The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
[email protected] 

NDSS Celebrates Down Syndrome Awareness Month 2015

October is Down Syndrome Awareness Month! As the national advocate for the value, acceptance and inclusion of people with Down syndrome, NDSS plans to highlight and showcase different ways for you to get involved in our organization, interact with our talented NDSS staff and support the Down syndrome community through awareness and advocacy. 

Donate to the National Down Syndrome Society in celebration of Down Syndrome Awareness Month here.

National Buddy Walk® Program: Walk Together for Down Syndrome

NDSS founded the Buddy Walk® in 1995 to spread our mission of promoting the value, acceptance and inclusion of people with Down syndrome at the local level. The National Buddy Walk® Program has grown from 17 Walks in 1995 to over 250 Buddy Walks expected this year. In 2014, over 315,000 people participated in a Buddy Walk® and over $13 million was raised to support both local and national programs. Last year, our first international  Buddy Walk® in Turkey took place in Istanbul, along with Walks in Tokyo, Japan; Auckland, New Zealand; Freeport, Bahamas; Port of Spain, Trinidad and Tobago as well as across Canada. Most Buddy Walks take place in and around October in celebration of Down Syndrome Awareness Month. 

Find a Buddy Walk® near you!

2015 Times Square Video: Get in on the Action

Every year, NDSS reminds the world in a big way about the gifts that people with Down syndrome bring to their communities through a special video presentation on a jumbo screen in the heart of the Times Square. 

The Times Square Video presentation kicked off Down Syndrome Awareness Month on the morning of the NDSS Buddy Walk® in New York City on Saturday, September 19. This year, our third-party volunteers chose over 450 photos from over 1,200 submissions for the Times Square Video. The featured photographs highlight children, teens and adults with Down syndrome working, playing and learning alongside friends and family. These collective images promote acceptance and inclusion, which is the foundation of NDSS and the National Buddy Walk® Program. Check out the video and share with your friends and family online!

Watch the 2015 Times Square Video

Purchase your own copy of the 2015 Times Square Video here.

My Great Story Campaign: Share Your Story

The My Great Story campaign is the largest NDSS public awareness initiative, with over 600 stories from all over the country in the collection. The goal of the campaign is to ignite a new way of thinking about people with Down syndrome by sharing stories written by and about them. The stories are submitted by self-advocates, their family members, friends, teachers, coworkers, coaches and more - anyone who has a story to share that highlights the abilities and accomplishments of someone with Down syndrome is encouraged to share it! 

The My Great Story campaign also has voting and commenting features, so share your story and spread the word! 

Share your story today! 

NDSS Your Way: Fundraise Your Way

NDSS Your Way invites you to compete, celebrate, create and get incolved on campus with us through our online fundraising program that is geared towards independent fundraisers interested in raising money on behalf of NDSS. Down Syndrome Awareness Month is a great time to start! We invite you to have a bake sale, grow a mustache, run a marathon, throw a party, organize a bowl-a-thon - however you do it, do it for NDSS and do it Your Way! 

Learn more about NDSS Your Way and start your campaign.
Check out the NDSS Your Way Pinterest board for inspiration.

Resources: Educate Your Friends, Family and Community

Down Syndrome Awareness Month is the perfect opportunity to teach those around you about Down syndrome, and there are lots of quick and easy ways to do it! The NDSS YouTube channel has dozens of videos that cover our resources, to advocacy, to the Buddy Walk®, to the My Great Story Video Project and more. With something for everyone, choose a video that speaks to you and present it to your child's class, sports team, youth group or club, or share it with friends, family and colleagues. 

NDSS is also proud to bring you the new "Get to Know Me" poster and lesson plan for elementary school-aged kids! Raise awareness and promote inclusion in your school with these new tools.

Raise awareness about Down syndrome and promote inclusion in your school with the new NDSS poster and accompanying lesson plan. - See more at:

NDSS has resources for the lifespan of an individual with Down syndrome.

