The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
666 Broadway, 8th Floor
New York New York 10012
800-221-4602
info@ndss.org 

The Love of My Life
The Love of My Life

I can still remember how I felt when I first found out that my first born, Madison, would be born with Down syndrome. I cried for days upon days, went to see a genetic specialist, then decided to have further testing to make sure that's what she would have. For me, being a nurse, I had to know what I was facing and how to handle it. When you find out your child will have a disability, you hear what everyone "thinks" you should do. I can't tell you how many people told me to terminate my pregnancy because she wouldn’t have any "quality of life." What do they know?! NOTHING! 

Madison will be 4 years old in June and she is the love of my life. We've been through two open heart surgeries and our fair share of ups and downs. Madison brings so much joy to our lives and to anyone she comes into contact with. Yes, it took her longer than other kids to hit those milestones, but she did it! She has her own little personality and is determined to do what she wants! She started preschool last fall and is miss popularity! I still don't understand why there’s such a stigma about this disorder. She is just like any other child and just wants to be loved. She gives unconditional love and melts my heart with her kisses. She has taught me and my family so much. I can't imagine what my life would be like without her. I only wish people would give these kids a chance and see them for so much more than an extra chromosome. Thank you for letting me share a little piece of her!




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Karen S. Toler, United States, NC
05/02/2012 18:06:37
BRANDI, YOU ARE SO RIGHT IN WHAT YOU SAY ABOUT PEOPLE KNOWING NOTHING. MADISON IS SUCH A PRECIOUS AND SWEET AND PRETTY LITTLE GIRL. WE HAVE RICHIE IN OUR FAMILY WITH CEREBRAL PALSY AND HE IS SO PRECIOUS TO US. THEY ADD SO MUCH TO A FAMILY IN SO MANY WAYS. WE ARE SO GLAD TO HAVE THEM. I MISS SEEING MADISON COME IN TO SEE US AT WORK. THINK OF YOU OFTEN. KAREN

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