Aaryan Swami, The Inspirartion
Aaryan Swami, The Inspirartion behind Courage to Continue...
Aaryan Swami, The Inspirartion By
Navneeta
Khemka,
Briarwood,
NY
I am so excited to share my story on this forum. I am a parent who has a five year old adorable toddler who has Down syndrome. My story begins with him and when he grows up, he will share his personal story for sure. Strangely Aaryan was diagnosed with Down syndrome after he was six months old. This news came as a huge shock to us. But, the best part about this late news was that Aaryan was already considered as one amongst everyone and not a special or different child. So in one day, only because of a diagnosis how could he change, or treated differently. I realized that in reality, the difference is in our minds. And, I will do whatever it takes to make the world believe that. Aaryan's diagnosis gave me an opportunity to meet with many parents who had children with similar or another diagnosis. My heart goes out to parents who get lost in this struggle and kill their own dreams and aspirations. But the truth is, we all had dreams while growing up. The roadway might seem difficult, but, there is a way out, it is not a dead end. We just need to find out that way. I found it in Aaryan's smile. I found the reason to live and enjoy. Firstly, he became the new source of my energy and strength. Secondly, my internal self called out aloud that it is only me who can help myself and my child. People will have opinions but we can surely steer them in the right directions. The smile of my baby and the support of my husband Vikram gave me that strength. We knew it in our heart that we will never let his smile fade. For this, I also needed to be myself and needed to continue to dream about my goals. So I decided to get back to college and fulfill my desire of studying in the college that I had always dreamt about Fashion Institute of Technology, New York. Aaryan is now an adorable five year old toddler, ready to take his first step towards Kindergarten in September, 2011. He surprises us with something new every single day. I realize how granted we take life and growth and forget to appreciate. We celebrate whatever Aaryan can do, and not fuss over what he cannot. His smile and laughter attracts unconditional love from everyone. His huge open armed hug touches many hearts and makes one say that, "this is what I call love"so pure and innocent'. I would love to share a clipping/trailer from a documentary "Courage to Continue" that is made on my story. If this movie can inspire, help or even challenge a few parents, we would feel our efforts have borne fruits. I feel honored and thank NDSS for allowing me to share my story here. I thank Roli' the director of this film for believing in my story and making it into a memorable documentary. http://www.youtube.com/watch?v=WgxUX4f_yio&hd=1