The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
[email protected] 

Congressional Task Force on Down Syndrome


Established in May 2015, the Congressional Task Force on Down Syndrome, which is an expansion of the Congressional Down Syndrome Caucus originally formed in 2008, is made up of US Representatives and US Senators.  NDSS works with the Task Force to educate Members of Congress and their staff about Down syndrome, and to promote legislative activities and public policies that would enhance the quality of life for those with Down syndrome.   


The Congressional Task Force on Down Syndrome: 

  • Holds informational events for Members of Congress and their staff to increase awareness about Down syndrome
  • Ensures Down syndrome is adequately addressed in all relevant legislation and regulations
  • Works with national and local Down syndrome groups to develop educational, medical and employment related initiatives that support and expand opportunities for individuals with Down syndrome
  • Identifies and works to remove barriers in the law for people with intellectual disabilities
  • Strives to build the Congressional Task Force on Down Syndrome into a sustainable, dynamic political force and information clearinghouse by increasing membership and activities

Membership in the 115th Congress

Membership in the Congressional Task Force on Down Syndrome does not carry over from one Congress to another. The 115th Congress began on January 3, 2017, and NDSS and our advocates have begun to seek Task Force members for the new Congress.

Take Action

If your Representative and Senators are not members of the Congressional Task Force on Down Syndrome, please contact them and ask them to join. Members of Congress who want to join should contact Megan Perez ([email protected]) in Congresswoman Cathy McMorris Rodgers' office and Kyle Christian ([email protected]) in Senator Jerry Moran's office.

Membership in the 114th Congress

The following is a list of legislators who were members of the Congressional Task Force on Down Syndrome during the 114th Congress, which ended in December 2016:




In the 114th Congress, the Task Force also had these members:


  • Brad Ashford (D-NE)
  • Diane Black (R-TN)
  • Julia Brownley (D-CA)
  • Tony Cárdenas (D-CA)
  • John Carney (D-DE)
  • Steve Chabot (R-OH)
  • Barbara Comstock (R-VA)
  • John Delaney (D-MD)
  • Mike Fitzpatrick (R-PA)
  • Trent Franks (R-AZ)
  • Bob Goodlatte (R-VA)
  • Michael Honda (D-CA)
  • Lynn Jenkins (R-KS)
  • John Katko (R-NY)
  • Joseph Kennedy lll (D-MA)
  • Ted Lieu (D-CA)
  • Zoe Lofgren (D-CA)
  • Blaine Luetkemeyer (R-MO)
  • Sean Maloney (D-NY)
  • Kenny Marchant (R-TX)
  • Kevin McCarthy (R-CA)
  • James McGovern (D-MA)
  • Aumua Amata Coleman Radewagen (R-American Samoa)
  • Lucille Roybal-Allard (D-CA)
  • Adam Smith (D-WA)
  • Chris Smith (R-NJ)
  • Glenn "GT" Thompson (R-PA)
  • David Valadao (R-CA)
  • Randy Weber (R-TX)
  • Kevin Yoder (R-KS)


  • John Boozman (R-AR)
  • Christopher Coons (D-DE)
  • Tom Cotton (R-AR) 
  • Chuck Grassley (R-IA)
  • John Hoeven (R-ND)
  • Senator Joe Manchin III (D-WV)
  • Pat Roberts (R-KS)

For More Information

For more information, please contact NDSS Vice President of Advocacy & Public Policy Heather Sachs at [email protected]

Page last updated: February 15, 2017

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