The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
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New York New York 10012

NDSS Pro-Information State Law Toolkit


The Prenatally & Postnatally Diagnosed Condition Act (P.L. 110-34) was enacted into federal law in 2008 to increase the readiness of accurate, up-to-date, and balanced information about Down syndrome to women and families considering prenatal testing, and the state of Massachusetts recently followed suit and passed a similar state law. The focus on recent federal and state legislation is a result of the many ways to screen for and diagnose Down syndrome during a pregnancy, including new noninvasive prenatal tests (NIPT) available in select markets.

NDSS Toolkit

NDSS offers its Down syndrome organizations and NDSS Governmental Affairs Committees (GAC) this pro-information state model legislation toolkit. The goal of this toolkit is to help states to enact legislation to promote accurate, up-to-date information, evidenced-based information on Down syndrome to women who receive a prenatal or postnatal diagnosis, similiar to the success of the new Massachusetts state law.

Model Legislation

Press release

Testimony Examples

  • Buddy Walk
  • NDSS Yourway
  • My Great Story
  • NDSS DS-Ambassadors