NDSS provides free educational webinars to anyone who is interested in learning more about Down syndrome and related topics, such as health, education, research and family life.
Below is a list of past NDSS webinars. Information from each webinar is posted after the presentation.
Transitioning with Technology
February 22, 2017 at 1:00PM ET
Presenter: Sean Smith, University of Kansas
This presentation will focus on technology-based solutions for the adult with DS facing the demands of living and working in the 21st century. With the explosion of apps, devices, web-based technologies, and similar innovations, individuals, their families, and their caregivers have a variety of options from which to consider and employ. This session will explore the solutions through various demands that the home, workplace, post-secondary educational environment, and community place on the adult with DS. Participants will leave with a list of apps, skills to find the right ones, and tools to use when they return home to further empower individuals in their varied environments.
MANAGING YOUR ABLE ACCOUNT TO HELP REACH YOUR GOALS
February 16, 2017 at 2:00 PM ET
Presenter: David Bell, Outreach Director for ABLE for ALL Savings Plan
ABLE Accounts can be a strong tool in reaching your life goals. The ABLE for ALL Savings Plan will provide tips and tricks to help you best manage your ABLE Account for a strong and secure future. Join David Bell, Outreach Director for ABLE for ALL Savings Plan, as he demystifies this important tool.
NDSS PRESENTS THE GRASSROOTS ADVOCACY TOOLKIT
February 8, 2017 at 1:00 PM ET
Presenters: NDSS VP Advocacy & Public Policy and Jawanda Mast, NDSS Manager of Grassroots Advocacy
Advocacy, simply stated, is using your voice to effect change. To help you to have the tools to effectively use your personal story to impact public policy change, the National Down Syndrome Society (NDSS) has created the NDSS Grassroots Advocacy Toolkit. This webinar will provide an overview of the tools NDSS provides to help you to be an effective advocate. NDSS is the leading advocacy organization for individuals with Down syndrome and their families in the U.S. with a very large and effective grassroots network of committed, active and passionate volunteer advocates. The backbone of NDSS comprehensive grassroots advocacy efforts is the NDSS DS-AMBASSADOR® Program. During this webinar you will learn how individuals become NDSS DS-AMBASSADOR® Program participants and how the NDSS DS-AMBASSADOR® Program, NDSS State Advocacy Networks, NDSS Advocacy Alerts, social media, self-advocates, family members, affiliate leaders and local members are all critical, interrelated components of the Down syndrome grassroots advocacy movement. Even if you have never been involved in advocacy before, join us and learn how you and NDSS can work together to make a difference for people with Down syndrome.
EVERY STUDENT SUCCEEDS ACT: A THREE-PART SERIES BY DSAIA, NDSC AND NDSS
INCLUSION THROUGH INNOVATION
January 25, 2017
Presenter: Sean Smith, University of Kansas
Often times, efforts to include ALL students center on the place and not the interventions that are required to meet the diverse learning needs of ALL learners, especially those with DS. The presentation will focus on technology innovation that is altering ways we can achieve meaningful inclusion. This session will answer the question, “Is there an app for that?” but will also consider whether an app is needed, what the right app would be, how to select it, and how to find the right app. Innovations relevant to the preschool child as well as the student transitioning to the post-secondary environment and/or the workplace will be presented.
ABLE 101: HOW THIS NEW SAVINGS TOOL CAN WORK FOR YOU!
December 14, 2016
Presenters: Sara Weir, NDSS President and the NDSS VP of Advocacy & Public Policy
Achieving a Better Life Experience (ABLE) accounts are finally available and are a useful savings tool for individuals with disabilities to accumulate funds for college, job training, transportation, health care and pay for many other expenses without jeopardizing their eligibility for federal public benefits. The National Down Syndrome Society (NDSS), one of the leading national disability organizations in the ABLE effort, will provide a primer on how ABLE accounts work. Topics will include eligibility for an ABLE account, how ABLE funds can be used and the impact on federal benefits such as Supplemental Security Income (SSI) and Medicaid. Be ready to learn the ins and outs of ABLE accounts and to feel confident to open an ABLE account as soon as possible!
NDSS #DSWORKS® WEBINAR SERIES: CELEBRATING #NATIONALENTREPEURSHIPMONTH: A DISCUSSION ON THE POSSIBILITY AND OPTIONS OF SELF-EMPLOYMENT
November 28, 2016
Presenters: Boaz Nelson Santiago, Co-Founder of Picasso Einstein
The #DSWORKS® November webinar celebrates #NationalEntrepreneurshipMonth with Boaz Nelson Santiago of Picasso Einstein. Picasso Einstein trains individuals & families with disabilities how to create a simple & meaningful job through self-employment and simultaneously, provide awareness to the general public and disability community as to the viability of self-employment, so that self-employment is always explored as an option, no matter the disability or the perceived impairment.
CROSSING THE LINE: UNDERSTANDING BOUNDARIES
November 10, 2016
Presenter: Jessica Naslund LCSW, CSE, President, Empowered: A Center for Sexuality, LLC
Understanding boundaries is key in living a healthy, successful life. It is imperative that family and other support staff have training in helping people know what the boundaries are as well as how to advocate for personal boundaries. Without this information, people with down syndrome can be subject to a host of unsafe interactions. This webinar provides information about how to explain and teach people to advocate for boundaries.
