The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
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Hope & Blessings - Reagan's Story
I am a Survivor
I am a Survivor
Hope & Blessings - Reagan's Story

This is the face of a survivor, this is the face of hope, this is the face of joy, this is the face of encouragement, this is the face of our daughter Reagan. Reagan came into the world on her own time schedule, 3 ½ weeks early, on Thanksgiving afternoon. She was our turkey that year. Little did we know how she would change our lives and affect the lives of so many. She was two weeks old before we heard the words Down syndrome, our world shattered and reformed in an instant because ultimately the words did not matter, what mattered was this was our little girl, our tiny miracle to love and to raise, we are honored to be her parents. Reagan rocks her designer genes and has done things on her own schedule since her arrival. At five months old her smiles and baby coos encouraged us as we rebuilt our home when it was destroyed by an F4 tornado. Her strength and resilience amazed us again when at 12 months old she required open heart surgery, the surgeon repaired an alphabet soup list of items which boil down to fixing two holes in her heart, closing an extra artery from her heart to her lungs and repairing a cleft mitral valve. She was in the hospital for two weeks and I think the six teeth she sprouted during that time bothered her more than the incision down the center of her chest. She didn’t care that it was almost Christmas or that Mommy and Daddy were worried, what she cared about was making us smile, exploring her world and discovering what those teeth would do - she really likes food. Two months before her second birthday Reagan started her biggest challenge ever. I remember the feeling when we first heard the words Down syndrome, when the surgeon performing a routine heart catheterization informed us the procedure failed and she would require open heart surgery, I remember the terror when she came off bypass from the open heart surgery and then suddenly when back on bypass. Those feelings where put in perspective when we were told Reagan has cancer, specifically AML leukemia. Terror, confusion, devastation, anger all warred for a place in what we were feeling at that moment then Reagan with her wobbly walk toddled over to where we were sitting and proceeded to give us one of her full body hugs, a hug that said I don’t know what’s wrong but it will be ok. The next 10 months consisted of more than 200 days in a hospital where Reagan demonstrated an amazing capacity to spread joy, laughter and hope in a place that is often devoid of joy and consumed with worry and sickness. She has come through six intense rounds of chemo and almost losing the fight due to complications. Reagan is two years old and is the strongest and most joyful person we have ever known. We are blessed to be her parents.




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Mindy DeLand, United States, NY
1/9/2014 3:43:23 AM
Prayers for Reagen.

Mindy DeLand, United States, NY
1/9/2014 3:41:48 AM
Prayers for Reagan a very special little girl.

madison danielle bradford, United States, KY
10/26/2013 8:19:31 PM
I love you Reagan..! and hope you get better <3 love you #PRAYERS For Reagan

Ruth m.Stough, United States, AL
9/20/2013 8:03:13 PM
stories like this really make you stop and thank God ,for our healthy children and grandchildren.may God richly bless this dear family .i think God knows the people that he chooses for these special needs children . praying for the family !!!!!

Michele McKinley , United States, FL
9/18/2013 5:41:19 AM
When I read stories like this it reminds me of how lucky I am. Even though my son has Down syndrome he is in good health most of the time. I wish this family lots of luck on their beautiful little girl.

sue thomas, United States, AL
9/16/2013 3:23:14 PM
Bless her and her family.

Margaret Downey, United States, FL
9/4/2013 8:24:54 PM
What a touching story..... My grandson who has downs also had open heart surgery and he such a joy in our lives. God bless Reagan and keep her healthy and safe........

martha burchett, United States, KY
9/4/2013 3:01:36 PM
What a cutie!!!! Hang in there Reagan!!!!!!!!! To your parents-- you have a very special child there. I will be praying for her and for your family. I had a sister that had Downs Syndrome. She had to have open heart surgery when she was nine. They are very special people and bring so much joy in your life. I hope she becomes cancer free and gets to bring you all very much happiness in your life.

Carolyn Kiesz, United States, ID
9/4/2013 12:46:34 PM
My little grandson is Reagan's age. His mommy and daddy did not know he had Down Syndrome until he was 2 weeks old, as well. Reagan's story is an inspiration and yet, at the same time so difficult to read. I wish no little child had to go through so much at such an early age, especially not these sweet angels of joy with Down Syndrome. What a joy it is to be around them and love them. What a blessing indeed.

