The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
[email protected] 

Board of Directors

The National Down Syndrome Society is guided by a Board of Directors who represent a broad range of expertise and experience. Our advisory boards comprise internationally recognized professionals who are leaders in their fields.


Sara Weir

Board of Directors

Elizabeth F. Goodwin, Founder
CAPT Robert P. Taishoff USN (ret), Chairman
F. Gordon Spoor, CPA, PFS, CGMA, Vice Chairman
Tiffany Barfield, Secretary
Ben Wright, Treasurer

Amy G. Allyn
Chris Brooks
Paul Brunswick
Janet Slaughter Eissenstat
Steve Freeman
Sean Fromm
Charles H. Gerhardt, III, JD 
Anthony (Tony) J. Gostkowski
Annette Halprin
Rick Kosmalski
Honorable Jim Nussle
Roger Reeves, PhD
Charles Symington
Erin Thompson
Laurie Walters
Tim Wilbricht
Sara C. Wolff

Self-Advocate Advisory Board

Mitchell Levitz, Co-Chair
Sara C. Wolff, 

Craig Blackburn
Jason Hamilton
Tavrick Lawless
Kayla McKeon
Essie Pederson
Mia Peterson
Anita Raghavan
Erin Thompson

Scientific & Clinical Advisory Board

Sonja A. Rasmussen, MD, MS, Co-Chair
Stephanie L. Sherman, PhD, Co-Chair

George T. Capone, MD
Kenneth P. Cheng, MD
Jessica DeBord, DDS
Terry Hassold, PhD
Priya Kishnani, MD
Julie R. Korenberg, PhD, MD
Ira T. Lott, MD
Philip Mattheis, MD
William C. Mobley, MD, PhD
Paul Moore, MD
William Motley, MD, MS
Lynn Nadel, PhD
Bonnie Patterson, MD
David Patterson, PhD
Roger H. Reeves, PhD
Nancy J. Roizen, MD
Romney L. Snyder-Croft, LCSW, ACSW
Nasreen Talib, MD 
Leslie Walker-Hirsch, MEd, FAAIDD
Patricia C. Winders, PT

Honorary Board of Governors

Thomas J. O'Neill, Chair
Emily Perl Kingsley
Arden G. Moulton

  • Buddy Walk
  • NDSS Yourway
  • NDSS DS-Ambassadors