HEALTHY SEXUALITY AND RELATIONSHIPS: A PARENT'S ROLE
Thursday, November 3, 2016
Presenter: Jessica Naslund LCSW, CSE, President, Empowered: A Center for Sexuality, LLC
Knowing what to say and how to say it can be a huge task when it comes to discussing sexuality and relationships. This webinar addresses sexuality and healthy relationships throughout the lifespan. The facilitator shares tools and techniques for making this conversation more comfortable for everyone.
NDSC-NDSS WEBINAR: USING ESSA FOR IMPROVED IDEA IMPLEMENTATION
October 25, 2016 at 1:00 PM ET
As part of the joint education collaboration between the National Down Syndrome Society and the National Down Syndrome Congress, NDSC Senior Education Policy Advisor Ricki Sabia and the NDSS VP of Advocacy & Public Policy will do a joint webinar on the Every Student Succeeds Act and grassroots advocacy for education reform. The webinar will include a discussion regarding why ESSA is important for IDEA implementation.
NDSS #DSWORKS® WEBINAR SERIES: EMPLOYMENT FIRST OPPORTUNITIES
October 18, 2016 at 2:00 PM ET
Presenters: Richard Davis, Policy Advisor, ODEP/USDOL; Andy Arias, Policy Advisor, ODEP
The #DSWORKS® webinar, “Employment First Opportunities” discusses what is ODEP's Employment First Program, how Employment First can benefit the Down syndrome community and opportunities to participate in ODEP's Employment First. This webinar is intended to educate families, educators, employers, and people with Down syndrome on what Employment First is and how they can get involved in Employment First in their state. During the webinar, Richard Davis and Andy Arias will share their knowledge as Policy Advisors at Office of Disability Employment Policy.
NDSS #DSWORKS® WEBINAR SERIES: ENGAGING ALLIES: HOW FAMILIES AND MENTORS CAN SUPPORT SUCCESSFUL TRANSITION TO EMPLOYMENT
September 29, 2016 at 2:00 PM ET
Presenters: Erin Riehle, RN, MSN, Project SEARCH Founder & Director
The #DSWORKS® webinar, “Engaging Allies: How Families and Mentors Can Support Successful Transition to Employment” covers a wide range of topics including important work skills and social skills to increase likelihood of employment, predictors of job success and parental barriers to transition. This webinar is intended to educate families and educators on skills a person with Down syndrome needs in order to be successful in the workforce. During the webinar, Erin Riehle will share her knowledge as founder and Senior Director of Project SEARCH, an employment and transition program that has received national recognition for innovative practices.
#DSVOTES: NATIONAL VOTER REGISTRATION DAY WITH SELF-ADVOCATES BECOMING EMPOWERED (SABE)
Tuesday, September 27 at 1:00 PM Eastern Time
The NDSS Self-Advocate Advisory Board has developed a partnership with the national self-advocacy organization Self-Advocates Becoming Empowered (SABE) on the very important issue of voting. SABE’s National Technical Assistance Center for Voting and Cognitive Access helps protection and advocacy systems, election officials and people with disabilities to make voting accessible for all citizens.
The Center is managed and operated by leaders in the self-advocacy movement. Check out their website for resources: http://www.sabeusa.org/govoter
This webinar is intended for self-advocates (individuals with Down syndrome who advocate for themselves and others) who wish to learn about the voting process.
STABLE ACCOUNTS: OHIO'S NATIONAL ABLE PLAN
June 27, 2016
Presenters: Juliana Crist, STABLE Account Director, Ohio Treasurer's Office and the NDSS Vice President of Advocacy & Public Policy
On June 1st, 2016 Ohio launched the nation's first ABLE program, STABLE Accounts. STABLE Accounts are available to citizens with disabilities across the country. Join the NDSS Vice President of Advocacy & Public Policy, and Juliana Crist, STABLE Account Director, Ohio Treasurer's Office, for an overview of the current national landscape and a discussion about how the Ohio's STABLE accounts work, how to set one up, how you can invest your money, and more.
#DSWORKS® WEBINAR SERIES: VALUED, ABLE & READY TO WORK WITH SELF-ADVOCATE DAVID EGAN
Thursday, June 16, 2016
Presenters: David Egan, Joseph P. Kennedy Jr. Public Policy Fellow; Vanessa Quick, NDSS Director of Programming & Community Outreach
This presentation, the first in a series of topics related to employment and NDSS' #DSWORKS® campaign, will be based on the new NDSS resource, Valued, Able & Ready to Work: Employing Individuals with Down Syndrome, which is intended to educate employers on hiring people with Down syndrome. During the webinar, the presenters will highlight key elements of the resource guide. In addition, David Egan who played a key role in the development of the guide, will share his experiences as a person with Down syndrome who has been competitively employed for more than twenty years.
#DSWORKS® WEBINAR SERIES: INTRO TO #DSWORKS
Wednesday, June 1, 2016
Presenters: Sara Hart Weir, NDSS President; NDSS Vice President of Advocacy & Public Policy; NDSS Director of Programming & Community Outreach
The first in series of topics related to employment and NDSS' #DSWORKS® campaign, this webinar will provide a comprehensive overview of the campaign. The #DSWORKS® campaign is designed to educate the general public about how individuals with Down syndrome are employable and should be included in all aspects of the workforce, to encourage corporations and businesses to invest in hiring people with Down syndrome and to increase the number of opportunities for individuals with Down syndrome to work in meaningful and competitive employment settings. NDSS will accomplish these goals by creating comprehensive resources for employers, families and local Down syndrome organizations focused on employment; advancing a wide-ranging federal and state legislative agenda to break down barriers to employment while creating meaningful employment opportunities for individuals with Down syndrome through all sectors; and launching an NDSS Corporate Roundtable focused on national and local corporations and businesses who are committed to joining forces with NDSS to hire individuals with Down syndrome.
