission is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The Fund plays a vital role in helping us accomplish our mission by directly supporting critical research and clinical infrastructure needs for the entire Down syndrome community.  

Ways to Donate to the NDSS Research Innovation & Discovery Fund


Online donations to NDSS are easy and secure. Make an online donation.

By Phone

Please call the toll-free NDSS helpline at 800-221-4602, Monday - Friday, 9am-5pm Eastern time to make a donation by phone.

By Mail or Fax

Please download the donation form and enclose with your donation. Mail or fax the completed form to:

National Down Syndrome Society
8 East 41st St, 8th Floor
New York, NY 10017

Fax: 212-979-2873

Please note, the National Down Syndrome Society is a registered 501(c)(3) nonprofit organization. All donations of $250 or more will receive a letter of acknowledgment for tax purposes. For donations under $250, your cancelled check or credit card statement serve as your receipt.

NDSS Caring with Congress Event

Each year, NDSS hosts Caring with Congress, a Washington, DC-based event, to raise funds to support the Research Innovation & Discovery Fund. The 12th Annual Caring with Congress was held on Wednesday, July 13, 2016, from 5:30 - 7:30 PM at Eastern Market, North Hall, 225 7th Street SE, Washington, DC. See pictures from the 2016 Caring with Congress event hereIf you have any questions regarding this event, please email Kandi Pickard at [email protected].

A special thanks to our 2016 Caring with Congress corporate sponsors:

Gold Sponsors

Advanced Medical Technology Association
Pharmaceutical Research and Manufacturers of America

Premium Sponsor


Supporting Sponsors

Federated Investments
Independent Insurance Agents and Brokers of America
Koch Industries
National Association of Realtors
National Association of Mutual Insurance Companies
New York Life
Rite Aid


American Financial Services Association
Biotechnology Innovation Organization
Council of Insurance Agents and Brokers
The Walt Disney Company
Investment Company Institute
Darren Willcox

Friends of NDSS

Brinker International
K&L Gates
Prudential Financial

  • Buddy Walk
  • NDSS Yourway
  • NDSS DS-Ambassadors