The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
[email protected] 

Team B.I.G.
Team B.I.G.

My name is Barbie Charest and I am the PROUD mother of Bentyn Isaiah Graham, AKA B.I.G. Bentyn is one year old. I found out Bentyn had trisomy 21 during my pregnancy. Honestly, I was more concerned with the mass that our family named "The Black Hole" on ultrasounds. It kept getting bigger as he grew and doctors were unsure of what exactly it was. It was Bentyn's L kidney, which ended up being removed when he was three months old. Bentyn has touched our lives more than anyone could imagine, as fellow parents of children with Down syndrome understand. We are excited to be part of this unique family. My motto is "Families Uplifting Down Syndrome." As a family, we decided to just enjoy Bentyn as a baby, infant, newborn and not focus on his diagnosis. Now that he is one year old I have decided to reach out to other families, to see if we could form some sort of resource group for fellow parents, and new parents. Bentyn's photo was chosen for the 2012 NDSS Times Square Video and I am honored to be Mommy to the best gift the Lord could have given me. I know the road ahead is going to be bumpy but my son will know Mommy and Daddy love him more than anything in the world. We are so excited about National Down Syndrome Awareness Month and the upcoming Buddy Walks. Bentyn has a magnetism about him that I hope he can use when he gets older to be an advocate to promote the acceptance, value and inclusion of people with Down syndrome. When I was pregnant with Bentyn, Psalm 139:13-14 came to me and is now my favorite verse when it comes to my perfect son. "For you created me in my inmost being. You knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made, your works are wonderful I know that fullwell." Bentyn is not perfect because I say so, it is because He said so.

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Barbie Charest, United States, FL
10/5/2012 1:23:42 PM
Families Uplifting Down Syndrome in a B.I.G. way:)

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