ADOPTING A CHILD WITH DOWN SYNDROME
Wednesday, April 20, 2016
Presenter: Stephanie Thompson, Director of the National Down Syndrome Adoption Network
This webinar will introduce the work of the National Down Syndrome Adoption Network, which maintains a registry of families who want to adopt a child with Down syndrome within the United States. The National Down Syndrome Adoption Network provides information to birth families who may be seeking alternatives to parenting as they prepare for the arrival of their child, provides support to families who wish to adopt a child with Down syndrome, and provides a link for agencies that are seeking adoptive families to provide loving homes for children with Down syndrome of all ages. During the webinar, Stephanie Thompson, Director of the National Down Syndrome Adoption Network, will explain the adoption process and what it takes to become an adoptive family.
TREATING COMMON FOOT CONDITIONS IN TEENS TO ADULTS WITH DOWN SYNDROME
March 2, 2016
Presenter: Roberta Nole, MA, PT, CPed
The Quadrastep Foot Typing System can be an effective approach to identify Foot Types of teens to adults with Down syndrome to determine effective orthotic treatment for a variety of symptoms, including poor balance, gait, flat feet, high arches, in toeing and others.
Roberta Nole, MA, PT, CPed is owner of Stride™, Inc. Custom Foot Orthotics, Stride Physical Therapy & Pedorthic Center, and Nolaro24, LLC in Middlebury, CT. Ms Nole is the inventor of the 24 foot-typing algorithm that is the basis of THE QUADRASTEP SYSTEM. She developed the educational training program entitled Clinical Analysis of 24 Adult Foot Types. She lectures nationally and is a published author on this subject.
Ms. Nole has treated many patients at Stride, including children and adults with Down syndrome.
View Webinar Slides
HOW EARLY INTERVENTION IN PEDIATRIC FOOT CARE CAN IMPROVE QUALITY OF LIFE IN CHILDREN (TOTS TO TEENS) WITH DOWN SYNDROME
February 17, 2016
Presenter: Dr. Louis DeCaro, DPM
Dr. Louis DeCaro, DPM, discussed the growing pediatric foot, and how orthotics, often prefabricated, can offer a simple treatment to play an important role in quality of life for tots to teens with Down syndrome.
Dr. DeCaro has a large Podiatric practice in West Hatfield, MA, specializing in Podopediatrics (treatment of children), where his patients include children with Down syndrome. He is President of ACFAP, the American College of Foot & Ankle Pediatrics and a partner of Nolaro24, maker of littleSTEPS® Foot Orthotics for Kids. He is also a leading authority and popular speaker on Podopediatrics, and is a widely published author.
View Webinar Slides
Learn more about littleSTEPS® Foot Orthotics for Kids
Learn more about Nolaro24
ESTATE AND FINANCIAL PLANNING FOR THE DOWN SYNDROME COMMUNITY: THE ESSENTIALS
January 21, 2016 at 1:00PM ET
Presenters: Joseph Gentile, JD and Bryan Davis, JD
The second in a series on Estate and Financial Planning for the Down syndrome Community, this webinar will be an overview of this expansive topic, with emphasis on:
A) The pros and cons of common estate planning strategies for parents of children with special needs.
B) Why proper Estate Planning is necessary to providing the best possible quality of life for your child when you are gone.
C) The importance of addressing these issues sooner rather than later.
ESTATE AND FINANCIAL PLANNING FOR THE DOWN SYNDROME COMMUNITY: SPECIAL NEEDS TRUSTS
December 22, 2015 at 1:00PM ET
Presenter: Ken Shulman, Esq., Day Pitney LLP Boston
The first in a series on Estate and Financial Planning for the Down syndrome Community, this webinar will focus on the importance of achieving and maintaining eligibility for public benefits for individuals with Down Syndrome and the utilization of Special Needs Trusts to preserve that eligibility. The presentation will include a discussion of the basic benefits that are available, their eligibility criteria and the complexities of establishing and administering Special Needs Trusts. This area of the law abounds with traps for those who fail to educate themselves and those who fail to consult with competent legal and financial advisers.
Ken is the co-author of the widely acclaimed book, Managing a Special Needs Trust: A Guide for Trustees.
DS-CONNECT® - A RESOURCE FOR THE DOWN SYNDROME COMMUNITY
October 22, 2015
Presenters: Melissa Parisi, MD, PhD and Sujata Bardhan, PhD of the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), National Institutes of Health (NIH)
DS-Connect® is a centralized registry resource to better understand the health characteristics and needs of people with Down syndrome. The purpose of DS-Connect® Registry is to store health and other basic information about people with DS in a secure online format.
It is a powerful resource where people with Down syndrome and their families can:
- Take confidential health-related surveys. These surveys are aimed at better understanding of the health of people with Down Syndrome across their lifespans.
- Document growth measurements
- Print out a child’s medical history
- Get access to healthcare guidelines
- Find out about research that impacts people with Down syndrome
- Connect with resources about Down syndrome
- Connect with researchers and health care providers.
- Express interest in participating in certain clinical studies on Down Syndrome, including studies of new medications and other treatments.
Learn more about DS-Connect: The Down Syndrome Registry.
