The leading human rights organization for all individuals with Down syndrome.

National Down Syndrome Society
8 E 41st Street, 8th Floor
New York New York 10017
[email protected] 

Aging Matters: Growing Older with Down Syndrome

A One-day confernce to address health, family and quality of life for individuals with down syndrome through adulthood

Aging Matters: Growing Older with Down Syndrome

Hosted by the National Down Syndrome Society & Down Syndrome Community
Saturday, June 27, 2015
9:00 AM - 4:30 PM
Hilton Seattle Airport & Conference Center
Seattle, Washington

On Saturday, June 27, 2015, in Seattle, Washington, the National Down Syndrome Society and Down Syndrome Community will co-host, Aging Matters: Growing Older with Down Syndrome. Over the course of the day-long conference, a distinguished group of international experts will share valuable information on issues unique to adults with Down syndrome as they grow older - including topics on health, behavior, family relationships and quality of life. Parents, siblings, caretakers, professionals and individuals with Down syndrome are encouraged to attend. 

Register online here.

Catered breakfast and lunch, as well as parking, will be provided. A limited number of scholarships are available.

Following the conference, recordings of all presentations and accompanying handouts will and posted on

For questions, contact DSC Conference Coordinator Anne Mullis at 206-842-9027 or [email protected].

View the printable invite here.

Conference Schedule

9:00 – 10:00

Breakfast / Registration 







10:00 – 10:15

Welcome Remarks







10:15 - 11:15

“Transitions that Middle-Aged and Older Adults with Down syndrome and their Families Encounter”


Nancy Jokinen, MSW, Ph.D. Associate Professor, University of Northern British Columbia School of Social Work





11:00 – 12:00

“Behavioral Changes & Management Strategies with the Aging Person with Down Syndrome”


Lilian Thorpe, MD, FRCPC Professor of Psychiatry, University of Saskatchewan





12:00 – 1:00

Lunch Break







1:00 – 2:00

"Thinking About Aging...Preparing for Dementia When It Becomes a Reality"


Matthew Janicki, Ph.D. Director for Technical Assistance, Rehabilitation Research and Training Center on Developmental Disabilities and Health, University of Illinois, Chicago





2:00 – 2:20








2:20 - 3:20

“Exploring the Roles of Siblings of Adults with Down Syndrome”


Meghan Burke, Ph.D., BCBA-D Assistant Professor,  Department of Special Education, University of Illinois at Urbana-Champaign 





3:20 – 4:20

"Issues of Quality Life for Aging Individuals with Down Syndrome and Their Families"


Roy Brown, Ph.D. Adjunct Professor, School of Child and Youth Care, University of Victoria; Emeritus Professor, University of Calgary and Flinders University Australia





4:20 – 4:30

Closing Remarks








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