The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
800-221-4602
[email protected] 

Other Legislation

In addition to advocating for the Accurate Education for Prenatal Screenings Act and state pro-information bills, NDSS supports the following health-related legislation. 

Congenital Heart Futures Reauthorization Act of 2017

The Congenital Heart Futures Reauthorization Act of 2017 (HR 1222 / S 477) would expand research on treatments for congenital heart defects and encourage lifelong, specialized care for patients. For details, see NDSS One-Pager on the Congenital Heart Futures Reauthorization.

The Advancing Care for Exceptional (ACE) Kids Act 

The Advancing Care for Exceptional (ACE) Kids Act seeks to address obstacles to the coordination of care in state-based Medicaid programs for children, such as those with Down syndrome, with complex medical conditions who see many different specialists, and may require care that takes them across state lines. It would drive the formation of tailored, intensive, pediatric-focused networks of providers to ensure children with medical complexity receive the best care possible, while reducing unnecessary costs in the Medicaid program. 

This legislation was introduced but failed to pass during the 114th Congress (see S 298 and HR 546). It is expected that it will be reintroduced in the 115th Congress.

Click here to see NDSS' letter of support for the ACE Kids Act that was sent to the original Congressional sponsors on December 3, 2015. 

For More Information

For more information, please contact NDSS at [email protected].

Page last updated: May 10, 2017

  • Buddy Walk
  • NDSS Yourway
  • NDSS DS-Ambassadors