Nancy Ecarius, United States, MI
9/2/2013 7:08:53 AM
Reagan has my vote!

Tina Goodman, United States, AL
8/27/2013 7:39:50 PM
You can do it!

Chris Ecarius, United States, MI
8/27/2013 6:19:57 PM
{{{hugs}}} & prayers to you,

Dot Nana, United States, MI
8/27/2013 6:17:51 PM
You're a winner in my book!

Nancy Ecarius, United States, MI
8/27/2013 6:15:56 PM
Love lil' Reagan!! {{{Hugs}}}

Louise Johnson, United States, AL
8/27/2013 6:00:22 PM
She's deserve this and so much more!!

Tina Goodman, United States, AL
8/27/2013 11:58:44 AM
Go, Reagan!

reba ponder weiss, United States, NY
8/26/2013 8:54:34 AM
What a sweet story!

Farrella Burgess, United States, AL
8/25/2013 7:44:21 PM
I want to hear your story.

Carrie Stewart, Canada,
8/25/2013 4:33:46 PM
You're a beauty Reagan! Keep fighting!

GrandmaRie, United States, OH
8/25/2013 3:53:55 PM
Good luck little girl and God bless!

Katie Putman, United States, AL
8/25/2013 2:59:41 PM
I wish you the bestest of luck!! prayers to you and your family sweet baby girl!!

Tina Goodman, United States, AL
8/25/2013 2:12:42 PM
Go, Reagan!

kathie mantey- Mcelfresh , United States, KY
8/25/2013 1:22:12 PM
Best of luck! Praying for you at RunningOverCancerWithAustin and family

Anna Black, United States, GA
8/25/2013 12:13:45 PM
Prayers and love!

Paula Hormann, United States, IL
8/25/2013 12:12:42 PM
Good luck Reagan !!!!

Julie Burkhalter, United States, AL
8/25/2013 11:38:18 AM
Reagan is a beautiful bundle of joy that touched my heart. Voting for Reagan.

leigh harrell, United States, AL
8/25/2013 11:34:46 AM
voting for reagan!!!

Bruce Thompson, United States, AL
8/25/2013 11:31:59 AM
prayers n blessings

Valerie Grafe, United States, FL
8/25/2013 11:31:58 AM
Awesome kid, God bless

Brandy Higdon, United States, AL
8/25/2013 11:00:25 AM
bles sthis baby

Jennifer Laws, United States, CO
8/25/2013 10:53:26 AM
Voting for Reagan

keisha Ray, United States, AL
8/25/2013 10:42:49 AM
Regan has touched our hearts! What a blessing it has been to know her family and this precious Angel :) Kenzie and I are voting for Regan...ALWAYS!

Tammy Quinn, United States, AL
8/25/2013 10:42:43 AM
Voting for Reagan!!!!!

Brandy Painter, United States, AL
8/25/2013 10:39:24 AM
:)

Tracy Kendrick, United States, AL
8/25/2013 10:34:03 AM
Voting for Reagan!

Chris Villarreal, United States, NE
8/25/2013 10:26:35 AM
Voting for Reagan.

Theresa moser, United States, CA
8/25/2013 10:14:21 AM
:)

Paula Hinson, United States, NC
8/25/2013 10:13:32 AM
Good Luck!

JChavez, United States, IL
8/25/2013 10:05:36 AM
Go Reagan!!!!

Beverly Marcellus, United States, FL
8/25/2013 10:04:47 AM
what a beautiful little girl.

RED SQUIRREL, United States, AL
8/25/2013 10:02:22 AM
Go Reagan!

Brenda Lea, United States, KY
8/22/2013 3:10:24 PM
I voted for the princess I know she will win

Dot Nana, United States, MI
8/22/2013 7:23:04 AM
"Dot" Nana is praying for Reagan! ( from Michigan)

Chris Ecarius, United States, MI
8/22/2013 7:21:52 AM
Michigan loves Reagan!

Nancy Ecarius, United States, MI
8/22/2013 7:21:03 AM
Reagan is such an inspiration to all of us!

