The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
[email protected] 


I remember it plain as day. I was sent to high risk prenatal doctor because if some test results. Thinking everything was going to be ok I went not too worried about the income. After all, I was only 18 and I never thought anything could be wrong with my baby. Next thing I know doctors are flooding the room. Not only did my little girl have Down syndrome, she also had a heart defect that is associated with it. I drove home with tears in my eyes. Not only did I find out that my little girl was going to have to undergo heart surgery, but the doctors were pushing abortion. I just could not bring myself to do that. 

After six weeks in the NICU and her heart failure got worse and her surgery could not be pushed off anymore. The worst thing I've ever seen was my baby with a cut open chest and tubes sticking out everywhere. But she was a fighter and we were home two weeks later. Even though I had to grow up really fast I would not go back and change anything about her. She is perfect and beautiful in every way. I was blessed with another little girl two years later, and I couldn't be happier. She gives so much love and sees the good in every person.

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