The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
666 Broadway, 8th Floor
New York New York 10012

Recent News

This is the most recent news items from NDSS are in this section.

  1. NDSS Hosts a Charity Ride at SoulCycle

    Join NDSS and SoulCycle in a Charity Ride on Saturday, June 21, 2015 in New York City.

  2. NDSS Announces Cookbook Contest

    NDSS is creating a cookbook featuring you and your favorite recipes. Enter the contest today!

  3. The National Down Syndrome Society (NDSS) Announces New Sports Ambassador, Alison Owen

    Alison Owen, pitcher for the Akron Racers, National Pro Fastpitch, has chosen to support the mission of NDSS by becoming the first NDSS Sports Ambassador

  4. NDSS Celebrates the 21st by Highlighting Programs

    On the 21st of every month, NDSS will highlight one of our programs and why it is important to the Down syndrome community.

  5. NDSS Puts the Spotlight on Tony Gostkowski

    Tony Gostkowski has been a generous contributor to NDSS since the birth of his granddaughter, Megan, who happens to have Down syndrome.

  6. 2015 Buddy Walk® on Washington

    Advocates take to Capitol Hill to advance the legislative priorities that positively impact the lives of people with Down syndrome and their families.

  7. Aging Matters: Growing Older with Down Syndrome

    On June 27, 2015, NDSS and the Down Syndrome Community will co-host the Age of Change conference in Seattle, Washington.

  8. Join Team 21 to Celebrate Down Syndrome Awareness

    Join Team 21 to Celebrate Down Syndrome AwarenessNational Down Syndrome Society invites you to join us for an NDSS Your Way event geared towards people participating in fundraising events to celebrate Down Syndrome Awareness!

  9. NDSS President, Sara Weir, Testifies in Support of the Ethan Saylor Center for Self-Advocates as Educators Bill

    NDSS President, Sara Weir, testified at a hearing today in strong support of the passage of the Ethan Saylor Center for Self-Advocates as Educators bill (SB 853).

  10. A Letter from David Egan on World Down Syndrome Day

    Meet David Egan! David is a 37 year-old man from Virginia. He is a talented public speaker and courageous self-advocate.

  11. World Down Syndrome Day 2015

    World Down Syndrome Day is on 3/21 to symbolize a third copy of the 21st chromosome in people with Down syndrome. Celebrate the value, acceptance and inclusion of people with Down syndrome on March 21!

  12. NDSS Names New President

    Sara Weir named as New President of National Down Syndrome Society

  13. ABLE Act Becomes the Law of the Land

    President Obama Signed the ABLE Act into Law – A Victory for the Down Syndrome Community

  14. President Obama Signs the ABLE Act into Law

    President Signs Most Bipartisan Bill as Part of Tax Extenders Package

  15. The Achieving a Better Life Experience (ABLE) Act Passed in Senate Today

    After Eight Years, Congress’ Most Bipartisan Bill Passes Set for a Presidential Signing

  16. NDSS and DSANV Mourn the loss of Steve Beck

    Beck was a Longtime Down Syndrome Community Leader and Board Member - Both Organizations Honor his Legacy

  17. The Achieving a Better Life Experience (ABLE) Act Overwhelmingly Passed in US House of Representatives Today

    After eight years, Congress’ most bipartisan bill passes, setting it up for a Senate vote and then onto the President’s desk

  18. It's That Time of Year, #GivingTuesday is Here!

    Be #unselfie and support the National Down Syndrome on this global day of giving

  19. NDSS DS-Ambassadors Head to DC for the ABLE Act Vote

  20. NDSS Announces Leadership Transition

    Sara Weir to serve as Interim President

  21. Keep Up the Pressure to Bring ABLE to the Floor – Call Senate & House Leadership Now!

    We need you to make four easy phone calls, tweets and posts to ensure ABLE gets scheduled for a vote!

  22. TAKE ACTION NOW: Contact Speaker John Boehner and Majority Leader Kevin McCarthy to Bring the ABLE Act for a Vote!

    We need your help TODAY!

  23. National Down Syndrome Society (NDSS) Receives the 2015 “Patient Organization of the Year” Award from the Rare Disease Legislative Advocates (RDLA)

    NDSS Receives the Abbey Award for its Advocacy Work on the Achieving a Better Life Experience (ABLE) Act (S. 313/H.R. 647)

  24. Voter's Rights

    Individuals with disabilities can be excluded from the voting process due to state voter-competence laws or because election officials, poll workers or service providers impose their own voting requirements.