Chris Ecarius, United States, MI
8/15/2013 7:53:13 PM
Michigan is voting for dear Reagan!!

Dot Nana, United States, MI
8/15/2013 7:52:11 PM
Nana has a heart for Reagan

Nancy Ecarius, United States, MI
8/15/2013 7:50:39 PM
Reagan's got my vote!

Tammy L. Selleck, United States, KY
8/12/2013 11:50:59 PM
What an inspirations to us all.....Childhood cancer is a monster...Reagan is such a fighter! My hero!!

Molly , United States, OH
8/11/2013 4:49:43 PM
<3

Carolyhn, United States, MO
8/10/2013 6:02:28 PM
I follow Regan for some time now from Missouri

Molly Malone, United States, OH
8/10/2013 2:31:27 PM
I pray for Reagan from Ohio.

Molly Malone, United States, OH
8/10/2013 2:27:23 PM
So run this sweet little girls story.She is fighting everyday.God Bless sweet Reagan.

theresa, United States, CT
8/10/2013 2:26:12 PM
Prayers from Connecticut

Misty Bruce, United States, SD
8/10/2013 2:20:00 PM
You all are in my prayers

Rye Lee, United States, CA
8/6/2013 9:24:38 PM
your guys familys is in my prayers! GOD Bless

patricia carnley, United States, FL
8/6/2013 2:21:39 PM
Reagan is a beautiful and precious little girl and I pray she wins!!

Tina Goodman, United States, AL
8/5/2013 2:06:50 PM
Reagan is amazing!

Laura freeman , United States, AL
8/5/2013 8:58:34 AM
Go regan!!

Chanley Wynn, United States, AL
8/4/2013 9:49:10 PM
Reagan is such a light!

Tabatha Davis, United States, AL
8/4/2013 9:26:40 PM
Reagan is the sweetest and most precious child I know. Even through her cancer ordeal she always had a smile on her face. She is one tough little girl.

Terasa Davis, United States, AL
8/4/2013 8:05:59 PM
Go baby Reagan!

Tina Goodman, United States, AL
8/4/2013 2:22:52 PM
Go Reagan!

Cita Smith, United States, AL
8/3/2013 8:38:18 AM
What a precious child! Prayers for Reagan and her family.

Maria Chambers, United States, AL
8/3/2013 8:15:18 AM
Awesome story! Reagan is truly a survivor!!

Jennifer Dorsett, United States, AL
8/3/2013 7:27:46 AM
Amazed by this babies journey! She's a gift from God!!

Julie Henderson, United States, GA
8/2/2013 6:57:30 PM
Go Reagan!

Marcia Myers, United States, PA
8/2/2013 11:41:53 AM
Reagan is definitely a survivor! She has been through so much at such a young age and still shines on!

Victoria Gunter, United States, AL
8/2/2013 10:36:28 AM
You are a beautiful survivor, Reagan. Shine on little star

MICHAEL & PAMELA WOODWARD, United States, KY
8/2/2013 10:33:41 AM
WHAT A WONDERFUL STORY. WE HAVE A FRIEND THAT WE TAKE CARE OF THAT HAS DOWN SYNDROME. SHE IS 56 YEARS OLD NOW. THESE ARE VERY SPECIAL KIDS THAT SHOW SO MUCH LOVE AND AFFECTION. THEY TRUELY NEED TO BE RESPECTED BY EVERY HUMAN BEING ON THIS EARTH. THOSE THAT CHOOSE TO MAKE FUN OF THEM AND TORMENT THEM NEEDS TOO BE PUNISHED FOR DOING SO! AFTER ALL THEY DID NOT CHOOSE TOO BE THAT WAY THE LORD CHOOSE TO DO SO. MAY REGAN AND HER LOVING FAMILY HAVE A WONDERFUL AND BLESSED DAY EVERY DAY AND GET TOO SHARE MANY LOVING MEMORIES FOR MANY YEARS. GOD BLESS YOU ALL.

Kimberly Pender, Ireland,
8/2/2013 10:32:16 AM
She is awesome and so beautiful. I hope enough votes come in for her and everybody reads her story

Kellee Tunnell, United States, CA
8/2/2013 10:14:22 AM
What a beautiful sweet angel.....Stay strong sweet girl and keep praying God has it all under control....

