Improving Health Outcomes & Quality of Life for People with Down Syndrome

When it comes to improving the health and quality of life for people with Down syndrome, there are two important aspects that NDSS strives to address legislatively, creating and maximizing research opportunities for Down syndrome, and improving the quality of healthcare provided to people with Down syndrome.

Down Syndrome Research Funding

NDSS works to create and maximize federal research funding opportunities across the federal government.

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Trisomy 21 Research Act Package

During the 112th Congress, Sens. Sherrod Brown (D-OH) and Susan Collins (R-ME), and Reps. Cathy McMorris Rodgers (R-WA), Pete Sessions (R-TX) and Chris Van Hollen (D-MD) introduced a package of legislation aimed at strengthening the research infrastructure for Down syndrome and improving the translational research opportunities for Down syndrome. This legislation is known as the Trisomy 21 Research Package, which includes the Trisomy 21 Research Resource Act of 2011 and the Trisomy 21 Research Centers of Excellence Act of 2011.

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NIH Down Syndrome Consortium

In September 2010, the National Institutes of Health joined with NDSS and other organizations interested in Down syndrome to form a consortium that will foster the exchange of information on biomedical and biobehavioral research on the chromosomal condition.

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Improving Health Outcomes & Quality of Life for People with Down Syndrome

Down Syndrome Research Funding

Trisomy 21 Research Act Package

NIH Down Syndrome Consortium

Advocacy

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