21 YEARS WITH NDSS: A SELF-ADVOCATE’S CAREER WITH NDSS GOODWILL AMBASSADOR/OFFICE ASSISTANT CHRIS BURKE
September 30, 2015
Most people know Chris Burke as the actor who played Corky Thacher in TV's Life Goes On, but Chris’ career did not stop there. Hear from Chris as he shares his thoughts on his successful twenty year career, including tips for success in the workplace, the benefits of having a job and tips for employers on hiring self-advocates.
INCLUDING A SELF-ADVOCATE ON YOUR ORGANIZATION'S BOARD OF DIRECTORS
August 27, 2015
Presenter: David Egan, Joseph P. Kennedy Foundation Fellow
Join NDSS as we present self-advocate and Joseph P. Kennedy Foundation Fellow David Egan as he presents the webinar, Including a Self-Advocate on Your Board of Directors. David will speak from his wealth of experience, providing tips to organizations and sharing his successes.
EMPLOYMENT FIRST, EMPLOYMENT NOW
May 21, 2015
Presenter: Allison Wohl, Executive Director, Association of People Supporting Employment First
Over the past decade, the concept of Employment First – the idea that employment in integrated settings within the community should be the priority service option – has emerged in the disability field. Employment in the general workforce is the first and preferred outcome in the provision of publicly funded services for all working age citizens with disabilities, regardless of level of disability.
Learn more about the Association of People Supporting Employment First.
SOCIAL SECURITY BENEFITS FOR INDIVIDUALS WITH DOWN SYNDROME
April 23, 2015
Presenter: Deanna Power, Community Outreach Supervisor at Disability Benefits Center
Disability Benefits Center is an organization that specializes in providing information and assistance to people with disabilities who are interested in applying for Social Security benefits. They have hundreds of articles on various conditions that can qualify for disability benefits, FAQs on how to apply, and descriptions of what to expect throughout the entire application process. All of their services are 100% free to anyone interested.
Learn more about Disability Benefits Center.
WORLD DOWN SYNDROME DAY SPECIAL: LIVE WITH CHRIS BURKE!
March 19, 2015
In a special live video webinar presentation, Actor and NDSS Goodwill Ambassador Chris Burke will take questions from webinar participants about his role as an advocate for people with disabilities, his experiences as a TV star playing "Corky" on TV's Life Goes On and what he’s up to these days working as a member of the NDSS staff.
SUPPORT YOUR CHILD'S KINDERGARTEN THROUGH HIGH SCHOOL EDUCATION WITH NEW RESOURCES ALIGNED TO GRADE-LEVEL CONTENT
February 26, 2015
Presenter: Ricki Sabia, Senior Associate at edCount, LLC & Technical Assistance and Parent Training Specialist at the National Center and State Collaborative
This webinar provided participants with information about a federal grant project that has developed common alternate assessments for 24 states and instructional resources that can be used in any state. These resources are aligned to grade-level content, based on universal design for learning principles, and are publicly available on a wiki. They can be used by teachers and parents to improve math and English language arts instruction for students with Down syndrome.
NDSS FEDERAL AND STATE PRIORITIES
February 11, 2015
Presenters: Ginny Sessions, NDSS Manager of Grassroots & Development and the NDSS Director of State Government Affairs
This webinar provided an opportunity to learn more about NDSS' federal and state priorities presented by Ginny Sessions, NDSS Manager of Grassroots and Development Programs, and the NDSS Director of State Government Affairs.
THE ABLE ACT IS NOW THE LAW OF THE LAND – WHAT IS NEXT?
February 3, 2014
Presenters: Sara Hart Weir, NDSS President; Stuart Spielman, Autism Speaks Senior Policy Advisor and Council; Catherine Beck, Advocate and Wife of Late NDSS Vice Chairman Stephen Beck Jr.; Chip Gerhardt, NDSS Board Member and Chair of the NDSS National Government Affairs Committee; Ginny Sessions, NDSS Manager of Grassroots and Development Programs.
Join NDSS as we discuss implications for the Down syndrome community and what we all need to know now that the ABLE Act is law.
TAKING CHARGE OF MY HEALTH: PARTNERS IN HEALTH TRANSITION
December 16, 2014
Presenters: Mitchell Levitz, Marilyn Vitale and Katie Borras of the Westchester Institute for Human Development
The transition from pediatric to adult health care and services can be confusing and complicated for teens and young adults and their families. WIHD has developed a website to guide individuals and families through the various topics related to health transition, providing information and links to available resources. This webinar will review the various issues involved in health transition and show self-advocates and families how to use the website.
FINANCIAL PLANNING WITH HEART
November 19, 2014
Presenters: Simon Rogers, President/CEO of Basildon Financial
Join NDSS on Wednesday, November 19 at 1:00 PM ET as we present Financial Planning with Heart, a webinar presentation by Simon Rogers, President/CEO of Basildon Financial. During this presentation Simon will deliver information on special needs financial planning in plain English, answer all your questions, and empower you to make well informed financial choices.
(Investment Advisory services are offered through AlphaStar Capital Management LLC, a SEC Registered Investment Advisor. AlphaStar Capital Management, LLC and Basildon Financial are independent entities. Basildon Financial does not offer legal or tax advice.)
THE NATIONAL DOWN SYNDROME SOCIETY’S (NDSS) ADVOCACY: THE VITAL ROLE OF THE NDSS DS-AMBASSADOR GRASSROOTS PROGRAM AND SOCIAL MEDIA TO ACHIEVE SUCCESS
October 30, 2014
Presenters: Ginny Sessions, NDSS Manager of Grassroots and Development
Learn about NDSS' approach to advocacy, the important role of NDSS DS-Ambassador Program and other grassroots programs with the combined with social media and marketing outreach for achieving advocacy success.