Kathy Pollmann, United States, MO
8/2/2013 10:11:55 AM
Keep believing and God will help you through this.

Sonya Lynn Cagle, United States, AL
8/2/2013 9:12:48 AM
Reagan is a beautiful lil girl. Love this lil baby girl

tamala jean glosser, United States, IN
8/2/2013 8:35:09 AM
BLESS THIS BABY LORD.

Lisa Brown, United States, AL
8/2/2013 7:26:07 AM
Sweet, precious baby!

Chris Ecarius, United States, MI
8/2/2013 7:12:27 AM
You have my vote, Reagan!

Nancy Ecarius, United States, TX
8/2/2013 7:09:46 AM
Precious little Reagan is a miracle. Thanks be to God for this sweet little one.

Andrea Williams, United States, AL
8/2/2013 7:04:43 AM
God Bless!

Terri Rowray, United States, KY
8/2/2013 6:42:44 AM
Little Reagan's story touches my heart. It is sure to bring both hope and awareness to others. "Love bears all things, believes all things, hopes all things, endures all things. Love never fails" (1 Corinthians 12:7-8). This is a story about "love."

Jennifer kitzero, United States, KY
8/2/2013 6:37:56 AM
God bless

Debra Laurent, United States, MI
8/2/2013 6:37:39 AM
Vote everyone.

Debra Laurent, United States, MI
8/2/2013 6:36:07 AM
What a wonderful story! I am sdo proud of these great parents. How refreshing it is to hear they are honored to be Reagan's parents. I, as a nurse, have seen too many people give up their children with downs syndrome. God will be there for you through all of your struggles. Have a blessed life!

Diana Pratt, United States, NH
8/2/2013 5:27:38 AM
Stay strong!!!

Michelle Sousa, United States, VA
8/2/2013 4:04:11 AM
Be strong and continue your fearless fight!

joy schienost, United States, TN
8/2/2013 12:51:17 AM
May Reagan win I read her story and how touching ! She is God little fighter ! Praters are going up for Reagan !

Ashley Taylor, United States, AL
8/2/2013 12:14:11 AM
God Bless!

Tommy, United States, AL
8/1/2013 11:50:01 PM
I first met Reagan and her parents when my son was in ICU. She was in the room next door and on ECMO. She was fighting with everything she had. We were able to look up to their family for their bravery and unshakable faith while being in that situation. Reagan demonstrates these very same attributes. Since those long ICU days, she has come such a long way! She's always had a smile through it all. Her story is one well worth repeating!

Louise Johnson, United States, AL
8/1/2013 11:45:49 PM
This little girl is precious and the epitome of strength! She not only has DS but has endured cancer and the treatments to cure it with a smile. Her family has been through so much and still have a wonderful outlook on life. They give God all of the glory!!! Thank you!

Nancy Hyatt, United States, AL
8/1/2013 11:13:51 PM
*

Kathleen Chafin, United States, WA
8/1/2013 10:58:41 PM
At th end of the day, all we really have is Love and Joy, and Reagan personifies both. I wish we could all care more about children and their needs and less about many other far less importantthings.

Bruce Thompson, United States, AL
8/1/2013 10:57:48 PM
*

donna fee, United States, KY
8/1/2013 10:55:08 PM
I vote for Reagan.

Carrah J Sokol, United States, TX
8/1/2013 10:51:59 PM
Great way to honor beautiful children

Kayla faulkner, United States, AL
8/1/2013 10:30:01 PM
That is great

Michele Prieto, United States, NJ
8/1/2013 10:29:37 PM
we wish one day children will not suffer with any disease. My hope and prayers out to you and your family. God Bless you

Opal, United States, TX
8/1/2013 10:28:53 PM
Help Reagan win!

Lori Amirault , Canada,
8/1/2013 10:28:05 PM
She is an awesome little girl and Reagan gets my vote!

cherylc mcguire, United States, AL
8/1/2013 10:24:04 PM
please help litle reagans all over the world please sharing

Jennifer Burke, United States, KY
8/1/2013 10:20:36 PM
Baby Regan gets my vote!