Our New and Expectant Parent Guide is a comprehensive overview of Down syndrome written especially for parents, this booklet includes sections on healthy starts, early intervention therapies, how to find support and care for your family and what the future holds for your child.

Aging and Down Syndrome: A Health & Well-Being Guidebook  is a resource A resource for families, professionals, direct caregivers or anyone concerned with the general welfare of an adult with Down syndrome. 

For an overview of NDSS and Down syndrome, take a look at the NDSS Brochure.

We invite you to take a look at the digital versions and order printed copies to distribute to teachers and administrators or ask if the librarian would like materials for a bulletin board; you could take information to your local library, community center, place of worship, doctor's office, workplace, gym, coffee shop - anywhere that you think might be open to displaying or distributing information about Down syndrome! The resources are also available in Spanish.

We also recommend sharing our Down Syndrome Facts, Myths & Truths and Preferred Language Guideand we encourage you to peruse and find a topic that interests you. 

Have questions about Down syndrome? Reach out to the NDSS Helpline at [email protected] or 1-800-221-4602. Through our toll-free helpline and email service, NDSS receives more than 10,000 requests a year for information on Down syndrome. 

Become an Advocate: Two Great Ways to Get Involved

If you're looking to become more involved with NDSS advocacy efforts, we invite you to learn more about the NDSS DS-Ambassador Program. DS-Ambassadors are volunteer advocates of all abilities committed to taking part in the democratic process and serving as liaisons between NDSS and their Congressional Delegations.  The goal of the program is to build long-lasting relationships with US Senators and US Representatives to continually raise awareness, educate and advocate for public policy solutions that benefit the Down syndrome community at the federal level. Meet some of our DS-Ambassadors on our dedicated Pinterest board. Want to become an NDSS DS-Ambassador? Contact NDSS Manager of Grassroots Advocacy, Jawanda Mast, at [email protected]

We also encourage anyone with an interest in the Down syndrome community to sign up to receive NDSS email advocacy alerts. We'll let you know who to contact and when in order to positively impact Down syndrome legislative activities. A quick phone call or submitting a form email is usually all it takes to affect positive changes for people with Down syndrome!

Social Media: Go Viral

NDSS is active on social media year-round and Down Syndrome Awareness Month is an especially good time to follow and share! Follow NDSS and join the conversation on FacebookTwitterInstagramPinterest and You Tube. Don't forget to use #DSAM15!

Check out our 2015 DSAM social media content calendar here

Down Syndrome Awareness Swag

Down Syndrome Awareness Straws

National Buddy Walk® Partner Aardvark Straws has created Down syndrome awareness straws as part of their "Straws For A Cause" Line.  These straws will provide a unique, fun and easy fundraising and awareness opportunity for Buddy Walk® events and families across the world. These straws would make gifts for team captains or participants, incentive prizes, items to sell at your Buddy Walk® or even to use at picnics or to celebrate Down Syndrome Awareness in the classroom.

These paper straws are 100% made in the USA with US labor force including those with disabilities

Order straws here.

Buddy Walk Coffee

Buddy Walk® coffee sells for $14 a pound and Furnace Hills Coffee will be donating $6 per bag to the National Down Syndrome Society or the local Buddy Walk® organization.  Sales through the link on the NDSS website will benefit the National Down Syndrome Society, while sales coming through a local Buddy Walk® organization's website will benefit that local Buddy Walk®.     

Purchase your Buddy Walk® coffee here.

Down Syndrome Awareness Ties

Vineyard Vines and the National Down Syndrome Society have teamed up to
create Down Syndrome Awareness Ties. Four colors are offered - 
RedRoyalYellow and Navy - and are the same excellent quality one would expect from a Vineyard Vines tie. 

These ties will make a great addition to your wardrobe for work, special events or to simply show your support of the Down syndrome community. They also make wonderful gifts. Choose your favorite color or collect them all!

Purchase your Down Syndrome Awareness Ties here.

  • Buddy Walk
  • NDSS Yourway
  • NDSS DS-Ambassadors