The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
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Dealing With the Unexpected
Jonathon and his Brother Isaiah
Jonathon and his Brother Isaiah
Dealing With the Unexpected

You know what that first kick feels like when you are pregnant with your first child? Everything you dream about for that child? What he/she will look like? What his/her favorite color will be? Most of all who will he or she be as a person? I do. At the age of 19 I had a wonderful little boy. It was amazing. I couldn’t wait to be a mom and then one sentence threw my world out off track. All the plans I made for him and what he would do was gone. We had to make new plans, we had to figure out how to start over all the dreams we had for our child, we had to think if we can handle all the things that came with having a child with Down syndrome. My son wasn’t even an hour old before the doctor came in and told us that he thought our child had Down syndrome. So not only was I a first time mom but I had a child with a disability. What was I to do? Jonathon was healthy as a horse. He had no heart problems and after two weeks in the NICU he got to come home. Right away I started to work with him. I wanted him to be as typical as any other child. With therapy, at the age of six months my son was sitting up on his own, at the age of nine months my son was crawling, and at the age of 20 months he was walking. All this is pretty typical to any child, but the things I didn’t mention are the struggles and frustrations that my child went through. He threw unruly fits, he cried when we made him do things, and sometimes he just refused to do anything at all. He was a bright child and caught on quickly but there were many tears and much heartbreak before he did them. At one month old I had no doubt Jonathon was amazing but he taught me things I never knew I should know! Children with Down syndrome are special people and they show us what the meaning of hard work is! Jonathon shows everyone what it’s like to have to work so hard to be able to learn things. Even though he does catch on quickly it’s still hard and all of his life he will have to prove that he can learn because of the disability he was born with. I never have regretted one day since I had him that I didn’t have the test done for Down syndrome and I don't regret being his parent. He has taught me a whole new way of doing things. I see how hard he has to work to be able to do things so I work just as hard to educate people about him and his disability. Having a child with Down syndrome isn’t a hardship but a whole new way of learning things.




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