The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
[email protected] 

My Angel Annie
My Angel Annie

October 5th was just another morning until I was admitted into the hospital for an emergency C-section with the fetus in breach position. With my last child, and against my wishes as I wanted to deliver normally, RN Sharla tried to help me get the baby to flip around by setting ice packs on my tummy to try to move her. After several hours and no change we were rushed into the ER once daddy arrived. At 4:18pm we heard our baby girl cry. I was so scared and worried as all I wanted was the baby to be alright and she was. In fact she was more than alright - she was the most perfect little thing. I only got to see her for a few seconds thanks to RN Sharla, who was so kind to bring her over for me to see my angel. My little angel looked like her siblings and was so small. The pediatrician on call said that they didn’t have the facilities to provide the baby girl with proper necessities, so my baby girl was transported 18 miles away to the NICU unit. After about five hours of waiting for the ambulance and not having the chance to hold my baby girl yet I was just heartbroken. Finally a day and a half later I got to hold my angel sent from heaven in my arms. The tears of joy I was waiting for that moment for so long. I was a proud mother to the most beautiful baby girl. We named her Annie. Once we met with the doctors and RNs we learned that our daughter had a heart condition that was common in babies who have trisomy 21. At that very moment I knew that I was the special mother who was picked for this most precious baby girl. My daughter Annie has taught me to allow myself to be myself again. She is almost six months old and we are coming up on her heart surgery procedure on April 1. My Annie makes me smile, laugh, sign and float on clouds. Annie is everything that our family needed and were blessed to receive. I know she will continue to make everyone she meets smile and feel true love. Annie and I together are ready to face our daily challenges together.

Vote for your favorite story! Each month, the two stories with the most votes will be featured in the NDSS E-Newsletter.*


Your email address will be used for voter tracking only, and will not be used for future NDSS emails.
Click here to become a fan on Facebook.
Click here to follow us on Twitter.

*Votes will be reset at the end of each month.

Full Name
Comments (1,000 character limit)

Leah, United States, IA
4/6/2013 3:41:30 PM
I don't have children but I have a cousin who has mild downs. I hope Annie pulls through. May God heal Her and may God be with U All. Love in Christ, Leah

Chloe Goulding, United States, CA
3/31/2013 10:11:27 PM
Will be praying for her and your family....

Kaitlin, Canada,
3/29/2013 10:43:44 AM
Hi Joni, I am a good friend of Hazel, Matt and Stephanie Seguin. Please know that you and your little angel Annie will be kept in our family's prayers. Have a wonderful Easter. Kaitlin

Doris McKnight, Canada,
3/28/2013 3:12:45 PM
What a wonderful and touching story.

Joleen Heydon, Canada,
3/23/2013 1:31:55 PM
My cousin Joni has always been a wonderful person. She has always been a caring person. Cannot wait to meet Annie, she is beautiful.

Donna Humbach, United States, MI
3/23/2013 12:24:15 PM
She is a gift from heaven!

Margaret Conrad, United States, NJ
3/22/2013 9:02:14 AM
I met Joni strictly through e-mail regarding work. I stayed in touch with her through the years even with job changes. She warmed my heart each time we chatted. When she announced she was having a girl I was delighted. I knew she loves her sons so much and was waiting patently for her daughter. Joni is special woman and mother.

Grace Molnar, United States, MI
3/22/2013 8:46:09 AM
Joni, Your story touched my heart. You have a beautiful baby girl, if she is anything like her Mom, she will be a strong and determined little one. Thoughts and Prayers are with you and your family. April 1st is my birthday, guess what my wish is.

Jamie, Canada,
3/21/2013 11:09:19 PM
What a touching story, you both are beautiful and I love you lots

Annie Luszczynski, United States, MI
3/21/2013 10:02:56 PM
Joni, such a heart warming story! Bless you and your family and that sweet baby girl Annie!

Angela Walsh, Canada,
3/21/2013 9:24:10 PM
Love you both to pieces. Lots of hugs and kisses from Canada XOXOXOX. She is very beautiful Joni and Randy. And what great big brothers and sister she has to love her too.

Angie Chappus, Canada,
3/21/2013 9:12:51 PM
Joni, how beautiful a baby girl you have. Your love for her is obviously tremendous and inspiring. I am proud of you, love you, and wish you all the strength & love imaginable. You and your family will get through this all beautifully. Not only because you deserve it, but also because of the love and strength you all have. Annie is a beautiful miracle! All my love & prayers to you xoxoxox Angie

joli, Canada,
3/21/2013 8:47:53 PM
I am the most proud Aunt of Baby Annie! Shes an angel and we luv her lots..

Ashley, United States, MI
3/21/2013 6:48:41 PM
You both are so strong!

  • Buddy Walk
  • NDSS Yourway
  • NDSS DS-Ambassadors