The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
800-221-4602
[email protected] 

Other Legislation

NDSS supports the following legislation related to enhancing the economic self-sufficiency of people with Down syndrome.  

Special Needs Trust Fairness & Medicaid Improvement Act 

The Special Needs Trust Fairness & Medicaid Improvement Act (HR 670 / S 349) would enable individuals with disabilities to create their own special needs trusts (SNTs) without jeopardizing eligibility for means-tested benefits. This bill seeks to correct a drafting error in an earlier law (Omnibus Budget Reconciliation Act of 1993) that prevented competent individuals from establishing and controlling their own SNTs. 

On November 30, 2016, this bill passed the House as section 5007 of a larger bill, the 21st Century Cures Act (HR 34).  

For More Information

For more information, please contact Heather Sachs, NDSS Vice President of Advocacy & Public Policy, at [email protected].

Page last updated: December 2, 2016

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