The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
666 Broadway, 8th Floor
New York New York 10012
800-221-4602
info@ndss.org 

Improving Health Outcomes & Quality of Life for People with Down Syndrome

Featured ImageWhen it comes to improving the health and quality of life for people with Down syndrome, there are two important aspects that NDSS strives to address legislatively, creating and maximizing research opportunities for Down syndrome, and improving the quality of healthcare provided to people with Down syndrome.

  1. Down Syndrome Research Funding

    NDSS works to create and maximize federal research funding opportunities across the federal government.

  2. Trisomy 21 Research Act Package

    During the 112th Congress, Sens. Sherrod Brown (D-OH) and Susan Collins (R-ME), and Reps. Cathy McMorris Rodgers (R-WA), Pete Sessions (R-TX) and Chris Van Hollen (D-MD) introduced a package of legislation aimed at strengthening the research infrastructure for Down syndrome and improving the translational research opportunities for Down syndrome. This legislation is known as the Trisomy 21 Research Package, which includes the Trisomy 21 Research Resource Act of 2011 and the Trisomy 21 Research Centers of Excellence Act of 2011.

  3. NIH Down Syndrome Consortium

    In September 2010, the National Institutes of Health joined with NDSS and other organizations interested in Down syndrome to form a consortium that will foster the exchange of information on biomedical and biobehavioral research on the chromosomal condition.

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  • My Great Story