The National Down Syndrome Society (NDSS) advocacy outreach has grown over the last two years into a one of a kind model that combines social media, marketing, and parent and self-advocate volunteers to help promote education, inclusion and welcoming of individuals with Down syndrome in our communities. The combination of a social media and marketing plan with a grassroots program is key to not only advocacy achievement but to provide important resources for education and inclusion. Part of this combination for NDSS is The NDSS DS-Ambassadors Program. NDSS DS-Ambassadors are advocate volunteers to taking part in the democratic process and serve as a liaisons between NDSS and their Congressional Delegations. NDSS DS-Ambassadors play a vital role to advocate for the NDSS’ legislative agenda including priorities like the Achieving a Better Life Experience (ABLE) Act, research funding and many more.
AN HOUR WITH RACHEL COLEMAN OF "SIGNING TIME!"
October 23, 2014
Presenters: Rachel Coleman of "Signing Time"
Please join the National Down Syndrome Society for a special Down Syndrome Awareness Month edition of the NDSS Webinar Series, An Hour with Rachel Coleman of “Signing Time!”, where you will have the opportunity to ask Rachel your questions about signing, parenting and everything in between!
Rachel Coleman is best known as the Emmy-nominated host and one of the creators of the children’s television show and DVD series, “Signing Time!” (http://www.signingtime.com) and its sister-series, “Baby Signing Time!” Inspired by her daughter Leah’s deafness, Signing Time teaches families to communicate through American Sign Language. Rachel’s newest project, “Rachel & The Treeschoolers,” takes on the ambitious task of teaching a full preschool curriculum in twelve musical episodes and activities.
Rachel is one in a million, statistically speaking. One-in-one thousand babies are born profoundly deaf, like her daughter Leah, and one-in-one thousand babies are born with the birth defect spina bifida like her daughter Lucy! Rachel shares her family’s unexpected adventures on her blog www.rachelcoleman.com. She is the President of the Signing Time Foundation a 501c3 (http://www.signingtime.com/foundation), an NDSS National Buddy Walk® Partner. The STF is dedicated to making sign language fun and accessible to all children, creating a world in which all children can express themselves and be understood, putting communication.
PROJECT LIFESAVER INTERNATIONAL & THE LIFE THREATENING BEHAVIOR OF WANDERING
September 24, 2014
Presenters: Gene Saunders, CEO & Founder Project Lifesaver International and Sara Weir, NDSS NDSS VP of Advocacy & Affiliate Relations
Please join NDSS and Project Lifesaver International for a timely and important webinar, "Project Lifesaver International and the Life Threatening Behavior of Wandering," presented by Gene Saunders, CEO & Founder Project Lifesaver International. During the webinar, NDSS VP of Advocacy & Affiliate Relations Sara Weir will provide background information and an update on NDSS’ work with the US Justice Department on developing a law enforcement training program for working with individuals with disabilities.
Project Lifesaver International is a non-profit organization that bridges the technological gap for “at risk” populations and public safety agencies, providing police, fire/rescue and other first responders with a comprehensive program including equipment and training to quickly locate and rescue “at risk” individuals with cognitive disorders who are at constant risk to the life threatening behavior of wandering including those with Alzheimer’s disease, Autism, and Down syndrome.
LEARN HOW TO PASS THE DOWN SYNDROME PRO-INFORMATION LAW IN YOUR STATE
July 28, 2014
Presenters: Sara Weir - NDSS VP of Advocacy & Affiliate Relations
Ginny Sessions – NDSS Manager of Grassroots & Development
Rick Kosmalski – NDSS Board Member; The NDSS DS-Ambassador from Delaware
– Down Syndrome Network of Montgomery County Board Member; NDSS DS-Ambassador from Maryland
Learn how to pass important the "Down Syndrome Pro-Information Law" in your state. Both Delaware and Maryland successfully enacted legislation focused on providing accurate, up-to-date, evidenced-based information on Down syndrome to women and families who undergo prenatal testing. Join this webinar to learn from our experienced advocates and NDSS DS-Ambassadors, Rick Kosmalski from Delaware, on their lessons learned and how they successfully passed legislation in their states. NDSS remains committed to supporting advocates and affiliates to enact this legislation across the country, which builds upon the federal law - the Prenatally and Postnatally Diagnosed Conditions Awareness Act (Public Law 110-374). This law was signed into law by President Bush in October 2008.
A SOLUTION FOR TEACHING BIKE RIDING TO PEOPLE OF ALL ABILITIES
June 26, 2014
Presenter: Dona Ochsner, Education Specialist, Strider Sports Int'l, Inc.
Too often people with special needs never learn how to ride a bike. However, with the right tools and training this trend can be reversed! Let’s create new riders by learning what a balance bike is and how to use it to teach balance required to ride a bike. In this webinar we explore the importance of teaching balance first and how a balance bike does just that. We also learn other solutions for using your existing bike if purchasing a balance bike is not an option.
DOWN SYNDROME PARENTING 101: MUST-HAVE ADVICE FOR MAKING YOUR LIFE EASIER
May 22, 2014
Presenter: Natalie Hale, Author, "Down Syndrome Parenting 101"
In this webinar, Natalie Hale guides us through a quick look at the cradle-to-independent-living book "Down Syndrome Parenting 101," which won the Best Special Needs Parenting Book of 2012 About.com Reader’s Choice Award. Along with highlighting some important "Parent Power Points."
