The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
800-221-4602
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NDSS Announces Leadership Transition

New York, New York, November 28, 2014 - The National Down Syndrome Society (NDSS) announces today that Jon Colman has resigned as the NDSS President. The NDSS Board of Directors has appointed Sara Hart Weir, MS, Vice President of Advocacy & Affiliate Relations, to serve as interim President of NDSS. 

In a statement, NDSS said: "The National Down Syndrome Society (NDSS) announces that after thirteen years with the organization, President Jon Colman has resigned to pursue new endeavors. NDSS thanks Jon for his tireless work and many achievements on behalf of those with Down syndrome, their families and caretakers. As NDSS President, Jon oversaw a reorganization and improvement of NDSS' operations, recruitment of highly-skilled and motivated staff members, and creation of a focused business plan for NDSS based upon board-directed strategic imperatives. Jon worked with the NDSS leadership team in pursuit of the passage of the Achieving a Better Life Experience (ABLE) Act. The ABLE Act is intended to give people with disabilities, and their families, the ability to save for the future. NDSS wishes Jon much success for the future." 

Capt. Robert P. Taishoff USN (Ret.), NDSS Chairman said "We are fortunate to have a proven leader of Sara's caliber and experience to step into the President role on an interim basis while the Board of Directors conducts its search process. Sara is a hands-on leader, and we know that she will be actively leading NDSS and executing our mission as the national advocate for people with Down syndrome and their families. We are confident that Sara's abilities and experience at NDSS and elsewhere, coupled with the talent of the current senior leadership team, will ensure a smooth leadership transition for the benefit of the Down syndrome community."

Ms. Sara Hart Weir commented, "I am honored to take on the role of interim President during this important time for our esteemed organization. NDSS is the best nonprofit in the business, and I am proud that we are an organization that always puts people with Down syndrome first and foremost in everything we do. I look forward to working closely with our Board of Directors, senior leadership team, and our dedicated and hard-working staff as we build an even stronger future for NDSS and people with Down syndrome."

NDSS is the largest nonprofit representing people with Down syndrome and their families in the United States. The mission of NDSS is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. NDSS continues to envision a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.

About NDSS 

The National Down Syndrome Society (NDSS) is a nonprofit organization representing the more than 400,000 Americans with Down syndrome. The mission of NDSS is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity enhance their quality of life, realize their life aspirations, and become valued members of welcoming community.

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