The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
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Making Movies
Making Movies

My great story has to do with my two great kids, Charlotte and Jonathan, who are doing more to spread awareness for Down syndrome than anyone in our family could have possibly imagined. It started a few years ago, when Charlotte and Jonathan got off the school bus one day clearly upset. Charlotte told me that Jonathan, who has Down syndrome, was being bullied on the bus. She also told me she was concerned about the way some children - and even some adults - would stare at Jonathan and talk behind his back, commenting on the way he looks and sounds. After talking to the school bus driver and nipping the bullying situation in the bud, Charlotte told me she wanted to do more to educate others about Down syndrome and to let everyone know what a great person Jonathan is. I asked Charlotte how she thought we could best accomplish that. After some brainstorming, we decided we would produce a movie. The result was Deedah, a 25 minute documentary named after Jonathan's longtime nickname for Charlotte. (We think Deedah was his first attempt at saying "sister.") In the movie, seven-year-old Charlotte explains that Jonathan, like everyone else with Down syndrome, is not at all different from those of us who do not have that extra chromosome. Since the film was released, Deedah has been shown at film festivals in our home state of Georgia, as well as Los Angeles, Miami, Orlando and Vancouver, British Columbia. Our blog has received hits from all around the world and last month, we learned that a group in Europe is translating the film in Polish! On April 30th, Deedah will be shown at the Metropolitan Museum of Art in New York City, as part of the Sprout Film Festival, which highlights the incredible ABILITIES of those with "DIS- ABILITIES." Deedah is also being shown at schools around the country to help to teach tolerance and bullying prevention. Down syndrome support groups have sponsored screenings and are using the film to raise extra funds at Buddy Walks. The film is making its way into new parent packets and is being introduced to the medical community as well. My husband and I are so grateful that the film has touched those in the Down syndrome community, but we are also humbled at how the film is educating those who previously had little or no familiarity with Down syndrome. Our great story is the story of many others as well: Down syndrome is not a burden, it is a blessing. We hope our film will help to spread that message for many years to come. Brooke May, Proud mom of Charlotte and Jonathan, Producer of Deedah,

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Comments (1,000 character limit)

erin drew, United States, GA
4/14/2011 1:49:20 PM
Im absolutly in love with the movie...and also in love with this wonderful family...

Allyson Harvin, United States, GA
4/13/2011 5:21:36 PM
Charlotte and Jonathan are wonderful ambassadors!

Wendy Fears, United States, GA
4/11/2011 1:37:01 PM
Great!! So proud to know this family!

Catherine Just Seiner, United States, UT
4/8/2011 1:25:48 PM

Michal Chesal, United States, FL
4/6/2011 2:10:32 PM
You really did an excellent job when you made the movie Deeda! My 3 children watch it with their friends and all three of their classes have watched it as well (my oldest who is 11 has Down syndrome). his sisters love watching your movie when friends are over

Laura Watts, United States, FL
4/5/2011 6:35:09 PM
Great story and Great family!!!!!

rachel watson, United States, GA
4/5/2011 2:00:25 PM
Loved it, so sweet.

Patty Morelli, United States, GA
4/5/2011 12:49:47 PM
It is a wonderful movie and story!

donna mobley, United States, GA
4/5/2011 12:16:43 PM
endearing, loved it!!!

Carol, United States, GA
4/5/2011 9:18:58 AM

Jordy Bradley, United States, MI
4/5/2011 7:58:45 AM
Deedah rules!

CM DiMartini, United States, PA
4/5/2011 6:07:30 AM
Such a heart-warming story! As an inner-city teacher, I use this beautiful movie as an example of community and relating to each other. The students LOVE this movie ans so do I!

Julie Gridley, United States, TX
4/4/2011 11:20:02 PM
Charlotte and Jonathan are wonderful children. I am glad this film you have made is doing so much good.

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