The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
800-221-4602
[email protected] 

Sara Hart Weir, President

Sara Hart Weir, MS
President
National Down Syndrome Society
[email protected]
202-680-8867

Weir is the President of the National Down Syndrome Society. A Kansas native, Weir's passion of fighting for the human rights of all people with Down syndrome stems from her experience as a peer mentor and friend to a young woman with Down syndrome, Kasey, over two decades ago. As NDSS’ President, Weir oversees the organization’s mission, vision and administration, which is the largest nonprofit in the United States dedicated to advocating for people with Down syndrome and their families. 

Under Weir’s leadership, NDSS led the advocacy effort behind the passage of the landmark and historical Stephen Beck Jr. Achieving a Better Life Experience (ABLE) Act in 2014, which established tax-free savings accounts for people with Down syndrome and other disabilities. This landmark law is hailed as the most significant legislation for the disability community since the Americans with Disabilities Act (ADA). Weir also is the Co-Founder of the ABLE Alliance for Financial Empowerment and serves on the Maryland Commission for Effective Community Inclusion of Individuals with Intellectual and Developmental Disabilities, and was appointed by former Governor Martin O’Malley.

Weir has a Bachelor of Arts in Psychology and Political Leadership from Westminster College and a Master of Science in Public Policy and Management from Carnegie Mellon University’s Heinz College. Weir has earned many honors including; Westminster College Senior of the Year, Winston Churchill Award for Leadership and Service, Coca-Cola Community All-American and was the recipient of the 2014 Westminster College Young Alumni Achievement Award. Weir also served on the Board of Trustees for her alma mater, Westminster College from 2012-2015, and is currently the President Emeritus of its Alumni Council. In 2014, Weir gave the 2014 Westminster Convocation Address highlighting her passion for NDSS and advocating for people with Down syndrome.

Weir has been featured in USA Today, NY Times, Wall Street Journal, Washington Post, CNN, The Hill, Money Magazine, Al Jazeera and many others.

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