Natalie is the mother of 29-year-old Jonathan, who has Down syndrome, ADHD, and ODD (Oppositional Defiant Disorder.) She is also an award-winning author, innovative educator, founder of the publishing house Special Reads for Special Needs, and for over 20 years, a national speaker on the topic of teaching reading to learners with Down syndrome and other developmental delays. She continues to teach parents and educators across the country through workshops and through her Facebook page, Down Syndrome Reading with Natalie Hale.
To order the book Down Syndrome Parenting 101:
On Amazon (paperback or Kindle editions): Down Syndrome Parenting 101
On Natalie's Site (paperback): Down Syndrome Parenting 101
“I CAN DO IT!”: WAYS TO GROW YOUR CHILD’S INDEPENDENCE
April 29, 2014
Presenter: Katie Bergeron Peglow
Katie Bergeron Peglow, PT, MS is a licensed Pediatric Physical Therapist with hands-on experience with many wonderful children who have special needs. When asked, “What is the thing you enjoy the most about helping parents or caregivers?” Licensed Pediatric Physical Therapist Katie Bergeron Peglow said: “It gives me great satisfaction to be able to learn about each child’s specific needs and find the best solution. I love finding adaptive equipment that helps each child be more independent!” Currently, Katie is the COO for Adaptivemall.com, the leading online pediatric adaptive equipment store. During this webinar, she will share her tips for properly using products that will help to grow a child’s independence.
Your Transition Questions Answered!
February 14, 2014
Presenter: Jo Ann Simons
A presentation and Q&A session on the transition planning process with expert Jo Ann Simons, author of The Down Syndrome Transition Handbook.
Empowering Individuals with Special Needs Through Music
February 20, 2014
Presenter: Daniela Clapp
During Empowering Individuals with Special Needs Through Music, Daniela Clapp, a piano teacher for individuals with special needs and mother of Christina, who has Down syndrome, demonstrates how to use the power of music to be your child's greatest advocate and teacher, even if you have no musical background.
SHARE THE LOVE: A SIB'S JOURNEY, PART I - THE JOYS & FRUSTRATIONS OF GROWING UP
December 16, 2013
Presenter: Anne Marie Cerniglia
In the first of a two-part series on sibling issues, Anne Marie Cerniglia presents her experiences growing up with her sister Yvonne, who has Down syndrome. From birth through young adulthood, Anne Marie shares some of the triumphs and struggles she has experienced, offering her perspective as a sibling and what parents should keep in mind - from a sibling's point of view.
SHARE THE LOVE: A SIB'S JOURNEY, PART II - JOURNEYING THROUGH ADULTHOOD TOGETHER
December 18, 2013
Presenter: Marianne Marts
Join NDSS in welcoming Author, Adult Disability Advocate, Speaker and Certified Trainer Marianne Marts for an informative presentation covering issues unique to adult siblings of individuals with Down syndrome. We as siblings will be in the lives of our family members with special needs longer than anyone. We will be there after our parents are gone and special education services are a distant memory. If we are provided with support and information, we can help our siblings live a higher quality and productive life. Sharing our families journey I will help you understand the needs of siblings in addition to why & how to include us in the journey with balance. Finally providing necessary resources to help plan for success rather than crisis not “if” an emergency will happen but when it does.
SUPER NUTRITION FOR CHILDREN WITH DOWN SYNDROME
Wednesday, November 20, 2013
Presenter: Christine Waltermyer
NDSS welcomed Christine Waltermyer for an informative presentation on maximizing your child's potential by feeding them nutrient-dense foods. Discover which foods deliver the most benefit to support your child's wellness. Food affects behavior, mood, mental focus, digestion and immunity. You will learn in this webinar how to seamlessly weave foods into your child's diet that you never dreamed they would eat, and that will support them to be as healthy as possible.
LAW ENFORCEMENT, FIRST RESPONDERS & PEOPLE WITH INTELLECTUAL DISABILITIES
September 26, 2013
Presenters: Patti Saylor, mother of Ethan Saylor; Sgt. A.D. Paul of the Plano Texas Police Department; and David Whalen, Statewide Project Coordinator, First Responder Disability Awareness Training, Niagara University, New York
NDSS co-hosted this webinar, which focuses on the training of law enforcement and first responders, with the National Down Syndrome Congress (NDSC) and Down Syndrome Affiliates in Action (DSAIA). Sgt. Paul Plano has built and maintained training for police officers in several jurisdictions in Texas, while David Whalen's project was recently awarded a $193,270 grant from the New York State Developmental Disabilities Planning Council (DDPC) to develop and conduct a statewide disability awareness and sensitivity curriculum and the corresponding training tools for first responders.
A.D. Paul's Sildes
David Whalen's Slides
IDENTIFYING AND PRIORITIZING YOUR FAMILY'S NEEDS
August 29, 2013
Presenters: Dr. Ann Turnbull, Ed.D. and Jawanda Mast
Although a number of family needs assessment tools have been developed, these tools are typically developed without family input and do not cover many tasks for which families are typically responsible. The Family Needs Assessment Tool, which was the focus of this presentation, was developed through a partnership of researchers and families from the U.S. and 5 other countries. This tool will enable individuals to identify and prioritize their family’s needs to be addressed by members of the family, their support network and their professional services. This tool will also enable NDSS to learn members’ family priorities as the basis for formulating responsive future goals.