Colleen Schaming, United States, PA
8/1/2013 10:09:23 PM
My vote goes to sweet Regan.

Chris Jacobson, United States, CA
8/1/2013 10:04:48 PM
Sending much love and many, many prayers little one <3

Nola Watson, United States, VA
8/1/2013 10:00:41 PM
Follow on fb and would love to see Reagans story be told!

kristy parker, United States, AL
8/1/2013 10:00:23 PM
She has my vote!

Jillian M., United States, NY
8/1/2013 9:59:40 PM
God bless Reagan & family :)

J L Brooks, United States, AZ
8/1/2013 9:58:31 PM
Way to go!

angie houser, United States, GA
8/1/2013 9:58:16 PM
you rock Reagan.....

Vicki Harris, United States, CA
8/1/2013 9:57:54 PM
Beautiful girl!!

Marsha Forbus, United States, AL
8/1/2013 9:52:48 PM
Go Raegan

Joyce Andrews, United States, AL
8/1/2013 9:44:35 PM
Looking forward to seeing Reagan at Rise.

Jody Millwood, United States, GA
8/1/2013 9:19:21 PM
Reagan, You are the true meaning of a "MIRACLE" God Bless You!!

Molly Malone, United States, OH
8/1/2013 8:44:33 PM
I hope this sweet little one wins.She has had a rough road.She is abeautiful little one <3

tammy, United States, AL
8/1/2013 8:40:32 PM
this is such a wonderful story and great strength showed by this family

mary osterhout, United States, IL
8/1/2013 8:31:21 PM
I have followed this beautiful child for quite a while and she has been through so many difficult situations and it never seems to phase her; she is still this sweet smiling beautiful child and she deserves to win this!

tabitha moorehead, United States, AL
8/1/2013 8:13:16 PM
Such a beautiful baby girl!!!

Kristy Colvin, United States, TX
8/1/2013 7:44:35 PM
Go Reagan!!!!

Amy Garner, United States, AL
8/1/2013 7:41:06 PM
Sweetheart. Beautiful inside and out.

Linda Koebel , Canada,
8/1/2013 7:21:43 PM
I have enjoyed getting to know Reagan through the posts that mom and dad have made. It's been my privilege to pray for Reagan and I cannot wait until God fulfills His plan in Reagan's life. God bless ;0)

Stacey Hill, United States, AL
8/1/2013 7:14:28 PM
Such a cutie!

tammy harris, United States, AL
8/1/2013 7:12:41 PM
Sweet baby

MICHELLE MCCLAIN, United States, GA
8/1/2013 7:10:38 PM
Such a beautiful and inspiring girl!

Kathy Nixon, United States, AL
8/1/2013 7:04:05 PM
It has been a blessing to be a part of the miracle of what God has done in Reagan's life! Her family has been an encouragement to others as they have gone through a difficult time. God has shown Himself faithful. I rejoice with them and praise Him for His faithfulness! Blessings to the family!

Holly Barksdale, United States, AL
8/1/2013 6:58:11 PM
This is an extraordinary family and little girl that continue to inspire those around them!

Sandy DeMott, United States, CA
8/1/2013 6:36:27 PM
Very inspirational family--cutest baby

Tina Goodman, United States, AL
8/1/2013 4:38:36 PM
Such a sweetie!

kimothy foster, United States, AL
8/1/2013 3:24:38 PM
I love her what a great baby she .

Toni Ezell, United States, MS
8/1/2013 3:06:35 PM
Well Done!!! Reagan and her family are an inspirition to us all. They are such a blessing!!!

Evelyn Asbury, United States, AL
8/1/2013 1:21:17 PM
Who can resist the sweet, winsome expression on that beautiful face? Not anyone I know. This will not be the end of Reagan's story, for sure. She will go far. GO REAGAN!

Becky Holcombe, United States, AL
8/1/2013 12:39:01 PM
I have followed Reagan's story for a few months now. She has gone through so much including a critical surgery where she was so sick, the ICU had to become the surgical suite as she could not be moved. Her smile makes my day. I realize how great my life is and if she can smile, so can I.

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