The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
[email protected] 

Nondiscrimination in Organ Transplantation Laws & Toolkit


People with physical and intellectual disabilities face discrimination on organ transplant lists. Despite federal protection, people with disabilities still do not receive equal consideration for organ transplants. Because of lack of federal enforcement, there is a demonstrated need for state action to ensure the rights of people with disabilities including Down syndrome.  

Currently, three states have laws in place that prohibit this discrimination:

These states have bills pending to prevent discrimination in organ transplantation:

  • Massachusetts (H 4332) - Passed on 11/23/16 and awaiting Governor's signature
  • Pennsylvania (HB 585)


NDSS has compiled the following resources to assist those who wish to bring a bill to their state legislature regarding nondiscrimination in organ transplantation for people with disabilities:

For More Information

For more information, please contact Heather Sachs, NDSS Vice President of Advocacy & Public Policy, at [email protected].

Page last updated: November 23, 2016

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