PRESUMING COMPETENCE EVERY DAY IN THE CLASSROOM: INCLUSIVE SUPPORTS FOR STUDENTS WITH DOWN SYNDROME
July 25, 2013
Presenter: Dr. Cheryl Jorgensen, PhD
During this presentation inclusive education expert Dr. Cheryl Jorgensen, PhD offers specific examples of inclusive classroom supports, particularly in the area of accessible instructional materials.
Referenced in Webinar: Books on Adapting Instruction Based on General Education Standards, Common Planning Time for Inclusion, Common Planning Time from Villa and Thousand Creating an Inclusive School, Down Syndrome News Parts 1 and 2, Inclusion Means More Than Just Being In, Least Dangerous Assumption, Peter? He Comes and Goes...
UNLEASH LIFE: LASTING INDEPENDENCE FOR EVERYONE
June 27, 2013
Presenter: Ryan Platt, Founder of A Special Needs Plan and Special Needs Knowledge
This presentation is focused on understanding the lifetime needs of individuals who have Down syndrome and/or other disabilities and ensuring those needs are always met. During the webinar, parents will learn how to craft their "story," which defines the future caregiving environment and who will be involved. Parents and caregivers will also learn more about the tools that may be necessary including Special Needs Trusts, wills, funding sources, government benefits, tax strategies, guardianship and communication strategies.
THE NDSS SELF-ADVOCATE ADVISORY BOARD PRESENTS: SELF-ADVOCATES SPEAK OUT
June 7, 2013
Presenters: Chris Burke, Tavrick Lawless, Mitchell Leviz, Mia Peterson, Erin Thompson and Sara Wolff
During this webinar, Chris Burke, Tavrick Lawless, Mitchell Leviz, Mia Peterson, Erin Thompson and Sara Wolff discuss what it means to be self-advocates, ways self-advocates can begin advocating for themselves and how organizations can incorporate self-advocates into their programming.
Strengthening Your Relationship: Perspectives from Mothers and Fathers Raising Children with Down Syndrome
May 22, 2013
Presenters: Dr. Laura Marshak and Courtney Williams
This presentation covers relationship concerns and useful strategies for families with children who have Down syndrome and/or other disabilities.
AGING AND DOWN SYNDROME WITH DR. JULIE MORAN
March 19, 2013
Presenter: Dr. Julie Moran
This special presentation, made in honor of World Down Syndrome Day, coincides with the release of the new NDSS publication Aging and Down Syndrome: A Health and Well-Being Guidebook and gives an overview of the publication's content.
View the NDSS publication Aging and Down Syndrome: A Health and Well-Being Guidebook on which the webinar is based.
INCLUSIVE HIGHER EDUCATION - THE PATH TO A NEW FUTURE FOR STUDENTS WITH INTELLECTUAL DISABILITIES
February 20, 2013
Presenters: Meg Grigal and Debra Hart, co-authors of Think College!: Postsecondary Education Options for Students with Intellectual Disabilities
During this webinar, co-authors Meg Grigal and Debra Hart provide a big picture perspective on the current landscape of postsecondary education options for students with intellectual disabilities. The purpose of higher education and its associated outcomes is described and recent research documenting the connection between college and employment for youth with intellectual disabilities is shared. Audience members will also learn about new provisions in the Higher Education Act that support access to programs and financial aid for individuals with intellectual disabilities.
Referenced in Webinar: What's the Point? A Reflection About the Purpose and Outcomes of College for Students with Intellectual Disabilities
AN UPDATE ON THE CONVENTION ON THE RIGHTS OF PERSONS WITH DISABILITIES
February 13, 2013
Presenters: Executive Director of the United States International Council on Disabilities David Morrissey and Disability Rights Program Manager of the United States International Council on Disabilities Esme Grant
This webinar focuses on the Convention on the Rights of Persons with Disabilities. CRPD seeks to ensure that countries across the globe provide people with disabilities the same rights as everyone else in order to live full, satisfying and productive lives. NDSS, along with 300 national organizations, supports the US ratification of CRPD.
NDSS YOUR WAY: INDEPENDENT FUNDRAISING
December 20, 2012
Presenter: Pam Sandonato, NDSS VP of Development
ACHIEVING MEANINGFUL EMPLOYMENT FOR YOUTH WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES: HIGH SCHOOL TRANSITION THE PROJECT SEARCH WAY
November 29, 2012
Presenters: Maryellen Daston, Ph.D. and Susie Rutkowski, M.Ed., co-authors of High School Transition that Works: Lessons Learned from Project SEARCH
AN UPDATE ON DOWN SYNDROME RESEARCH - A COLLABORATION BETWEEN DSRTF AND NDSS IN CELEBRATION OF DOWN SYNDROME AWARENESS MONTH
October 16, 2012
Presenters: Dr. Roger Reeves, NDSS VP of Advocacy & Affiliate Relations Sara Weir, and DSRTF Co-Founder Patty White
In celebration of October 2012 as Down Syndrome Awareness Month, the National Down Syndrome Society and the Down Syndrome Research and Treatment Foundation collaborated with Dr. Roger Reeves to update the Down syndrome community on the status of Down syndrome cognition research. Dr. Roger Reeves is Professor in the Department of Physiology and a Core Faculty Member of the McKusick-Nathans Institute for Genetic Medicine at the Johns Hopkins University School of Medicine. He is noted for his contributions to the study of genes using animal models to understand to identify genetic modifiers that contribute to more or less severe presentation of Down syndrome.
