The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
[email protected] 

T21 Club
T21 Club

When Devan was born our life turned down a path we never expected to travel on. We were told early on in the pregnancy that due to her heart defect diagnosed in utero Down syndrome was a possibility, but it was not confirmed until approximately a week after she was born. It was from that point we become card carrying members of the T21 Club. It was from that moment that we gained a greater understanding of hope and gratefulness. The vast amount of love that came from family, friends, even strangers changed how we viewed the world. The love and support was life changing. We learned very quickly that her diagnosis does not define who is she and what she will be become. The number of genes she has does not change her infectious laugh, adventurous attitude and her ability to bug her sister. Different is more beautiful than you can imagine...who knew that it would be wrapped up with the third representation of the twenty first chromosome.

Vote for your favorite story! Each month, the two stories with the most votes will be featured in the NDSS E-Newsletter.*


Your email address will be used for voter tracking only, and will not be used for future NDSS emails.
Click here to become a fan on Facebook.
Click here to follow us on Twitter.

*Votes will be reset at the end of each month.

Full Name
Comments (1,000 character limit)

Christia Easter, United States, VA
1/21/2014 1:11:33 PM
Sara is an, absolutely, adorable blessing!

stacey mailhiot, United States, PA
1/18/2014 5:49:04 AM
thats a beautiful little girl and i hope she has a great life filled with adventure. my brother has DS and is sadly confined to a wheelchair for the rest of his life. it makes me sad being one of his 3 older sisters to see the harrassment and bullying they really go thru. im currently pregnant with my second child and if he/she has DS i will love and protect her/him no matter what

Tracy L newberry, United States, TN
1/17/2014 1:00:36 PM
My sister had DS and she was the most loving and sweetest person I have ever been around..She loved to play jokes on people and just have fun. With no care in the world. I envied her.. We lost my sister in November of 2013.. She was 57 and she had a AWESOME life.. Life for us is going to be so different for our family now.. She was the glue to our family.. I miss her everyday..

Jen Hudak, United States, WI
1/7/2014 10:11:22 AM
I could not have said it better! Thank you for sharing this!

Nathan Mercer, United States, PA
1/6/2014 7:51:32 PM
What a great tribute. Nice job Eric!!

Kathleen Merritt, United States, PA
12/30/2013 8:50:57 PM
Love this family

Susan Stachowski, United States, PA
12/20/2013 9:38:15 AM
Beautiful story about a beautiful little girl who is blessed with the best family ever! All the best.

C. Oliverio, United States, PA
12/19/2013 7:27:44 AM
Sweet girl!

Christiana Monte, United States, PA
12/17/2013 12:00:20 PM
Devan is so adorable and Erik is such an eloquent writer; beautiful daughter, great Dadvocate!

Erin Kostreva, United States, TX
12/13/2013 8:29:39 AM
Go, Devan! :)

Erin Kostreva, United States, TX
12/13/2013 8:28:01 AM
Devan is already a winner. ;)

tina dibiaso, United States, PA
12/12/2013 6:59:08 PM
wonderful, heartwarming story

Eric Horansky, United States, VA
12/12/2013 5:01:03 PM
Great story

Cristie Ricciotti, United States, PA
12/12/2013 10:08:11 AM
She is absolutely precious and will grow up to be a loving and brilliant young lady! God knows what He is doing!

Kathy Merritt, United States, PA
12/11/2013 7:54:57 PM
Love the way you write about your family!

arek, United States, IL
12/11/2013 5:41:39 PM
I know this family and and I'm proud to be part of .love you guys!and the littel sunshin is on my heart.

Erin Pape, United States, GA
12/11/2013 11:41:45 AM
Your journey is incredible and beautiful just like Devan.

Kathie B, United States, PA
12/11/2013 8:28:40 AM
I have the privilege of watching this little girl change the lives of many...

  • Buddy Walk
  • NDSS Yourway
  • NDSS DS-Ambassadors