  25. Letter from Sara Wolff

  26. Last Week of Charitybuzz Auction Benefiting NDSS

    Don't miss out on these amazing auction items that benefit the National Down Syndrome Society! Auction ends October 28, 2014.

  27. Down Syndrome Awareness Month 2014

    October is National Down Syndrome Awareness Month! There are many ways to celebrate and get involved. We encourage you to take action and raise awareness for people with Down syndrome this month!

  28. Toys“Я”Us and NDSS Team Up to Celebrate Down Syndrome Awareness Month!

    Join Toys“Я”Us and NDSS for a Twitter Chat on October 14 to celebrate Down syndrome and the opportunity to win some great prizes from Toys“Я”Us!

  29. The National Down Syndrome Society (NDSS) is Elated to Announce that a Bipartisan Agreement Has Been Reached to Move the ABLE Act Forward for a Floor Vote When Congress Returns

    NDSS Significantly Praises Chairman Ron Wyden (D-OR), Ranking Member Orinn Hatch (R-UT) of the US Senate Finance Committee, Chairman Dave Camp (R-MI) and Ranking Member Sander Levin (D-MI) of the US House Ways & Means Committee, and the Achieving a Better Life Experience (ABLE) Act Congressional Champions for their leadership and dedication to advancing the ABLE Act

  30. 2014 State of the Art Conference on Postsecondary Education

    NDSS sponsors an annual State of the Art Postsecondary Education Conference with George Mason University and other national organizations and federal agencies. This conference provides an opportunity for parents, students, researchers, college faculty, program staff, and representatives of schools and agencies to learn from one another and experts in the field and gain insight into how to develop and expand high-quality, inclusive postsecondary programs.

  31. National Down Syndrome Society named 2014 Brand of the Year

  32. ACE Cash Express Makes Generous Donation to the National Down Syndrome Society

    The National Down Syndrome Society (NDSS) is proud to have been the recipient of a generous donation from Ace Cash Express during the company’s Give a Little Campaign.

  33. The National Down Syndrome Society Joins Disability Rights Florida in Advocating to #LetGarrettFight

    Garrett Holeve, a 24 year old man with Down syndrome, has been denied his rights to an equal opportunity to compete in Mixed Martial Arts (MMA)

  34. Transition and Postsecondary Programs for Students with Intellectual Disabilities (TPSID) Programs Update

    Great strides towards postsecondary education, life in the community and employment are being made through the TPSID programs. It is essential that the TPSID programs and NCC be continued at the current funding level.

  35. National Down Syndrome Society Announces New Board of Directors Leadership

    The National Down Syndrome Society (NDSS) announced its new board of directors' leadership positions and named Captain Robert P. Taishoff JAGC, USN (ret) as its new Chairman of the Board.

  36. Patti Saylor To Testify at Senate Hearing

    Saylor to Testify before US Senate Judiciary Subcommittee on The Constitution, Civil Rights and Human Rights

  37. US Senate Leaders Harry Reid and Mitch McConnell Team Up to Back the Achieving a Better Life Experience (ABLE) Act, the National Down Syndrome Society (NDSS)’ number one legislative priority before the 113th Congress

    Senators Robert Casey Jr. and Richard Burr announced that Senate Majority Leader Harry Reid (D-NV) and Minority Leader Mitch McConnell (R-KY) have cosponsored the ABLE Act

  38. NDSS Celebrates World Down Syndrome Day 2014

    Here is a list of ways to get involved with World Down Syndrome Day 2014.

  39. NDSS 2014 Buddy Walk® on Washington

    National Down Syndrome Society’s Buddy Walk® on Washington Attracted over 320 Advocates from Across the Country to Capitol Hill to Advocate for the Achieving a Better Life Experience (ABLE) Act

  40. NDSS Inaugural Art Competition Winners

    NDSS is proud to announce our winners for the Inaugural Art Competition! NDSS invited all individuals with Down syndrome in the United States to submit their artwork, new or old, in an expression of creativity and originality to the theme of Self Expression: A Day in the Life of You. We received amazing pieces of art and look forward to displaying the winners at the NDSS Headquarters (New York and Washington, D.C.), select DC businesses, and select Congressional Offices!

  • Buddy Walk
  • NDSS Yourway
  • My Great Story
  • NDSS DS-Ambassadors