The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
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New York New York 10017
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My Two Children
My Two Children

Two people I am writing about are my children, my twin son and daughter, who were born on October 17, in 2001. For sure I feel this is "My Great Story," because I am so blessed to be the Mom of three children, two of them with Down syndrome! In addition to being with Down syndrome, Sean and Marion each have the additional diagnosis of Autism. When ever I take the time to reflect on my life, I feel I want to share it with the world. Why? Because each day is filled with miracles, yes, little miracles. Many times, my days are so action packed I don't take the time to write them down, and really, really celebrate all the amazing accomplishments that occur each day. I am totally grateful to do just that with you, take time and share a little bit of heaven with you I am blessed to be able to home school Sean and Marion, because I am able to witness how my own kids dare to stretch themselves, to reach beyond their comfort zones, because we BELIEVE they can , with each request we make of them in our special home program. When I say we, I mean me, my husband Nunzio, my older son Nuccio, my PCA's (Personal Care Attendants ) my family, my volunteers in the home-based, child centered program we run, the Son-Rise Program, and my Home Health Aides. Just this week, my daughter Marion, who is mostly non-verbal, took such awesome, wonderful JOY in celebrating with my husband and me that she went pee on the potty, by herself, right before going to bed! She cheered with us so enthusiastically, yelling Yea!!!' for herself and for us, (we've been training for a few years now). Marion smiled a HUGE smile! We clapped and cheered and wore the party hats to celebrate Marion's accomplishment. Marion has been going to the bathhroom before bed now for the last two weeks!! Just this week our son Sean, who is also considered to be non-verbal, sang with such happiness and Joy "Hark the herald Angels Sing", and "The Battle Hymn of the Republic" with us. But I want to tell about how Sean, after receiving a wooden xylophone for Christmas, began to play it, and sing "Jingle Bells" while hitting the appropriate notes on the xylophone with the wooden stick. We have it on video, it was so wonderful to see! So many miracles, every day, I am "Grateful" to my kids, they are showing me how to enjoy life by being daring to attempt what we invite them to do whether it be in looking at us and giving us eye contact, or deciding to use their voices to tell us want they want. Juice, pancakes, eggs, chips, horsey ride, tickles, or throwing the ball with us, wearing clothes, giving a kiss, pouring their own cereal and milk in a bowl, etc, and wanting to celebrate wholeheartedly each of their accomplishments!

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Comments (1,000 character limit)

Agata Janikula, United States, MA
2/6/2011 4:19:10 AM
I love that story I wish to be more parants like that who see the truth gift in their children and love them with unconditional love.

david rogers, United States, MA
2/6/2011 3:27:13 AM
wonderful times to remember

Linda Grimm, United States, MA
2/5/2011 4:06:06 PM
Yay Sean and Marion! And to Nuccio, Sean and Marion are so lucky to have you as their big brother.

Rita Atkinson, United States, MA
2/5/2011 6:09:21 AM
Inspiring article! Love the enthusiam. Great family who is changing the lives and making a huge difference for so many families.

deirdre shea, United States, MA
2/5/2011 5:17:24 AM
Fantastic story of a beautiful family!!!

Ashley, United States, LA
3/6/2011 11:21:08 AM
Wow! What an amazing family!

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