HOW YOU CAN HELP PASS A DOWN SYNDROME PRENATAL TESTING INFORMATION LAW
September 20, 2012
Presenters: NDSS, Down Syndrome Affiliates in Action (DSAIA) and the Massachusetts Down Syndrome Congress (MDSC)
An Afternoon with Chris Burke
August 28, 2012
Presenter: Chris Burke
Here, actor and NDSS Goodwill Ambassador Chris Burke discusses his career as a network TV star playing "Corky" on TV's Life Goes On, his role as an advocate for people with disabilities and answers questions from webinar participants.
Finding Beauty in the Unexpected
July 26, 2012
Presenter: Kelle Hampton
Blogger, photographer and author Kelle Hampton discusses her memoir Bloom: Finding Beauty in the Unexpected in the webinar. Hampton has received wide acclaim for chronicling the simple joys and challenges of motherhood through her popular blog, Enjoying the Small Things, and Bloom, a New York Times best-seller.
Learning Is for Everyone - Making College a Reality for Students with Intellectual Disabilities
June 14, 2012
Presenters: Donald Bailey and NDSS Senior Policy Advisor, Postsecondary Education, Stephanie Lee
Discussing his book titled Learning Is for Everyone: Making College a Reality for Students with Intellectual Disabilities, Donald Bailey, Executive Director of the Charleston Transition College, recounts the inspiring true story of his family's quest to provide postsecondary opportunities for young adults with intellectual disabilities and Stephanie Smith Lee, Senior Policy Advisor, Postsecondary Education, National Policy Center, shares resources and action steps.
How You Can Help Us Pass the ABLE Act Today
May 22, 2012
Presentation by representitives from NDSS and Dads Appreciating Down Syndrome (D.A.D.S.) National.
Prospects for Improving Cognition in People with Down Syndrome
April 19, 2012
Presenter: Dr. Omar Khwaja, of Roche, a research-focused healthcare company.
Helping You Ensure Quality of Life For Loved Ones with Special Needs
March 15, 2012
Presenters: Joan Cleveland and Brett Berg of Prudential Life Insurance
Executive Functioning in Students with Down Syndrome
February 23, 2012
Presenters: Lisa A. Daunhauer, ScD and Deborah J. Fidler, PhD
Understanding Nutrition-Related Challenges to Creating Healthy Eating Habits for Individuals with Down Syndrome
January 12, 2012
Presenter: Joan Guthrie Medlen
ABLE Act 101 – Everything You Need to Know About the Achieving a Better Life Experience Act
December 7, 2011
Presenters: representatives from NDSS and Representative Ander Crenshaw's (R-FL) staff.
Vision and eye issues affecting individuals with Down syndrome
October 13, 2011
Presenter: Dr. W. Walker Motley
Translating Public Policy Strategies into Sexy Science for the Down Syndrome Community
September 27, 2011
Presenters: Dr. Karen Summar, NDSS VP of Public Policy Madeleine Will and NDSS VP of Advocacy & Affiliate Relations Sara Weir
Oral Health and Down Syndrome
August 29, 2011
Presenter: Dr. Jessica De Bord
Camp PALS: Building Communities and Setting Them Free
July 21, 2011
Presenter: Jenni Newbury
Respiratory Concerns in Children with Down Syndrome
June 2, 2011
Presenter: Dr. Paul Moore
Sibling Issues: What Your Other Children Without Down Syndrome Are Thinking
May 19, 2011
Presenters: Dr. Brian Skotko and Sue Levine
I'm Down With You
April 13, 2011
Presenters: Jagatjoti Khalsa and Sarah Schleider
Buddy Walk: More than Just a Walk
March 10, 2011
Presenters: NDSS Buddy Walk Director and NDSS VP of Development Pam Sandonato
Special Needs Solutions for All Ages
February 22, 2011
Presented by Prudential
Slides no Longer Available
January 18, 2011
Presenter: Patrice Linehan
Developing Residential Options For Individuals With Disabilities
December 9, 2010
Presenter: Dafna Gordon
For D.A.D.S. and Fathers: Public Policy 101
November 23, 2010
Presenters: Joe Meares, Steve Beck and Tom Milvert
Social Development and Sexuality
October 20, 2010
Presenter: Leslie Walker Hirsch
Fundraising Beyond the Buddy Walk
September 14, 2010
Presenters: Toby Newman and NDSS VP of Development Pam Sandonato
My Great Story
August 25, 2010
Presenters: Kimberly McCoy, Sarah Schleider, NDSS Communications & Social Media Manager Jordana Stern
Children with Down Syndrome: Perspectives on Development and Behavior
July 23, 2010
Presenter: Dr. Mary Pipan
Why Not College: Inclusive Postsecondary Education for Students with Intellectual Disabilities
June 18, 2010
Presenters: NDSS VP of Public Policy Madeleine Will and NDSS Senior Policy Advisor, Postsecondary Education, Stephanie Lee
The Ultimate Transition Workshop
May 6, 2010
Presenter: Jo Ann Simons
Atypical Behavior and Down Syndrome
March 31, 2010
Presenter: Dr. Mary Pipan
Prenatal Diagnosis of Down Syndrome
February 18, 2010
Presenter: Dr. Brian Skotko
Leadership Opportunities for Adults with Down Syndrome
January 29, 2010
Presenters: Essie Pederson, Pam Rieke and Annie Callan
Universal Design for Learning
October 20, 2009
Presenter: NDSS Associate Director, Education Policy, Ricki Sabia
Introducing My Great Story
September 22, 2009
Presenters: Sarah Schleider and NDSS Executive VP Beth Finkelstein