The National Advocate for People with Down Syndrome Since 1979

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Just Sara
Just Sara

“Sara Smile/Won’t you smile a while for me, Sara” (Hall and Oates, 1976)

Parts of Hall and Oates song, “Sara Smile,” plays in my head whenever I gaze at my Sara. My Sara, she is a rock and roll song. She is the tilt-a-whirl at the carnival taking everyone she meets on a spinning, twisting ride. At nine years old, her laughter and rhythm are a lesson for living life well; a life worth living.

Being over 35 increased my chances to 1 in 350 of delivering a child with Down syndrome. I bought the winning lottery ticket in 2004 and named her Sara. Sara born with her fist tightly clenched; daring the world to reject her. The NICU nurse stated, “This girl has a real attitude” despite being only two hours old and six weeks premature. Attitude is Sara’s middle name. What belongs to her is hers to defend such as her five foot, five inch big brother. Anyone caught disrespecting her belongings, especially her Mat, better watch out. She will wag her tiny finger in your face stating, “No Ma’am” or “No Way” if she feels you are threatening her world.

Sara runs down a crowded mall without noticing who is in her way because she has places to go, and things to do; runs out into traffic for the same reason, but is learning not to because it frightens Mommy. Sara has the ability to draw good people to her even from across the Wal-Mart parking lot, but ignores the ignorant stares of others. She teaches Mommy not to care what others think. Sara loves to paint and draw, but only with one color at a time, and on every surface in the house. “Wiping away such extraordinary art would be a sin,” claims Dad. The art stays because it was created with abandonment and love.

Sara speaks and writes in the language of devilish angels that sometimes only God can understand; the only understanding she requires. Sara, despite her extra chromosome or maybe because of it, is more than enough to make this world smile. She is just Sara, smiling, dancing, comforting and daring all to live life with abandonment. “When I feel cold, you warm me/ and when I feel I can’t go on, you come and hold me/ It’s you and me forever/ Sara Smile.” (Hall and Oates, 1976)




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Marilee Holmes, United States, TX
9/3/2013 4:18:53 PM
Precious story!!

Missy Moody, United States, TX
9/3/2013 3:11:03 PM
Evonne, your story gave me chills! You have two special children that are a joy to be around. I hope "Just Sara" wins so others will have the opportunity to get to know her through your writing.

Janice Yarbrough, United States, TX
9/2/2013 1:45:00 PM
Go Sara

Frances Camden, United States, TX
9/2/2013 12:56:02 PM
Sara is so precious and so sweet. Love this family!

Amber FISHER, United States, TX
8/29/2013 1:22:22 AM
Go sara

Mandy Bense, United States, TX
8/28/2013 8:40:47 PM
Go Sara.

Amanda Chandler, United States, TX
8/28/2013 8:39:51 PM
Sara rocks!

Kerry Smith, United States, TX
8/24/2013 10:11:53 AM
She's awesome.

Frances Camden, United States, TX
8/23/2013 9:22:02 PM
It is such a joy to know Sara. Her smile is worth a thousand words! Love her hugs also! Sweet and precious family!

Maria Hill, United States, TX
8/22/2013 11:02:45 AM
I have been blessed with the ability to know Sara and her family. Sara fills your day as soon as she smiles.

Edward Gonzalez, United States, TX
8/14/2013 2:16:23 PM
I know Sara and her family. I remember when she was born. Such a sweet little girl.

Rebecca Baca, United States, TX
8/13/2013 10:22:21 PM
I loved the story about Sara. What a joy!

Sheila Sullivan, United States, TX
8/13/2013 9:46:18 AM
This was beautifully written! It warmed my heart! :0)

Lisa Mitchell , United States, TX
8/12/2013 7:08:40 AM
Sara is truly a blessing from god.

Ann Adams, United States, TX
8/12/2013 6:55:30 AM
This story will leave you smiling and glad that you know Sara and her family.

Janice Yarbrough, United States, TX
8/12/2013 5:35:36 AM
Wow! Knowing Sara and her wonderful family, this captures them completely. What a lucky family to have each other.

Olean Gonzales, United States, TX
8/12/2013 12:42:52 AM
My heart rejoices to read the beautiful words of an awesome mom. I taught special needs children like Sara & am a better person for it. Keep smiling, Sara!

Brianne Carver, United States, TX
8/11/2013 11:44:47 PM
I love Sarah's Smile!!

Paula Merrill, United States, TX
8/11/2013 10:54:42 PM
Thank you for sharing Sara's smile! :)

Crystal anchondo, United States, TX
8/10/2013 10:23:00 AM
Smiling sara :) love it !!!! Made me tear up but happy tears :)

Meta Jones, United States, TX
8/9/2013 10:08:10 PM
Sara is always smiling. She is a sweet and wonderful gift from God. Love the story

anna castillo, United States, TX
8/9/2013 8:31:35 PM
I love this! Thank you for writing it! Sara aka Spidey! You are amazing!

Raylene Holley , United States, TX
8/9/2013 7:04:19 PM
A very touching story for a very special young lady. Love you Sara andEvonne

Saundra Gaines, United States, TX
8/9/2013 6:53:23 PM
. ....

Becky Norris, United States, TX
8/9/2013 6:50:09 PM
I love this story! It's so sweet, and gives such a beautiful picture of Sara.

Shannan Williamson, United States, TX
8/9/2013 5:34:55 PM
It was such a pleasure to watch you write this story. You are such an inspiration to us all Mrs. Marruffo.

Liz Quintela, United States, TX
8/9/2013 4:59:40 PM
What a beautiful reflection of an incredibly intelligent and sensitive young lady, Evonne!! Your story brought me a new perspective of how much Sara has grown in so many ways. May God continue to bless you and your family!!

Michelle Whetstone, United States, TX
8/9/2013 4:37:25 PM
This perfectly describes Sara. I am so lucky to be able to have her in my life.

Malissa Roach, United States, TX
8/9/2013 3:45:24 PM
I know and love this sweet family and the beautiful words that Evonne writes are so accurate! Sara is a joy to behold and the entire family is loving, kind and I am so proud to know them!

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